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Cystic Fibrosis Forum (EXP)

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gluconutrients

miesl

New member
You've made only two posts to the forums, and you admit to not having CF.
<br />
<br />I call foul.
<br />
<br />You show up on our forum for no apparent reason other than to promote Melaleuca (which I find to be overpriced and not worth a hill of beans, but that's another issue entirely) and insult our intelligence with anti-chemical propaganda.
<br />
<br />Might I interest you in the perils of dihydrogen monoxide?
 

momofcfteen

New member
My 17 year old daughter has cf. We were recently looking into the Manatech products. I just read all the posts regarding this subject but don't see any recent updates. Of those who have taken manatech products has anyone who started them in 2005/2006 stayed with them? What are the lasting effects? Has anything changed regarding the CFF's position on manatech products?

My daughter's lung functions have dropped consistently (she's now at FEV1 = 45%), her weight is around 5% on the charts and we are really hoping for a miracle.

Thanks to anyone out there with some info.
 

momofcfteen

New member
My 17 year old daughter has cf. We were recently looking into the Manatech products. I just read all the posts regarding this subject but don't see any recent updates. Of those who have taken manatech products has anyone who started them in 2005/2006 stayed with them? What are the lasting effects? Has anything changed regarding the CFF's position on manatech products?

My daughter's lung functions have dropped consistently (she's now at FEV1 = 45%), her weight is around 5% on the charts and we are really hoping for a miracle.

Thanks to anyone out there with some info.
 

momofcfteen

New member
My 17 year old daughter has cf. We were recently looking into the Manatech products. I just read all the posts regarding this subject but don't see any recent updates. Of those who have taken manatech products has anyone who started them in 2005/2006 stayed with them? What are the lasting effects? Has anything changed regarding the CFF's position on manatech products?

My daughter's lung functions have dropped consistently (she's now at FEV1 = 45%), her weight is around 5% on the charts and we are really hoping for a miracle.

Thanks to anyone out there with some info.
 

momofcfteen

New member
My 17 year old daughter has cf. We were recently looking into the Manatech products. I just read all the posts regarding this subject but don't see any recent updates. Of those who have taken manatech products has anyone who started them in 2005/2006 stayed with them? What are the lasting effects? Has anything changed regarding the CFF's position on manatech products?

My daughter's lung functions have dropped consistently (she's now at FEV1 = 45%), her weight is around 5% on the charts and we are really hoping for a miracle.

Thanks to anyone out there with some info.
 

momofcfteen

New member
My 17 year old daughter has cf. We were recently looking into the Manatech products. I just read all the posts regarding this subject but don't see any recent updates. Of those who have taken manatech products has anyone who started them in 2005/2006 stayed with them? What are the lasting effects? Has anything changed regarding the CFF's position on manatech products?
<br />
<br />My daughter's lung functions have dropped consistently (she's now at FEV1 = 45%), her weight is around 5% on the charts and we are really hoping for a miracle.
<br />
<br />Thanks to anyone out there with some info.
 
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