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i am the proud mother of 2 cfers and i am really amayzed at how much work it is...i am not complaining at all b/c i would do ANYTHING to keep them healthy and breathing...but it is amazing how much has to be done!!!!
i am the proud mother of 2 cfers and i am really amayzed at how much work it is...i am not complaining at all b/c i would do ANYTHING to keep them healthy and breathing...but it is amazing how much has to be done!!!!
i am the proud mother of 2 cfers and i am really amayzed at how much work it is...i am not complaining at all b/c i would do ANYTHING to keep them healthy and breathing...but it is amazing how much has to be done!!!!
i am the proud mother of 2 cfers and i am really amayzed at how much work it is...i am not complaining at all b/c i would do ANYTHING to keep them healthy and breathing...but it is amazing how much has to be done!!!!
i am the proud mother of 2 cfers and i am really amayzed at how much work it is...i am not complaining at all b/c i would do ANYTHING to keep them healthy and breathing...but it is amazing how much has to be done!!!!
DH made a comment the other day about how much time Max spends vesting -- not counting nebs. I never really sit down and add up the time. It's just a routine, what we have to do. I do tend to get a little down when another treatment or med is added. Or if he's been off tobi for a month and has to start again. It's all to keep him healthy, but I just feel rushed sometimes.
And I get frustrated when we don't know ahead of time about family social events or when they get upset with us because they don't take into consideration treatments, etc. If I know ahead of time, we can do the middle treatments a little early. This weekend, rumor has it there's a big fancy dinner planned for MIL's birthday celebration; however, nobody has said a word to us about it. Maybe we're not invited <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or they'll tell us at the last minute. Argh!
DH made a comment the other day about how much time Max spends vesting -- not counting nebs. I never really sit down and add up the time. It's just a routine, what we have to do. I do tend to get a little down when another treatment or med is added. Or if he's been off tobi for a month and has to start again. It's all to keep him healthy, but I just feel rushed sometimes.
And I get frustrated when we don't know ahead of time about family social events or when they get upset with us because they don't take into consideration treatments, etc. If I know ahead of time, we can do the middle treatments a little early. This weekend, rumor has it there's a big fancy dinner planned for MIL's birthday celebration; however, nobody has said a word to us about it. Maybe we're not invited <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or they'll tell us at the last minute. Argh!
DH made a comment the other day about how much time Max spends vesting -- not counting nebs. I never really sit down and add up the time. It's just a routine, what we have to do. I do tend to get a little down when another treatment or med is added. Or if he's been off tobi for a month and has to start again. It's all to keep him healthy, but I just feel rushed sometimes.
And I get frustrated when we don't know ahead of time about family social events or when they get upset with us because they don't take into consideration treatments, etc. If I know ahead of time, we can do the middle treatments a little early. This weekend, rumor has it there's a big fancy dinner planned for MIL's birthday celebration; however, nobody has said a word to us about it. Maybe we're not invited <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or they'll tell us at the last minute. Argh!
DH made a comment the other day about how much time Max spends vesting -- not counting nebs. I never really sit down and add up the time. It's just a routine, what we have to do. I do tend to get a little down when another treatment or med is added. Or if he's been off tobi for a month and has to start again. It's all to keep him healthy, but I just feel rushed sometimes.
And I get frustrated when we don't know ahead of time about family social events or when they get upset with us because they don't take into consideration treatments, etc. If I know ahead of time, we can do the middle treatments a little early. This weekend, rumor has it there's a big fancy dinner planned for MIL's birthday celebration; however, nobody has said a word to us about it. Maybe we're not invited <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or they'll tell us at the last minute. Argh!
DH made a comment the other day about how much time Max spends vesting -- not counting nebs. I never really sit down and add up the time. It's just a routine, what we have to do. I do tend to get a little down when another treatment or med is added. Or if he's been off tobi for a month and has to start again. It's all to keep him healthy, but I just feel rushed sometimes.
And I get frustrated when we don't know ahead of time about family social events or when they get upset with us because they don't take into consideration treatments, etc. If I know ahead of time, we can do the middle treatments a little early. This weekend, rumor has it there's a big fancy dinner planned for MIL's birthday celebration; however, nobody has said a word to us about it. Maybe we're not invited <img src="i/expressions/face-icon-small-smile.gif" border="0"> Or they'll tell us at the last minute. Argh!
Well said! Because of this disease, CF'ers don't take things for granted, like our lungs, every breath we take, the time we put in to keep our lungs and bodies healthy. CF is a full time job that is not quitable.
Well said! Because of this disease, CF'ers don't take things for granted, like our lungs, every breath we take, the time we put in to keep our lungs and bodies healthy. CF is a full time job that is not quitable.
Well said! Because of this disease, CF'ers don't take things for granted, like our lungs, every breath we take, the time we put in to keep our lungs and bodies healthy. CF is a full time job that is not quitable.
Well said! Because of this disease, CF'ers don't take things for granted, like our lungs, every breath we take, the time we put in to keep our lungs and bodies healthy. CF is a full time job that is not quitable.
Well said! Because of this disease, CF'ers don't take things for granted, like our lungs, every breath we take, the time we put in to keep our lungs and bodies healthy. CF is a full time job that is not quitable.
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