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getting a port

Bumblebee

New member
I guess i could be against ports after a nasty experience with one
but i'm still not - that goes to show just how amazing i think they
are.  First off, my veins are rubbish and i got my first one
even when i was only having iv's 1-2 a year but felt the benefit.
 I didn't mind the flushes every month for the convenience and
ease it gave me when on IV's.  No pain and no multiple
stabbings hehe.  However after 18months it got infected, which
i only found out an hour after it had been flushed and i collapsed
in a shop.  I think i basically went into shock as i was
shacking uncontrolably, freezing cold (but high temperature) and
throwing up.  Luckily the ambulence came quickly and they soon
started flushing me with vast amounts of fluid and AB's (on my now
forgotten veins so they weren't too bad).  I got that port
taken out.  Did i wait to get another after that experience?
ABSOLUTELY NOT! Which goes to show you just how amazing i think
they are.  MY port doesn't bleed so i still get bloods taken
from my arms but my veins are a lot better now they're not trying
to be accessed all the time.<br>
I have a small pass port now in my arm (just above the inside of
the elbow).  I had it put in under local anesthetic (and the
old one taken out under local) which was fine.  Felt weird,
but perfectly do-able and painless.  Not many people notice it
and i think they would notice it more if it was on my chest when
wearing strappy tops etc.  If they ask and you don't fancy
telling the truth funny things can be to say "it's a bottle
top i swollowed and got stuck" hehe or many other things i'm
sure you can come up with.  People will believe anything (for
a second at least but it breaks the ice)  <br>
Okay i think that's everything hehe.  To sum up LOVE IT LOVE
IT LOVE IT hehe<br>
That said i do have a friend who went down from needing 3-4 IV's a
year to less than 1 on average and so had theirs taken out and is
completely happy with that as to them it showed they were a lot
better.  Though they do dread IV's more now when they finally
do come around!<br>
xxxxx
 

kybert

New member
mine had to be redone.... 3 TIMES! and that was only within a couple of years. i regret having to HAVE them because i have had such bad luck, but i dont regret getting one put in because i dont really have any other choice. its not a hassle to flush at all and i cant see mine [yeah yeah everyone knows about that saga haha]. however, im not liking all the scars.
 

kybert

New member
mine had to be redone.... 3 TIMES! and that was only within a couple of years. i regret having to HAVE them because i have had such bad luck, but i dont regret getting one put in because i dont really have any other choice. its not a hassle to flush at all and i cant see mine [yeah yeah everyone knows about that saga haha]. however, im not liking all the scars.
 

kybert

New member
mine had to be redone.... 3 TIMES! and that was only within a couple of years. i regret having to HAVE them because i have had such bad luck, but i dont regret getting one put in because i dont really have any other choice. its not a hassle to flush at all and i cant see mine [yeah yeah everyone knows about that saga haha]. however, im not liking all the scars.
 

Allie

New member
Ry begged to have his port put in when he was only on IVs 2x a year tops. He wanted the ease and flexibilty of being able to shower, access himself, etc...He LOVED his.
 

Allie

New member
Ry begged to have his port put in when he was only on IVs 2x a year tops. He wanted the ease and flexibilty of being able to shower, access himself, etc...He LOVED his.
 

Allie

New member
Ry begged to have his port put in when he was only on IVs 2x a year tops. He wanted the ease and flexibilty of being able to shower, access himself, etc...He LOVED his.
 

anonymous

New member
i regretted my first one because the surgeon put it between my boobs. but the 2nd one has been fine.

I did think it was interesting though, after waking up from my second port surgery, my nurse said "OoHHHHH did it hurt? my sister had one and said it was more painful than her brain surgery!"

i've never had brain surgery ... but damn, i never thought a port surgery would hurt more than that!

maggie
19 w/cf
engaged as of july 2006
trying to adopt john na james
 

anonymous

New member
i regretted my first one because the surgeon put it between my boobs. but the 2nd one has been fine.

I did think it was interesting though, after waking up from my second port surgery, my nurse said "OoHHHHH did it hurt? my sister had one and said it was more painful than her brain surgery!"

i've never had brain surgery ... but damn, i never thought a port surgery would hurt more than that!

maggie
19 w/cf
engaged as of july 2006
trying to adopt john na james
 

anonymous

New member
i regretted my first one because the surgeon put it between my boobs. but the 2nd one has been fine.

I did think it was interesting though, after waking up from my second port surgery, my nurse said "OoHHHHH did it hurt? my sister had one and said it was more painful than her brain surgery!"

i've never had brain surgery ... but damn, i never thought a port surgery would hurt more than that!

maggie
19 w/cf
engaged as of july 2006
trying to adopt john na james
 

blindhearted

New member
i have had two ports. the first one got old and stopped working. I do not regret either one. It is nice to have when you are on IVs a lot like I was in High School. Since getting my new one, I have not been on IVs but it's nice to know its there if it is ever need it. Having it flushed every month isnt too annoying, just mark it on your calendar.
 

blindhearted

New member
i have had two ports. the first one got old and stopped working. I do not regret either one. It is nice to have when you are on IVs a lot like I was in High School. Since getting my new one, I have not been on IVs but it's nice to know its there if it is ever need it. Having it flushed every month isnt too annoying, just mark it on your calendar.
 

blindhearted

New member
i have had two ports. the first one got old and stopped working. I do not regret either one. It is nice to have when you are on IVs a lot like I was in High School. Since getting my new one, I have not been on IVs but it's nice to know its there if it is ever need it. Having it flushed every month isnt too annoying, just mark it on your calendar.
 

catboogie

New member
i totally agree about scars being cool <img src="i/expressions/face-icon-small-smile.gif" border="0">

would any of you mind posting pictures of your port??
 

catboogie

New member
i totally agree about scars being cool <img src="i/expressions/face-icon-small-smile.gif" border="0">

would any of you mind posting pictures of your port??
 

catboogie

New member
i totally agree about scars being cool <img src="i/expressions/face-icon-small-smile.gif" border="0">

would any of you mind posting pictures of your port??
 

anonymous

New member
Hi there, I asked similar questions a while back before getting mine too. Just to give you even more feedback and pictures, here are those links.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=9384&STARTPAGE=2&FTVAR_FORUMVIEWTMP=Linear
">http://forums.cysticfibrosis.c...R_FORUMVIEWTMP=Linear
</a>
Here is a bunch more feedback and pictures and stitches, etc!
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=9559&STARTPAGE=1&FTVAR_FORUMVIEWTMP=Linear
">http://forums.cysticfibrosis.c...R_FORUMVIEWTMP=Linear
</a>
Have fun -- <img src="i/expressions/face-icon-small-smile.gif" border="0">

kelly, MyNewfy
 
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