Hi guys-<br>
I posted this in the family section a few days ago...nobody
responded...thought I would explain it because it is VERY
exciting.<br>
<br>
In the Journal of CF this month, there is a case study of a 6 year
old child with cf who has been on high dose vitamin B-9 (FOLIC
ACID) since her diagnosis (diagnosed at birth.)<br>
At 2 months old she had positive sweat tests, and her
genotypes were identified. Her fatty acid imbalance was tested and
was concluded to be that of hallmark cf imbalance.<br>
<br>
Her doctors started the mother on high dose folic acid to see if
they could help restore the DHA levels in the baby girl....she was
breast feeding at the time. Within months DHA was reversed
and was better than control baby. Since then the child has
been on high dose Folic Acid and B-12 and has NO clinical,
radiological symptoms of cf. She is not on enzymes and was
not started on them at birth....however, she did have stool samples
done as an infant that showed need for enzymes. Doctors
waited to see if there would be an improvement in weight and there
was.<br>
<br>
<br>
Having said all of this, most bacteria synthesize folic acid to
grow (including psuedo and mycobacteria), for adults maybe not a
good idea, but for young ones....this is amazing.<br>
<br>
I am sure as you remember, high DHA doses reversed the organ
pathology of cf in cf knockout mice...meaning it cured
them...but high dose DHA is not feasible in humans because it is
too toxic.<br>
<br>
Wouldn't it be fantastic if it were that easy? Just like
Lorenzo's oil???? And the case report is from Italy.....a
larger study is being organized.<br>
<br>
I have the article if anyone wants it.....a friend with cf sent it
to me.<br>
mandy<br>
<br>
It is possible to be allergic to Folic Acid....FYI<br>
<br>
I posted this in the family section a few days ago...nobody
responded...thought I would explain it because it is VERY
exciting.<br>
<br>
In the Journal of CF this month, there is a case study of a 6 year
old child with cf who has been on high dose vitamin B-9 (FOLIC
ACID) since her diagnosis (diagnosed at birth.)<br>
At 2 months old she had positive sweat tests, and her
genotypes were identified. Her fatty acid imbalance was tested and
was concluded to be that of hallmark cf imbalance.<br>
<br>
Her doctors started the mother on high dose folic acid to see if
they could help restore the DHA levels in the baby girl....she was
breast feeding at the time. Within months DHA was reversed
and was better than control baby. Since then the child has
been on high dose Folic Acid and B-12 and has NO clinical,
radiological symptoms of cf. She is not on enzymes and was
not started on them at birth....however, she did have stool samples
done as an infant that showed need for enzymes. Doctors
waited to see if there would be an improvement in weight and there
was.<br>
<br>
<br>
Having said all of this, most bacteria synthesize folic acid to
grow (including psuedo and mycobacteria), for adults maybe not a
good idea, but for young ones....this is amazing.<br>
<br>
I am sure as you remember, high DHA doses reversed the organ
pathology of cf in cf knockout mice...meaning it cured
them...but high dose DHA is not feasible in humans because it is
too toxic.<br>
<br>
Wouldn't it be fantastic if it were that easy? Just like
Lorenzo's oil???? And the case report is from Italy.....a
larger study is being organized.<br>
<br>
I have the article if anyone wants it.....a friend with cf sent it
to me.<br>
mandy<br>
<br>
It is possible to be allergic to Folic Acid....FYI<br>
<br>