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First time in hospital?

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LouLou

New member
Also remember Heather this is a post in the Adult section. Because of PICCs and other great advancements in care options, Alyssa's treatments are going to be far more agressive seeming than the adults childhood experiences b/c our docs didn't have all the options that Alyssa's doc has as his/her disposal. She's got a bright future ahead - chin up ;-)
 
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LouLou

New member
Also remember Heather this is a post in the Adult section. Because of PICCs and other great advancements in care options, Alyssa's treatments are going to be far more agressive seeming than the adults childhood experiences b/c our docs didn't have all the options that Alyssa's doc has as his/her disposal. She's got a bright future ahead - chin up ;-)
 
L

LouLou

New member
Also remember Heather this is a post in the Adult section. Because of PICCs and other great advancements in care options, Alyssa's treatments are going to be far more agressive seeming than the adults childhood experiences b/c our docs didn't have all the options that Alyssa's doc has as his/her disposal. She's got a bright future ahead - chin up ;-)
 
L

LouLou

New member
Also remember Heather this is a post in the Adult section. Because of PICCs and other great advancements in care options, Alyssa's treatments are going to be far more agressive seeming than the adults childhood experiences b/c our docs didn't have all the options that Alyssa's doc has as his/her disposal. She's got a bright future ahead - chin up ;-)
 
L

LouLou

New member
Also remember Heather this is a post in the Adult section. Because of PICCs and other great advancements in care options, Alyssa's treatments are going to be far more agressive seeming than the adults childhood experiences b/c our docs didn't have all the options that Alyssa's doc has as his/her disposal. She's got a bright future ahead - chin up ;-)
 
L

lilywing

New member
My first hospitalization was at the age of 13 for CF-related arthropathy. Does anyone else have that? Periodically, I get severe, disabling joint pain, accompanied by a red, raised rash that feels bruised. It comes on quite suddenly, and lasts only a couple days. Anyways, I was in hospital for a week, basically just for observation. I guess there's not much they can do about it.

At 18, I was hospitalized for pneumonia for 2 weeks, peripheral IVs all the way.

At 22, I was hospitalized for 7 weeks, resulting in a diagnosis of ITP (Idiopathic Thrombocytopenia Purpura), a splenectomy. Again, peripheral IVs the whole time. And I wonder why my veins are shot...

My first PICC was in 2003 for home IVs. Here in Alberta, Canada, hospital stays are covered by health care, but I have to pay for my drugs and supplies if I go the route of home IV. It seems completely backwards to me...
So, if I can afford to do home IVs at the time, I prefer that. However, my docs seem to want me in hospital for extra CPT and monitoring.

Since then, I'm in hospital every 6-12 months.
 
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lilywing

New member
My first hospitalization was at the age of 13 for CF-related arthropathy. Does anyone else have that? Periodically, I get severe, disabling joint pain, accompanied by a red, raised rash that feels bruised. It comes on quite suddenly, and lasts only a couple days. Anyways, I was in hospital for a week, basically just for observation. I guess there's not much they can do about it.

At 18, I was hospitalized for pneumonia for 2 weeks, peripheral IVs all the way.

At 22, I was hospitalized for 7 weeks, resulting in a diagnosis of ITP (Idiopathic Thrombocytopenia Purpura), a splenectomy. Again, peripheral IVs the whole time. And I wonder why my veins are shot...

My first PICC was in 2003 for home IVs. Here in Alberta, Canada, hospital stays are covered by health care, but I have to pay for my drugs and supplies if I go the route of home IV. It seems completely backwards to me...
So, if I can afford to do home IVs at the time, I prefer that. However, my docs seem to want me in hospital for extra CPT and monitoring.

Since then, I'm in hospital every 6-12 months.
 
L

lilywing

New member
My first hospitalization was at the age of 13 for CF-related arthropathy. Does anyone else have that? Periodically, I get severe, disabling joint pain, accompanied by a red, raised rash that feels bruised. It comes on quite suddenly, and lasts only a couple days. Anyways, I was in hospital for a week, basically just for observation. I guess there's not much they can do about it.

At 18, I was hospitalized for pneumonia for 2 weeks, peripheral IVs all the way.

At 22, I was hospitalized for 7 weeks, resulting in a diagnosis of ITP (Idiopathic Thrombocytopenia Purpura), a splenectomy. Again, peripheral IVs the whole time. And I wonder why my veins are shot...

My first PICC was in 2003 for home IVs. Here in Alberta, Canada, hospital stays are covered by health care, but I have to pay for my drugs and supplies if I go the route of home IV. It seems completely backwards to me...
So, if I can afford to do home IVs at the time, I prefer that. However, my docs seem to want me in hospital for extra CPT and monitoring.

Since then, I'm in hospital every 6-12 months.
 
L

lilywing

New member
My first hospitalization was at the age of 13 for CF-related arthropathy. Does anyone else have that? Periodically, I get severe, disabling joint pain, accompanied by a red, raised rash that feels bruised. It comes on quite suddenly, and lasts only a couple days. Anyways, I was in hospital for a week, basically just for observation. I guess there's not much they can do about it.

At 18, I was hospitalized for pneumonia for 2 weeks, peripheral IVs all the way.

At 22, I was hospitalized for 7 weeks, resulting in a diagnosis of ITP (Idiopathic Thrombocytopenia Purpura), a splenectomy. Again, peripheral IVs the whole time. And I wonder why my veins are shot...

My first PICC was in 2003 for home IVs. Here in Alberta, Canada, hospital stays are covered by health care, but I have to pay for my drugs and supplies if I go the route of home IV. It seems completely backwards to me...
So, if I can afford to do home IVs at the time, I prefer that. However, my docs seem to want me in hospital for extra CPT and monitoring.

Since then, I'm in hospital every 6-12 months.
 
L

lilywing

New member
My first hospitalization was at the age of 13 for CF-related arthropathy. Does anyone else have that? Periodically, I get severe, disabling joint pain, accompanied by a red, raised rash that feels bruised. It comes on quite suddenly, and lasts only a couple days. Anyways, I was in hospital for a week, basically just for observation. I guess there's not much they can do about it.
<br />
<br />At 18, I was hospitalized for pneumonia for 2 weeks, peripheral IVs all the way.
<br />
<br />At 22, I was hospitalized for 7 weeks, resulting in a diagnosis of ITP (Idiopathic Thrombocytopenia Purpura), a splenectomy. Again, peripheral IVs the whole time. And I wonder why my veins are shot...
<br />
<br />My first PICC was in 2003 for home IVs. Here in Alberta, Canada, hospital stays are covered by health care, but I have to pay for my drugs and supplies if I go the route of home IV. It seems completely backwards to me...
<br />So, if I can afford to do home IVs at the time, I prefer that. However, my docs seem to want me in hospital for extra CPT and monitoring.
<br />
<br />Since then, I'm in hospital every 6-12 months.
 
P

purplemartin

New member
Wow, this is a little depressing for me<img src="i/expressions/face-icon-small-sad.gif" border="0">.........but still happy to read so many did not progress until later in childhood!

Briceton is 2 ½, we are actually being admitted today for his 9th hospital admission, eight of which were for IV infusions only.

I do pray he gets a break soon and we can eventually make it years without an admission!
 
P

purplemartin

New member
Wow, this is a little depressing for me<img src="i/expressions/face-icon-small-sad.gif" border="0">.........but still happy to read so many did not progress until later in childhood!

Briceton is 2 ½, we are actually being admitted today for his 9th hospital admission, eight of which were for IV infusions only.

I do pray he gets a break soon and we can eventually make it years without an admission!
 
P

purplemartin

New member
Wow, this is a little depressing for me<img src="i/expressions/face-icon-small-sad.gif" border="0">.........but still happy to read so many did not progress until later in childhood!

Briceton is 2 ½, we are actually being admitted today for his 9th hospital admission, eight of which were for IV infusions only.

I do pray he gets a break soon and we can eventually make it years without an admission!
 
P

purplemartin

New member
Wow, this is a little depressing for me<img src="i/expressions/face-icon-small-sad.gif" border="0">.........but still happy to read so many did not progress until later in childhood!

Briceton is 2 ½, we are actually being admitted today for his 9th hospital admission, eight of which were for IV infusions only.

I do pray he gets a break soon and we can eventually make it years without an admission!
 
P

purplemartin

New member
Wow, this is a little depressing for me<img src="i/expressions/face-icon-small-sad.gif" border="0">.........but still happy to read so many did not progress until later in childhood!
<br />
<br />Briceton is 2 ½, we are actually being admitted today for his 9th hospital admission, eight of which were for IV infusions only.
<br />
<br />I do pray he gets a break soon and we can eventually make it years without an admission!
<br />
 
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tarheel

Guest
I was so little I don't remember the first time I was admitted. But the times in memory- doctors try to keep you in for the bedrest and cpt- but if you push they'll let you go home on homecare. I have had over 20 picc lines- any questions at all about them private message me. the resp. therapy is a lot more intensive in the hospital- 4 times a day usually (for me). I would push to go home though with homecare and a picc because of the risk of infections. Homecare can do as good a job or better of taking care of the lines than the staff in the hospital.
 
T

tarheel

Guest
I was so little I don't remember the first time I was admitted. But the times in memory- doctors try to keep you in for the bedrest and cpt- but if you push they'll let you go home on homecare. I have had over 20 picc lines- any questions at all about them private message me. the resp. therapy is a lot more intensive in the hospital- 4 times a day usually (for me). I would push to go home though with homecare and a picc because of the risk of infections. Homecare can do as good a job or better of taking care of the lines than the staff in the hospital.
 
T

tarheel

Guest
I was so little I don't remember the first time I was admitted. But the times in memory- doctors try to keep you in for the bedrest and cpt- but if you push they'll let you go home on homecare. I have had over 20 picc lines- any questions at all about them private message me. the resp. therapy is a lot more intensive in the hospital- 4 times a day usually (for me). I would push to go home though with homecare and a picc because of the risk of infections. Homecare can do as good a job or better of taking care of the lines than the staff in the hospital.
 
T

tarheel

Guest
I was so little I don't remember the first time I was admitted. But the times in memory- doctors try to keep you in for the bedrest and cpt- but if you push they'll let you go home on homecare. I have had over 20 picc lines- any questions at all about them private message me. the resp. therapy is a lot more intensive in the hospital- 4 times a day usually (for me). I would push to go home though with homecare and a picc because of the risk of infections. Homecare can do as good a job or better of taking care of the lines than the staff in the hospital.
 
T

tarheel

Guest
I was so little I don't remember the first time I was admitted. But the times in memory- doctors try to keep you in for the bedrest and cpt- but if you push they'll let you go home on homecare. I have had over 20 picc lines- any questions at all about them private message me. the resp. therapy is a lot more intensive in the hospital- 4 times a day usually (for me). I would push to go home though with homecare and a picc because of the risk of infections. Homecare can do as good a job or better of taking care of the lines than the staff in the hospital.
 
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