Getting Involved

[Zoey7206]

My husband and i would like to get involved with something that
supports cf. We also want zoey to be involved too.Maybe a walk or
something or a fundraiser? We live in Texas so if you know of
anything please let me know......Thanx  sarah

 

[Emily65Roses]

I was a poster child for the CFF when I was young, from the time I was 3ish until I was about 8 or 9. Went to all the fundraisers, cut ribbons and stuff, was in pictures, flyers, all sorts of neat crap.

 

[Jane]

Doing the GREAT STRIDES walk for CF in May is always a good way to feel like you are a part of the CF community. We started when Josh was diagnosed (2 months), so this was our 15th year! We have a team so family and friends can walk and raise money. I've met tons of other families in my area which is good for support.

 

[JazzysMom]

I guess it depends on what type of impact you want & how private you are about the whole issue. When I was dx my Mom did Penny Socials in our home town. It was a great money raiser considering the small town, but most importantly it got the word out about CF. We had our local paper run our pics & do an article etc. I have also done the Great Strides. My goal is not as much "cure" oriented as "awareness" both in the illness itself, but in the chance of being an unknowing carrier!

 

[IG]

There's the tower of america's climb held in san antonio every year, held by the CFF (pretty sure about that one anyway).
Plus numerous Great Strides events, I know there's also a golf event or two.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/Chapters/lonestar/
">http://www.cff.org/Chapters/lonestar/
</a>That's the one around san antonio

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/chapters_and_care_centers/index.cfm?state=TX
">http://www.cff.org/chapters_an...rs/index.cfm?state=TX
</a>

 

[anonymous]

I highly reccomend Burke's Tour done by PACFI

<a target=_blank class=ftalternatingbarlinklarge href="http://www.pacfi.org/
">http://www.pacfi.org/
</a>
I hosted Burke last summer and it was really neat. And the local paper did a story on Burke's tour, CF and me. So it was great for awareness. And since a lot of people bought bears, it raised money too!