well were home from our first visit to childrens hospital
it went pretty well. they upped her meds to one full pill before every feeding (instead of just half) and we had a little scare... were suposed to be suplamenting her salt intake and were told 1/8th tsp. in every bottle, but it turns out it was suposed to be 1/8th tsp. over 24 hours! :shock: they ordered blood work stat because too much salt is really bad so were totaly freaked out! got the blood work and it all came back in normal range (she was just peeing out the excess salt THANK GOD) so once we got that out of the way..... not shell be getting lung treatments 2x a day to prevent any future lung problems.
they also encouraged me to put her in public school. i was going to home school so she wouldnt get sick but they said NO day care and NO preschool before 4y/o. anything after that she should be good.
they said NO one should be holding her right now but us. i asked because my little cousin wants to hold her so so bad and im so nervous shell get sick and the DR said no one should be holding or touching her and were not allowd in any crowded areas (grocery stores etc) so dh has to do all the shoping
so her lungs are great for now and we just have to keep on the treatments to keep them from getting damaged. shell get bronco dialator 2x a day and chest percusion 2x a day
also shes in the 50th % for her height but only 10 % for her weight <img src="i/expressions/face-icon-small-sad.gif" border="0"> shes so small... we go back in 2 weeks to see if upping her meds helps her gain weight if not then well probably have to start cramming her food with calories... pray the pills work
it went pretty well. they upped her meds to one full pill before every feeding (instead of just half) and we had a little scare... were suposed to be suplamenting her salt intake and were told 1/8th tsp. in every bottle, but it turns out it was suposed to be 1/8th tsp. over 24 hours! :shock: they ordered blood work stat because too much salt is really bad so were totaly freaked out! got the blood work and it all came back in normal range (she was just peeing out the excess salt THANK GOD) so once we got that out of the way..... not shell be getting lung treatments 2x a day to prevent any future lung problems.
they also encouraged me to put her in public school. i was going to home school so she wouldnt get sick but they said NO day care and NO preschool before 4y/o. anything after that she should be good.
they said NO one should be holding her right now but us. i asked because my little cousin wants to hold her so so bad and im so nervous shell get sick and the DR said no one should be holding or touching her and were not allowd in any crowded areas (grocery stores etc) so dh has to do all the shoping
so her lungs are great for now and we just have to keep on the treatments to keep them from getting damaged. shell get bronco dialator 2x a day and chest percusion 2x a day
also shes in the 50th % for her height but only 10 % for her weight <img src="i/expressions/face-icon-small-sad.gif" border="0"> shes so small... we go back in 2 weeks to see if upping her meds helps her gain weight if not then well probably have to start cramming her food with calories... pray the pills work