I would not know what to do without Graycies tube. I was scared to put her under the knife once again. But that was 6 or so months ago and its normal. All yucky meds go in and we never have to force them. Also, if she is having a bad day eating we don't stress and bolus some pediasure. We were at the dr yesterday and they said if she keeps doing great eating and gaining then we are on our way getting rid of her tube. I said oh no you don't!!! I like it. Lets wait. Everyone thinks graycie looks "normal" to be so sick. I feel blessed she is looked at "normal" than making her feel out of place. Even when her shirt comes up and you see her mic-key. It don't bother me others look. It makes her special!