What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Gettin' out today!

azdesertrat

New member
Yee-Haw! I'm getting out of the hospital today.
They've done tons of tests. Now they're thinking the cause of the fever is CMV. CMV is a virus I caught from my donor.
I had a flare-up once, back in '06. I was a sick puppy then, not so much this time. I guess it's pretty hard to diagnose this problem I'm having. I have tons of follow-up to do as an out patient. I have to see an infectious disease doctor & I have to see my GI for another colonoscopy.
Oh boy...
I guess I better quit bitchin' & just comply. I want to find out what's going on & fix it.
Being on the CF floor has been rather enlightening. I forgot how badly I used to cough. I sure feel for all those folks on this floor. I know exactly what they're going through, I used to be the same way.
Thank God I was so fortunate to have a transplant. I can't cough now; my cough reflex is no more.
When my chest was cut, the nerves that stimulate the cough reflex were severed. There is no repairing those nerves. Now, when I feel like I have something in my lungs, I have to 'huff cough' to get anything to come up.
I hope all is well with everybody.;)
 
Top