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getting nervous

Kelli

New member
This is just me but....
I bleed for no reason at all. My dr's used to put me on IV's everytime I would bleed. They finally listened to me and came to the realization that blood does not equal infection in my body. I bleed because I'm a bleeder.

I hope you have the same situation and you're not dealing with illness all the time...although blood is frequently an indicator of something being 'wrong' in your chest. For me, I don't fit that category.

Either way....fell better!!!!

Kelli
 

Kelli

New member
This is just me but....
I bleed for no reason at all. My dr's used to put me on IV's everytime I would bleed. They finally listened to me and came to the realization that blood does not equal infection in my body. I bleed because I'm a bleeder.

I hope you have the same situation and you're not dealing with illness all the time...although blood is frequently an indicator of something being 'wrong' in your chest. For me, I don't fit that category.

Either way....fell better!!!!

Kelli
 

Kelli

New member
This is just me but....
I bleed for no reason at all. My dr's used to put me on IV's everytime I would bleed. They finally listened to me and came to the realization that blood does not equal infection in my body. I bleed because I'm a bleeder.

I hope you have the same situation and you're not dealing with illness all the time...although blood is frequently an indicator of something being 'wrong' in your chest. For me, I don't fit that category.

Either way....fell better!!!!

Kelli
 

Kelli

New member
This is just me but....
I bleed for no reason at all. My dr's used to put me on IV's everytime I would bleed. They finally listened to me and came to the realization that blood does not equal infection in my body. I bleed because I'm a bleeder.

I hope you have the same situation and you're not dealing with illness all the time...although blood is frequently an indicator of something being 'wrong' in your chest. For me, I don't fit that category.

Either way....fell better!!!!

Kelli
 

Kelli

New member
This is just me but....
<br />I bleed for no reason at all. My dr's used to put me on IV's everytime I would bleed. They finally listened to me and came to the realization that blood does not equal infection in my body. I bleed because I'm a bleeder.
<br />
<br />I hope you have the same situation and you're not dealing with illness all the time...although blood is frequently an indicator of something being 'wrong' in your chest. For me, I don't fit that category.
<br />
<br />Either way....fell better!!!!
<br />
<br />Kelli
 

Diane

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>uwrong1053</b></i>

The bleeds have decreased greatly so now I think i may be coughing up like a table spoon of blood but I have no clue about what bugs i culture and am just hoping i can shrink this fungus ball. How long did u have to take the VFEND for im on it now</end quote></div>
I am still on it and the Dr. says i probably will be on it for life to keep the fungus ball from growing.
I hoped to shrink it as well, but am hearing more and more that they usually do not shrink and just stay where they are especially if they are in a cavity in the lung which is where mine is.
I have read about one girl with cf who got hers to shrink so it isn't hopeless.
 

Diane

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>uwrong1053</b></i>

The bleeds have decreased greatly so now I think i may be coughing up like a table spoon of blood but I have no clue about what bugs i culture and am just hoping i can shrink this fungus ball. How long did u have to take the VFEND for im on it now</end quote></div>
I am still on it and the Dr. says i probably will be on it for life to keep the fungus ball from growing.
I hoped to shrink it as well, but am hearing more and more that they usually do not shrink and just stay where they are especially if they are in a cavity in the lung which is where mine is.
I have read about one girl with cf who got hers to shrink so it isn't hopeless.
 

Diane

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>uwrong1053</b></i>

The bleeds have decreased greatly so now I think i may be coughing up like a table spoon of blood but I have no clue about what bugs i culture and am just hoping i can shrink this fungus ball. How long did u have to take the VFEND for im on it now</end quote></div>
I am still on it and the Dr. says i probably will be on it for life to keep the fungus ball from growing.
I hoped to shrink it as well, but am hearing more and more that they usually do not shrink and just stay where they are especially if they are in a cavity in the lung which is where mine is.
I have read about one girl with cf who got hers to shrink so it isn't hopeless.
 

Diane

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>uwrong1053</b></i>

The bleeds have decreased greatly so now I think i may be coughing up like a table spoon of blood but I have no clue about what bugs i culture and am just hoping i can shrink this fungus ball. How long did u have to take the VFEND for im on it now</end quote>
I am still on it and the Dr. says i probably will be on it for life to keep the fungus ball from growing.
I hoped to shrink it as well, but am hearing more and more that they usually do not shrink and just stay where they are especially if they are in a cavity in the lung which is where mine is.
I have read about one girl with cf who got hers to shrink so it isn't hopeless.
 

Diane

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>uwrong1053</b></i>
<br />
<br />The bleeds have decreased greatly so now I think i may be coughing up like a table spoon of blood but I have no clue about what bugs i culture and am just hoping i can shrink this fungus ball. How long did u have to take the VFEND for im on it now</end quote>
<br /> I am still on it and the Dr. says i probably will be on it for life to keep the fungus ball from growing.
<br /> I hoped to shrink it as well, but am hearing more and more that they usually do not shrink and just stay where they are especially if they are in a cavity in the lung which is where mine is.
<br /> I have read about one girl with cf who got hers to shrink so it isn't hopeless.
<br />
<br />
 

beleache

New member
Just want to say im sorry that you are having such a hard time <img src="i/expressions/face-icon-small-sad.gif" border="0"> I hope the drs. get it all under control (as soon as they know about it) and that you are feeling better soon.. Please keep us posted <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Just want to say im sorry that you are having such a hard time <img src="i/expressions/face-icon-small-sad.gif" border="0"> I hope the drs. get it all under control (as soon as they know about it) and that you are feeling better soon.. Please keep us posted <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Just want to say im sorry that you are having such a hard time <img src="i/expressions/face-icon-small-sad.gif" border="0"> I hope the drs. get it all under control (as soon as they know about it) and that you are feeling better soon.. Please keep us posted <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Just want to say im sorry that you are having such a hard time <img src="i/expressions/face-icon-small-sad.gif" border="0"> I hope the drs. get it all under control (as soon as they know about it) and that you are feeling better soon.. Please keep us posted <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Just want to say im sorry that you are having such a hard time <img src="i/expressions/face-icon-small-sad.gif" border="0"> I hope the drs. get it all under control (as soon as they know about it) and that you are feeling better soon.. Please keep us posted <img src="i/expressions/heart.gif" border="0"> joni
 
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