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gene testing

Skye

New member
OK, some of you adults out there may think this is a silly question; but, here goes. I have never had my gene type done and wonder if there is ANY value in it other than curiosity? My clinic asked me if I wanted to have it done for free. She brought all of the things in assuming I would be up for it. They have a new infant screeing process and are testing the machine out on confirmed CF cases. I don't want to have this done. I know myself and I would have to read everything about "my type". I will read every last detail and figure out every scenario and second guess every decision I ever made based on this new information. That is just my personality. Any time I ever see "my type" referred to, I will put myself in that person's shoes. I would not change anything I am doing with this new information and, from what I understand, mutations don't give much information because outcomes are still very unpredictable even within the same mutation. I really don't want to do it; but, part of me feels like I should take advantage of this free opportunity.
 

Skye

New member
OK, some of you adults out there may think this is a silly question; but, here goes. I have never had my gene type done and wonder if there is ANY value in it other than curiosity? My clinic asked me if I wanted to have it done for free. She brought all of the things in assuming I would be up for it. They have a new infant screeing process and are testing the machine out on confirmed CF cases. I don't want to have this done. I know myself and I would have to read everything about "my type". I will read every last detail and figure out every scenario and second guess every decision I ever made based on this new information. That is just my personality. Any time I ever see "my type" referred to, I will put myself in that person's shoes. I would not change anything I am doing with this new information and, from what I understand, mutations don't give much information because outcomes are still very unpredictable even within the same mutation. I really don't want to do it; but, part of me feels like I should take advantage of this free opportunity.
 

Skye

New member
OK, some of you adults out there may think this is a silly question; but, here goes. I have never had my gene type done and wonder if there is ANY value in it other than curiosity? My clinic asked me if I wanted to have it done for free. She brought all of the things in assuming I would be up for it. They have a new infant screeing process and are testing the machine out on confirmed CF cases. I don't want to have this done. I know myself and I would have to read everything about "my type". I will read every last detail and figure out every scenario and second guess every decision I ever made based on this new information. That is just my personality. Any time I ever see "my type" referred to, I will put myself in that person's shoes. I would not change anything I am doing with this new information and, from what I understand, mutations don't give much information because outcomes are still very unpredictable even within the same mutation. I really don't want to do it; but, part of me feels like I should take advantage of this free opportunity.
 

Skye

New member
OK, some of you adults out there may think this is a silly question; but, here goes. I have never had my gene type done and wonder if there is ANY value in it other than curiosity? My clinic asked me if I wanted to have it done for free. She brought all of the things in assuming I would be up for it. They have a new infant screeing process and are testing the machine out on confirmed CF cases. I don't want to have this done. I know myself and I would have to read everything about "my type". I will read every last detail and figure out every scenario and second guess every decision I ever made based on this new information. That is just my personality. Any time I ever see "my type" referred to, I will put myself in that person's shoes. I would not change anything I am doing with this new information and, from what I understand, mutations don't give much information because outcomes are still very unpredictable even within the same mutation. I really don't want to do it; but, part of me feels like I should take advantage of this free opportunity.
 

Skye

New member
OK, some of you adults out there may think this is a silly question; but, here goes. I have never had my gene type done and wonder if there is ANY value in it other than curiosity? My clinic asked me if I wanted to have it done for free. She brought all of the things in assuming I would be up for it. They have a new infant screeing process and are testing the machine out on confirmed CF cases. I don't want to have this done. I know myself and I would have to read everything about "my type". I will read every last detail and figure out every scenario and second guess every decision I ever made based on this new information. That is just my personality. Any time I ever see "my type" referred to, I will put myself in that person's shoes. I would not change anything I am doing with this new information and, from what I understand, mutations don't give much information because outcomes are still very unpredictable even within the same mutation. I really don't want to do it; but, part of me feels like I should take advantage of this free opportunity.
 

NoExcuses

New member
I think it could be useful in case a drug is developed that will help your mutation <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
I think it could be useful in case a drug is developed that will help your mutation <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
I think it could be useful in case a drug is developed that will help your mutation <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
I think it could be useful in case a drug is developed that will help your mutation <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
I think it could be useful in case a drug is developed that will help your mutation <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Diane

New member
I would do it just out of total curiosity. They had done mine years ago and i never even knew it, and one day out of the blue i asked for curiosity purposes, and they told me what my mutations were. I dont know much about one mutation or the other and to be honest knowing in my opinion doesnt matter much since the treatment will remain the same regardless, but at the time, there was a post on this board asking who had what and that prompted me to ask.
 

Diane

New member
I would do it just out of total curiosity. They had done mine years ago and i never even knew it, and one day out of the blue i asked for curiosity purposes, and they told me what my mutations were. I dont know much about one mutation or the other and to be honest knowing in my opinion doesnt matter much since the treatment will remain the same regardless, but at the time, there was a post on this board asking who had what and that prompted me to ask.
 

Diane

New member
I would do it just out of total curiosity. They had done mine years ago and i never even knew it, and one day out of the blue i asked for curiosity purposes, and they told me what my mutations were. I dont know much about one mutation or the other and to be honest knowing in my opinion doesnt matter much since the treatment will remain the same regardless, but at the time, there was a post on this board asking who had what and that prompted me to ask.
 

Diane

New member
I would do it just out of total curiosity. They had done mine years ago and i never even knew it, and one day out of the blue i asked for curiosity purposes, and they told me what my mutations were. I dont know much about one mutation or the other and to be honest knowing in my opinion doesnt matter much since the treatment will remain the same regardless, but at the time, there was a post on this board asking who had what and that prompted me to ask.
 

Diane

New member
I would do it just out of total curiosity. They had done mine years ago and i never even knew it, and one day out of the blue i asked for curiosity purposes, and they told me what my mutations were. I dont know much about one mutation or the other and to be honest knowing in my opinion doesnt matter much since the treatment will remain the same regardless, but at the time, there was a post on this board asking who had what and that prompted me to ask.
 

Alyssa

New member
If you really think you are going to drive yourself nuts by having the information then you know best and you shouldn't have it done.... but if it were me I'd want to know in a heartbeat! Plus... what if you have the x gene?.... you will greatly benefit from the new PTC124....could be very close to a cure for those folks with an X in their gene type......
 

Alyssa

New member
If you really think you are going to drive yourself nuts by having the information then you know best and you shouldn't have it done.... but if it were me I'd want to know in a heartbeat! Plus... what if you have the x gene?.... you will greatly benefit from the new PTC124....could be very close to a cure for those folks with an X in their gene type......
 

Alyssa

New member
If you really think you are going to drive yourself nuts by having the information then you know best and you shouldn't have it done.... but if it were me I'd want to know in a heartbeat! Plus... what if you have the x gene?.... you will greatly benefit from the new PTC124....could be very close to a cure for those folks with an X in their gene type......
 

Alyssa

New member
If you really think you are going to drive yourself nuts by having the information then you know best and you shouldn't have it done.... but if it were me I'd want to know in a heartbeat! Plus... what if you have the x gene?.... you will greatly benefit from the new PTC124....could be very close to a cure for those folks with an X in their gene type......
 

Alyssa

New member
If you really think you are going to drive yourself nuts by having the information then you know best and you shouldn't have it done.... but if it were me I'd want to know in a heartbeat! Plus... what if you have the x gene?.... you will greatly benefit from the new PTC124....could be very close to a cure for those folks with an X in their gene type......
 
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