jledeveaux
New member
Orkambi question... has anyone experienced elevated blood sugar levels? My 12 yo daughter, who is supposedly glucose intolerant but has always had completely normal blood sugar levels on an every day basis, has had somewhat high numbers ever since starting Orkambi... two weeks ago. It's not one of the ''common'' side effects listed and I can't really find any other evidence that others are experiencing this. Talked to our nurse and he pretty much told me there's no evidence at all, anywhere, so there's no way it could be caused by the Orkambi... but my mama's instinct is SURE it is... there's no other reason. Any insight is appreciated.