Glutathione

[Diane]

Hi Ruth,
I started out on the dose of 1500 mg. ( with 500 mg. vit.C each dose) per day. The protocol for cf usage is

.......................................................................................................................................................................... " The dosing is 30mg of glutathione per 1 pound of body weight.Divide your daily dose up into 4 doses.Take them every 4 hours" ........................................................................................................................................


but i never went by the protocol. I just went by what the back of the bottle says. When i feel run down or congested, like i am getting a cold or something, i try to take 2000 mg per day. (1 - 500 mg. capsule every 3-4 hours.... with the vit.C). It really has been a big help to me......
How long have you had b.cepacia ?
~Diane 39 / cf / diabetes / b.cepacia

 

[anonymous]

Hi Diane,

Sorry for the delay and thanks for the advice on the gluthatione. I've had the cepacia since 2001 when I was 24 and it was after I picked it up that I was hospitalised for the first time. Before the cepacia I never did an iv now I do them about three times a year and am on them at the moment but hopefully finished up on thursday and am feeling a good bit better. I was on a nebulised wash called Taurolin for the cepacia for three months there but it didn't help much and tasted horrible so I have stopped taking it. I ordered the Gluthatione on line from iherb.com and it arrived today so I'm going to start it on Thursday when I finish the iv's, when you quoted 30mg per pound of weight - is that the total daily dose or is it that amount 3 times a day? I ask this cos I'm in Ireland and the Glutathione in the shops here is only in 50mg tablets therefore I would be spending a fortune to keep into it - it's actually cheaper to buy it online from America.

Ruth 27 cf/cepacia

 

[Diane]

HI Ruth,
The amount i quoted was totasl per day to be spaced out during the day. I used to take 1000mg 3 times per day to get close to the recommended total for my weight per day, but decided to try just 500 mg. 3 times per day and didnt really notice much difference. I sometimes take 500 mg 4 times per day when i feel like i am getting a cold, or feel like i am congested and it does seem to help. I am including the link to the page where i order my gsh from
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http://search.store.yahoo.com/cgi-bin/nsearch?follow-pro=1&vwcatalog=iherb&catalog=iherb&query=Glutathione

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......... it is the 4th product down the page........ looks like this.........

(T) Glutathione Reduced 500, Jarrow, 500 mg, 60 Caps $27.00
Label Information: " (T) Glutathione Reduced 500, Jarrow, 500 mg, 60 Caps & ... nbsp; • Dietary Supplement Reduced Glutathione is an ubiquitous antioxidant involved in many cellular ... vitamins E and C. By serving as a critical nucleophilic scavenger, glutathione blocks free radical damage to all types of tissues. Glutathione is the most abundant ...


~Diane 39 / cf / diabetes / b.cepacia

 

[anonymous]

Ruth

I have the same problem here in Canada, I can't seem to find 500 mg tablets here.

Dave 30 w/cf

 

[Diane]

Dave, Have you tried ordering from iherb?
They have 500 mg. and 250 mg capsules...............
~Diane 39 / cf / diabetes / b.cepacia

 

[anonymous]

I know iherb has the 500 mg tablets but they are not in Canada. I was hoping to find somebody in Canada that has it.

Dave 30 w/cf

 

[anonymous]

Dear Diane,
I am so happy to read your message. I have 2 kids w/ cf. My daughter is 20, my son 15. I recently heard about GSH and have been reading everything I could find about it, also looking to see if vitamin/herb companies we've used had glutathione, and I'm finding many do. so now I can't wait to get my kids started on it, but I keep freezing up about ordering...wondering how people are doing using only oral gsh; also is Theranatural's product so much better than Jarrow's or Source Natural? How much to start them on, etc.
You say you started w/ 500 mg right off? How many times/day are you taking it? Are you taking Vit C w/ it? NAC? Anything and everything you feel like sharing regarding how you're doing w/ it would be greatly appreciated. Neither of my kids has cepacia, thank goodness. My daughter has really bad sinuses though, staph, and aspergillus which she is allergic to, so asthma is a big problem for her. Both kids have pancreatic involvement. Mydaughter had psuedomonas a few years ago, which we treated w/ Olive Leaf extract, with great results. We got it from a company called Ameriden. Also Solaray is good. Both kids struggle primarily w/ staph. Hope to hear how it's going for you, soon. Thanks. Kathleen

 

[anonymous]

How old do you have to be to start this after talking to your dr????


Jen