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fungal infection

Diane

New member
Im very curious since i dont know anything about it, are there any specific symptoms of a fungal infection? Since my doctor mentioned it looks like i have a fungus ball in my lung ( and started treatment while we wait for the sputum sample results), i am now wondering if there are any symptoms i may have had, and didnt realize it wasnt just cf. Even after my embolization last week i am still having some blood after coughing hard and i am wondering if this could be due to the fungus. I remember a few talking about their experiences with a fungal infection and am curious what symptoms they had.
 

Diane

New member
Im very curious since i dont know anything about it, are there any specific symptoms of a fungal infection? Since my doctor mentioned it looks like i have a fungus ball in my lung ( and started treatment while we wait for the sputum sample results), i am now wondering if there are any symptoms i may have had, and didnt realize it wasnt just cf. Even after my embolization last week i am still having some blood after coughing hard and i am wondering if this could be due to the fungus. I remember a few talking about their experiences with a fungal infection and am curious what symptoms they had.
 

Diane

New member
Im very curious since i dont know anything about it, are there any specific symptoms of a fungal infection? Since my doctor mentioned it looks like i have a fungus ball in my lung ( and started treatment while we wait for the sputum sample results), i am now wondering if there are any symptoms i may have had, and didnt realize it wasnt just cf. Even after my embolization last week i am still having some blood after coughing hard and i am wondering if this could be due to the fungus. I remember a few talking about their experiences with a fungal infection and am curious what symptoms they had.
 

LouLou

New member
Diane, Isn't it great that we have this site to do research when we have these sort of new developments! This is what I knonw.

When I cultured aspergillus for the first time last spring I read a lot on here about it and what it does to people. Search Aspergillus and ABPA. Generally it seems to be true that people do not attribute any symptoms to the aspergillus unless they have ABPA (Allergic Bronchopulmonary Aspergillosis). The medical community largely feels this way as well. When aspergillus is cultured a blood test to check igE levels is completed. Also some doctors do a chest Xray to check for fungal ball. I do not know much about fungal ball and I would discourage you from taking what you read on google too seriously because remember they are referring to this problem in the general public and like hemoptysis in the general population it is rare and a sign of ill health. For cf, things usually seem to have a less grave prognosis I find.

I do not have an elevated igE level so have not been diagnosed ABPA but will be monitored for it yearly for the rest of my life most likely. As I recall signs of ABPA are increased hemptysis, wheezing / bronchospasm and marked loss in FEV1. Do you have copies of your labs from your previous hospitalization? You may be able to find your igE level on there. Mine is around 83 I believe if I had ABPA I'd see an increase to something like 500. Again this isn't scientific this is what I remember. Check back on previous posts.

Stay positive and keep us posted.

By the way, I started L-Lysine for my hemoptysis and have seen some changes in the right direction dimishing my very small bleeds.
Thanks!
 

LouLou

New member
Diane, Isn't it great that we have this site to do research when we have these sort of new developments! This is what I knonw.

When I cultured aspergillus for the first time last spring I read a lot on here about it and what it does to people. Search Aspergillus and ABPA. Generally it seems to be true that people do not attribute any symptoms to the aspergillus unless they have ABPA (Allergic Bronchopulmonary Aspergillosis). The medical community largely feels this way as well. When aspergillus is cultured a blood test to check igE levels is completed. Also some doctors do a chest Xray to check for fungal ball. I do not know much about fungal ball and I would discourage you from taking what you read on google too seriously because remember they are referring to this problem in the general public and like hemoptysis in the general population it is rare and a sign of ill health. For cf, things usually seem to have a less grave prognosis I find.

I do not have an elevated igE level so have not been diagnosed ABPA but will be monitored for it yearly for the rest of my life most likely. As I recall signs of ABPA are increased hemptysis, wheezing / bronchospasm and marked loss in FEV1. Do you have copies of your labs from your previous hospitalization? You may be able to find your igE level on there. Mine is around 83 I believe if I had ABPA I'd see an increase to something like 500. Again this isn't scientific this is what I remember. Check back on previous posts.

Stay positive and keep us posted.

By the way, I started L-Lysine for my hemoptysis and have seen some changes in the right direction dimishing my very small bleeds.
Thanks!
 

LouLou

New member
Diane, Isn't it great that we have this site to do research when we have these sort of new developments! This is what I knonw.

When I cultured aspergillus for the first time last spring I read a lot on here about it and what it does to people. Search Aspergillus and ABPA. Generally it seems to be true that people do not attribute any symptoms to the aspergillus unless they have ABPA (Allergic Bronchopulmonary Aspergillosis). The medical community largely feels this way as well. When aspergillus is cultured a blood test to check igE levels is completed. Also some doctors do a chest Xray to check for fungal ball. I do not know much about fungal ball and I would discourage you from taking what you read on google too seriously because remember they are referring to this problem in the general public and like hemoptysis in the general population it is rare and a sign of ill health. For cf, things usually seem to have a less grave prognosis I find.

I do not have an elevated igE level so have not been diagnosed ABPA but will be monitored for it yearly for the rest of my life most likely. As I recall signs of ABPA are increased hemptysis, wheezing / bronchospasm and marked loss in FEV1. Do you have copies of your labs from your previous hospitalization? You may be able to find your igE level on there. Mine is around 83 I believe if I had ABPA I'd see an increase to something like 500. Again this isn't scientific this is what I remember. Check back on previous posts.

Stay positive and keep us posted.

By the way, I started L-Lysine for my hemoptysis and have seen some changes in the right direction dimishing my very small bleeds.
Thanks!
 

sue35

New member
Yep your IgE levels would be around 500. I think mine are 650 and that is not surprising for someone with ABPA. I know when I am getting a flare up of it, because I am extremely short of breath and feel like someone is sitting on my chest all the time. They bump up my predinosone and usually I start feeling a lot better. Are you on predinosone? Sometimes (like this time) I get put on IVs.
 

sue35

New member
Yep your IgE levels would be around 500. I think mine are 650 and that is not surprising for someone with ABPA. I know when I am getting a flare up of it, because I am extremely short of breath and feel like someone is sitting on my chest all the time. They bump up my predinosone and usually I start feeling a lot better. Are you on predinosone? Sometimes (like this time) I get put on IVs.
 

sue35

New member
Yep your IgE levels would be around 500. I think mine are 650 and that is not surprising for someone with ABPA. I know when I am getting a flare up of it, because I am extremely short of breath and feel like someone is sitting on my chest all the time. They bump up my predinosone and usually I start feeling a lot better. Are you on predinosone? Sometimes (like this time) I get put on IVs.
 

Diane

New member
Thanks for the info. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess next time i talk to my nurse i'll ask her if they checked my blood for that level you both mentioned.
 

Diane

New member
Thanks for the info. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess next time i talk to my nurse i'll ask her if they checked my blood for that level you both mentioned.
 

Diane

New member
Thanks for the info. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess next time i talk to my nurse i'll ask her if they checked my blood for that level you both mentioned.
 

lightNlife

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/10/fungus-among-us.html">Fungus Amoung Us</a>
 

lightNlife

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/10/fungus-among-us.html">Fungus Amoung Us</a>
 

lightNlife

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/2006/10/fungus-among-us.html">Fungus Amoung Us</a>
 

Diane

New member
Thank you for the link, after reading it i now have one more question....Is this something that wont go away even after treatment?
 

Diane

New member
Thank you for the link, after reading it i now have one more question....Is this something that wont go away even after treatment?
 

Diane

New member
Thank you for the link, after reading it i now have one more question....Is this something that wont go away even after treatment?
 
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