Cystic Fibrosis Forum (EXP)
This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
First clinic visit on Tuesday
- Thread starter amyr
- Start date
Try searching through the old posts here... this is something that people have addressed already several times before.
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.
5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
Try searching through the old posts here... this is something that people have addressed already several times before.
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears again, if you had small children it's better to have some help too.
5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
Try searching through the old posts here... this is something that people have addressed already several times before.
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears again, if you had small children it's better to have some help too.
5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
Try searching through the old posts here... this is something that people have addressed already several times before.
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears again, if you had small children it's better to have some help too.
5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
My short version is:
1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
2)I always recommend taking a voice recorder or a note pad to take notes.
3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
Best wishes !
Try searching through the old posts here... this is something that people have addressed already several times before.
<br />
<br />My short version is:
<br />1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
<br />2)I always recommend taking a voice recorder or a note pad to take notes.
<br />3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
<br />4)Take a support person -- more sets of ears again, if you had small children it's better to have some help too.
<br />5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
<br />
<br />Best wishes !
<br />
<br />
<br />
<br />My short version is:
<br />1)Plan on several hours -- usually with the patient it is 4-5 hours, yours might be less because if you are not to bring your kid(s) than that will cut down on things they will do.
<br />2)I always recommend taking a voice recorder or a note pad to take notes.
<br />3)You will usually meet with the nurse, doctor, dietician, respiratory therapist, social worker and at some clinics the pharmacist.
<br />4)Take a support person -- more sets of ears
again, if you had small children it's better to have some help too.<br />5)If you were to have the kids with you, they would have several things done: exam by doctor, height and weight, PFT's (pulmonary function tests), labs (blood draw), chest x-ray and throat culture. At some point I'm sure they will want to schedule CT scans of lungs and sinus.
<br />
<br />Best wishes !
<br />
<br />
BabyBeauty
New member
I second everything that was said in the previous post. Take a big deep breath and good luck!
BabyBeauty
New member
I second everything that was said in the previous post. Take a big deep breath and good luck!
BabyBeauty
New member
I second everything that was said in the previous post. Take a big deep breath and good luck!
BabyBeauty
New member
I second everything that was said in the previous post. Take a big deep breath and good luck!
BabyBeauty
New member
I second everything that was said in the previous post. Take a big deep breath and good luck!
I was there for four hrs. and came home with a trunk full of stuff. WOW. I met everyone who will be involved in our care and they were all wonderful. I am so happy I have a group of people who will be helping my family. I was also happy to find out there is another CF patient in our clinic with the same genetics as my kids.
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
I was there for four hrs. and came home with a trunk full of stuff. WOW. I met everyone who will be involved in our care and they were all wonderful. I am so happy I have a group of people who will be helping my family. I was also happy to find out there is another CF patient in our clinic with the same genetics as my kids.
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
I was there for four hrs. and came home with a trunk full of stuff. WOW. I met everyone who will be involved in our care and they were all wonderful. I am so happy I have a group of people who will be helping my family. I was also happy to find out there is another CF patient in our clinic with the same genetics as my kids.
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
I was there for four hrs. and came home with a trunk full of stuff. WOW. I met everyone who will be involved in our care and they were all wonderful. I am so happy I have a group of people who will be helping my family. I was also happy to find out there is another CF patient in our clinic with the same genetics as my kids.
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
I was there for four hrs. and came home with a trunk full of stuff. WOW. I met everyone who will be involved in our care and they were all wonderful. I am so happy I have a group of people who will be helping my family. I was also happy to find out there is another CF patient in our clinic with the same genetics as my kids.
<br />
<br />My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!
<br />
<br />My oldest is going in for a sweat test tomorrow morning. I am praying he will be under 10!!