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FEV1

J

Jeana

New member
Mine was 80% in May and down to 68%. I'm on antibiotics though and I am going to try to up my exercise and longer vest time.
 
J

Jeana

New member
Mine was 80% in May and down to 68%. I'm on antibiotics though and I am going to try to up my exercise and longer vest time.
 
J

Jeana

New member
Mine was 80% in May and down to 68%. I'm on antibiotics though and I am going to try to up my exercise and longer vest time.
 
J

Jeana

New member
Mine was 80% in May and down to 68%. I'm on antibiotics though and I am going to try to up my exercise and longer vest time.
 
J

Jeana

New member
Mine was 80% in May and down to 68%. I'm on antibiotics though and I am going to try to up my exercise and longer vest time.
 
C

Charlene

New member
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
 
C

Charlene

New member
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
 
C

Charlene

New member
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
 
C

Charlene

New member
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
 
C

Charlene

New member
I am at 53. I have stayed pretty close to that for the last few months. I go up about 3 or 4 after antibiotics, but then when I go back down they get me started again. Guess it is just a vicious cycle. I think where I am is pretty good considering my age and everything. I'm just thankful for everyday that I can still do most of what I want,hope you can too.
 
M

mneville

Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...

But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?

Megan
 
M

mneville

Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...

But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?

Megan
 
M

mneville

Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...

But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?

Megan
 
M

mneville

Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...

But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?

Megan
 
M

mneville

Guest
I am totally naive as to the FEV #'s. Aidan at age 4 just did his first and had a # of 151% so I was psyched. We are beyond compliant with his treatments and do the hour daily at top pressure everyday of his VEST, Mucomyst, Pulmozyne and a slew of others...
<br />
<br />But as CF progresses, how low can your numbers go before transplant? If you have a FEV of only 40% or something, does that mean that 60% of your lung function is gone? Are you constantly out of breath and feeling crappy? I am in awe of how some of you manage life with low FEVs? It must be so frustrating to do all these treatments and still not get results?
<br />
<br />Megan
 
J

jbrandonAW

New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
 
J

jbrandonAW

New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
 
J

jbrandonAW

New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
 
J

jbrandonAW

New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
 
J

jbrandonAW

New member
Yah it basically like living with one lung (as I see it). When min goes below 40% I feel out of breath and tired alot. But in a way you get used to it.
 
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