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Frustration with a friend'

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bittyhorse23

New member
I would get frustrated too. I actually get VERY annoyed when my one friend comments about how I am going to live to be 60 (ha yeah right!) There is a difference between postive and upbeat and downright unrealistic. I don't think your friend falls into the totally unrealistic category though. Seems more like a simplification statement directed towards the original commentor (wow too many long words so early in the am). There are more treatments that extend our lives BUT it isn't based soley on our compliance.

I have to agree with SaltyandSweet that its a way for people to deal with mortality. It's easier to think "oh she can control this disease" then to think "well sh*t she could die tomorrow from it".

<img src="i/expressions/heart.gif" border="0">
 
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bittyhorse23

New member
I would get frustrated too. I actually get VERY annoyed when my one friend comments about how I am going to live to be 60 (ha yeah right!) There is a difference between postive and upbeat and downright unrealistic. I don't think your friend falls into the totally unrealistic category though. Seems more like a simplification statement directed towards the original commentor (wow too many long words so early in the am). There are more treatments that extend our lives BUT it isn't based soley on our compliance.

I have to agree with SaltyandSweet that its a way for people to deal with mortality. It's easier to think "oh she can control this disease" then to think "well sh*t she could die tomorrow from it".

<img src="i/expressions/heart.gif" border="0">
 
B

bittyhorse23

New member
I would get frustrated too. I actually get VERY annoyed when my one friend comments about how I am going to live to be 60 (ha yeah right!) There is a difference between postive and upbeat and downright unrealistic. I don't think your friend falls into the totally unrealistic category though. Seems more like a simplification statement directed towards the original commentor (wow too many long words so early in the am). There are more treatments that extend our lives BUT it isn't based soley on our compliance.

I have to agree with SaltyandSweet that its a way for people to deal with mortality. It's easier to think "oh she can control this disease" then to think "well sh*t she could die tomorrow from it".

<img src="i/expressions/heart.gif" border="0">
 
B

bittyhorse23

New member
I would get frustrated too. I actually get VERY annoyed when my one friend comments about how I am going to live to be 60 (ha yeah right!) There is a difference between postive and upbeat and downright unrealistic. I don't think your friend falls into the totally unrealistic category though. Seems more like a simplification statement directed towards the original commentor (wow too many long words so early in the am). There are more treatments that extend our lives BUT it isn't based soley on our compliance.

I have to agree with SaltyandSweet that its a way for people to deal with mortality. It's easier to think "oh she can control this disease" then to think "well sh*t she could die tomorrow from it".

<img src="i/expressions/heart.gif" border="0">
 
B

bittyhorse23

New member
I would get frustrated too. I actually get VERY annoyed when my one friend comments about how I am going to live to be 60 (ha yeah right!) There is a difference between postive and upbeat and downright unrealistic. I don't think your friend falls into the totally unrealistic category though. Seems more like a simplification statement directed towards the original commentor (wow too many long words so early in the am). There are more treatments that extend our lives BUT it isn't based soley on our compliance.
<br />
<br />I have to agree with SaltyandSweet that its a way for people to deal with mortality. It's easier to think "oh she can control this disease" then to think "well sh*t she could die tomorrow from it".
<br />
<br /><img src="i/expressions/heart.gif" border="0">
 
I

izemmom

New member
I agree with you. I get this as a parent, too. The few people who actually do know what cf is are always surprised to learn that the life expectancy is now 37. After hearing it t he general attitude is "Oh, that't great, she can live a normal life for 37 years." and they're done thinking about it. Those who have no clue about cf just think it's a minor thing since she's doing so well now. I tell people all the time how hard we work to keep her healthy, and I do think that others assume that means she'll stay healthy. I want to scream sometimes and say "YOu idiots! There are STILL 6 and 7 year olds facing lung trasplants, 10 year olds dying! 14 yfear olds battling rejection after transplant, 17 year olds with CFRD, artiritis, hearing loss...AND their parentsid everything that I do, their doctors were just as knowledgeable, their medicines were just as effective. There are no guarunties with this disease. We don't know what Emily's life will look like in 5 years., or two. I wish people got that.
 
I

izemmom

New member
I agree with you. I get this as a parent, too. The few people who actually do know what cf is are always surprised to learn that the life expectancy is now 37. After hearing it t he general attitude is "Oh, that't great, she can live a normal life for 37 years." and they're done thinking about it. Those who have no clue about cf just think it's a minor thing since she's doing so well now. I tell people all the time how hard we work to keep her healthy, and I do think that others assume that means she'll stay healthy. I want to scream sometimes and say "YOu idiots! There are STILL 6 and 7 year olds facing lung trasplants, 10 year olds dying! 14 yfear olds battling rejection after transplant, 17 year olds with CFRD, artiritis, hearing loss...AND their parentsid everything that I do, their doctors were just as knowledgeable, their medicines were just as effective. There are no guarunties with this disease. We don't know what Emily's life will look like in 5 years., or two. I wish people got that.
 
I

izemmom

New member
I agree with you. I get this as a parent, too. The few people who actually do know what cf is are always surprised to learn that the life expectancy is now 37. After hearing it t he general attitude is "Oh, that't great, she can live a normal life for 37 years." and they're done thinking about it. Those who have no clue about cf just think it's a minor thing since she's doing so well now. I tell people all the time how hard we work to keep her healthy, and I do think that others assume that means she'll stay healthy. I want to scream sometimes and say "YOu idiots! There are STILL 6 and 7 year olds facing lung trasplants, 10 year olds dying! 14 yfear olds battling rejection after transplant, 17 year olds with CFRD, artiritis, hearing loss...AND their parentsid everything that I do, their doctors were just as knowledgeable, their medicines were just as effective. There are no guarunties with this disease. We don't know what Emily's life will look like in 5 years., or two. I wish people got that.
 
I

izemmom

New member
I agree with you. I get this as a parent, too. The few people who actually do know what cf is are always surprised to learn that the life expectancy is now 37. After hearing it t he general attitude is "Oh, that't great, she can live a normal life for 37 years." and they're done thinking about it. Those who have no clue about cf just think it's a minor thing since she's doing so well now. I tell people all the time how hard we work to keep her healthy, and I do think that others assume that means she'll stay healthy. I want to scream sometimes and say "YOu idiots! There are STILL 6 and 7 year olds facing lung trasplants, 10 year olds dying! 14 yfear olds battling rejection after transplant, 17 year olds with CFRD, artiritis, hearing loss...AND their parentsid everything that I do, their doctors were just as knowledgeable, their medicines were just as effective. There are no guarunties with this disease. We don't know what Emily's life will look like in 5 years., or two. I wish people got that.
 
I

izemmom

New member
I agree with you. I get this as a parent, too. The few people who actually do know what cf is are always surprised to learn that the life expectancy is now 37. After hearing it t he general attitude is "Oh, that't great, she can live a normal life for 37 years." and they're done thinking about it. Those who have no clue about cf just think it's a minor thing since she's doing so well now. I tell people all the time how hard we work to keep her healthy, and I do think that others assume that means she'll stay healthy. I want to scream sometimes and say "YOu idiots! There are STILL 6 and 7 year olds facing lung trasplants, 10 year olds dying! 14 yfear olds battling rejection after transplant, 17 year olds with CFRD, artiritis, hearing loss...AND their parentsid everything that I do, their doctors were just as knowledgeable, their medicines were just as effective. There are no guarunties with this disease. We don't know what Emily's life will look like in 5 years., or two. I wish people got that.
 
C

CFTEAMA

New member
I underdtand what your talking about. My moms friend who had a sick child/man that died a few years ago from smoking to much. When my mom was talking to her and told her that I have CF she's like ((what?? I kids that had CF down at childrens hospital in the 1960's where soo sick and had people beating them all the time, are you sure that what she's got??? its got to be somthing eles!))

So this week my mom sent her my story about me for the CF walk. It's like (take that then see what I do in one day)
I get so sick of peoples junk!!!

Sarah Bor 20/w CF
 
C

CFTEAMA

New member
I underdtand what your talking about. My moms friend who had a sick child/man that died a few years ago from smoking to much. When my mom was talking to her and told her that I have CF she's like ((what?? I kids that had CF down at childrens hospital in the 1960's where soo sick and had people beating them all the time, are you sure that what she's got??? its got to be somthing eles!))

So this week my mom sent her my story about me for the CF walk. It's like (take that then see what I do in one day)
I get so sick of peoples junk!!!

Sarah Bor 20/w CF
 
C

CFTEAMA

New member
I underdtand what your talking about. My moms friend who had a sick child/man that died a few years ago from smoking to much. When my mom was talking to her and told her that I have CF she's like ((what?? I kids that had CF down at childrens hospital in the 1960's where soo sick and had people beating them all the time, are you sure that what she's got??? its got to be somthing eles!))

So this week my mom sent her my story about me for the CF walk. It's like (take that then see what I do in one day)
I get so sick of peoples junk!!!

Sarah Bor 20/w CF
 
C

CFTEAMA

New member
I underdtand what your talking about. My moms friend who had a sick child/man that died a few years ago from smoking to much. When my mom was talking to her and told her that I have CF she's like ((what?? I kids that had CF down at childrens hospital in the 1960's where soo sick and had people beating them all the time, are you sure that what she's got??? its got to be somthing eles!))

So this week my mom sent her my story about me for the CF walk. It's like (take that then see what I do in one day)
I get so sick of peoples junk!!!

Sarah Bor 20/w CF
 
C

CFTEAMA

New member
I underdtand what your talking about. My moms friend who had a sick child/man that died a few years ago from smoking to much. When my mom was talking to her and told her that I have CF she's like ((what?? I kids that had CF down at childrens hospital in the 1960's where soo sick and had people beating them all the time, are you sure that what she's got??? its got to be somthing eles!))
<br />
<br />So this week my mom sent her my story about me for the CF walk. It's like (take that then see what I do in one day)
<br />I get so sick of peoples junk!!!
<br />
<br />Sarah Bor 20/w CF
 
B

barbc888

New member
It is frustrating. My boss (who knows I have CF) mentioned that I looked good (which I hate because it implies that if I look good, then I must feel good). And if I'm working 40 hours a week, then CF is just a matter of popping a pill and then I'm good. NOT. He has no idea what I go thru when I get home. From the second I walk in the door until I go to bed (at a late hour), I'm doing treatments and trying to fit in dinner so that my blood sugar won't drop from my CFRD. When I get frustrated like this, I just remind myself that they don't know, they don't know the disease and what it's all about.
 
B

barbc888

New member
It is frustrating. My boss (who knows I have CF) mentioned that I looked good (which I hate because it implies that if I look good, then I must feel good). And if I'm working 40 hours a week, then CF is just a matter of popping a pill and then I'm good. NOT. He has no idea what I go thru when I get home. From the second I walk in the door until I go to bed (at a late hour), I'm doing treatments and trying to fit in dinner so that my blood sugar won't drop from my CFRD. When I get frustrated like this, I just remind myself that they don't know, they don't know the disease and what it's all about.
 
B

barbc888

New member
It is frustrating. My boss (who knows I have CF) mentioned that I looked good (which I hate because it implies that if I look good, then I must feel good). And if I'm working 40 hours a week, then CF is just a matter of popping a pill and then I'm good. NOT. He has no idea what I go thru when I get home. From the second I walk in the door until I go to bed (at a late hour), I'm doing treatments and trying to fit in dinner so that my blood sugar won't drop from my CFRD. When I get frustrated like this, I just remind myself that they don't know, they don't know the disease and what it's all about.
 
B

barbc888

New member
It is frustrating. My boss (who knows I have CF) mentioned that I looked good (which I hate because it implies that if I look good, then I must feel good). And if I'm working 40 hours a week, then CF is just a matter of popping a pill and then I'm good. NOT. He has no idea what I go thru when I get home. From the second I walk in the door until I go to bed (at a late hour), I'm doing treatments and trying to fit in dinner so that my blood sugar won't drop from my CFRD. When I get frustrated like this, I just remind myself that they don't know, they don't know the disease and what it's all about.
 
B

barbc888

New member
It is frustrating. My boss (who knows I have CF) mentioned that I looked good (which I hate because it implies that if I look good, then I must feel good). And if I'm working 40 hours a week, then CF is just a matter of popping a pill and then I'm good. NOT. He has no idea what I go thru when I get home. From the second I walk in the door until I go to bed (at a late hour), I'm doing treatments and trying to fit in dinner so that my blood sugar won't drop from my CFRD. When I get frustrated like this, I just remind myself that they don't know, they don't know the disease and what it's all about.
 
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