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Going off to College

Liza

New member
Emm, I hope you check back here. Thanks so much for your reply in the Portable Nebs topic. I wonder how a CF'er manages college life. My daughter has been pretty healthy this year. Thank goodness as the last two years have been awful. She was sick and on IV antibiotics every three months it seemed. Her freshman year in HS was rough the second semester and she missed about a months worth of school by the time she finished her sophomore year but this last year has been a good one. Knock on wood, she's been off IV antibiotics for just short of a year now. I mentioned it this AM and she said, "thanks for the jinx Mom". She's working hard and thinking about college. As I mentioned before she'd like to go to college overseas, England to be exact. I'd settle for Arizona or CA. She does like the warmer areas. Yea, not gonna get that in England that's for sure. Right now we live in Nebraska but we are military and will be moving to Texas next year after she graduates. She does good, but I worry that she will get lax and not do her treatments right or her percussion. She doesn't tell many about her CF. Part of that I guess is our mobility, it's hard to get close in such a short time. She does want to live in a dorm and knows that she can request a private room with a private bath. I guess I worry if she will eat right, she's a picky eater. I don't know if all CF kids are picky or just mine. She doesn't eat fast food at all. Except Chic-fil-a, which they happen not to have here in NE. I know we have to let go and let her fly on her own, it's just a hard thing to do. We have managed this year to let go of her treatments. We only tell her about once maybe twice a week. But... her AM treatments are still done by her dad at 6AM. weekdays only though. He says next year he's gonna make her get up and do them herself. She says college will be easier because she won't schedule any early classes. I'm with her there, I didn't when I was in school. I never had a class before 9 or 10 am. We know let her go to clinic by herself and they just give us a call and let us know how it went, in case she leaves anything out that she didn't think was important. I'm glad to hear that your school has been so helpful, or willing to be helpful if you need it. What school do you go to? How is college life? Do you do more than one treatment a day? My daughter does an antibiotic neb with albuterol in the AM and PM plus her Pulmozyme in the PM. Do you lead a "normal" college life? How do you do PT? My daughter doesn't like the vest, although she has only tried it once while in the hospital back when she was a freshman. Do you have a job as well or just go to school? Well I can't think of anymore questions. Thanks for letting me ask.If there is anyone else out there than can give me some insite as to how your first year in college was and what we should/can expect I would greatly appreciate it. Anything that you wish your parents had done. Or parents, how you survived letting go. Liza
 

AbsintheSorrow

New member
I just thought I'd put in my own experiences. I still eat and don't have trouble with my weight. I always have, but I eat more than 12 people my age, so I'm doing okay. Every once and a while, I'll skip a med or what have you, but then I regret it, so I get into the habit. My freshman year, I lived in a dorm and had my own bathroom. It was perfect. I got to be around people, but still have the privacy of my own bathroom. I hate the Vest also, and I don't have a percussor or any of that nonsense. If I absolutely need some beating, I can go to the health center, or usually instead I go to the gym and do some cardio vascular nonsense and it gets me coughing up some pretty lovely stuff. I go to school at Northeastern University in Boston. I live in CT. So I'm only 2 hours from home and I come home a lot. But I'm doing pretty good on my own, I think. My mom is on this board a lot, you can ask her about it. I'm sure she misses me when I'm up there. LOL. Mwahahaha. Anyhow.. her name on the board is EmilysMom. lol. Hope I've helped, or just given you a perspective of some kind. Ta-ta.
 

EmilysMom

New member
It was easier for me to let Emily go because she wasn't going quite that far. Two hours away is not so bad and she comes home almost every other weekend. Her boyfriend, Mike, is here so she has a reason other than just her family to come home. LOL She goes to the health club on campus alot and when she exercises, she gets coughing pretty good and can usually produce some lovely junk. When she's home and feels lousy, she will ask for therapy when she feels she needs it. She is pretty good about not skipping her Pulmozyme because she knows if she does, she is usually miserable the next day. She avoids places where there is alot of smoke except when her favorite band is around. She would go into a pack of lit cigarettes to see AmyLee and Evanescense. Wouldn't you Em?She has done pretty well over the years and loves college life. A private dorm room and private bath was the perfect choice for her and right now, she is in a studio apartment with a kitchen which suits all of her needs (and ours) very well.Northeastern University in Boston has been overwhelmingly helpful to meet all of her needs right up to scheduling her classes close to each other and close to her apartment so she doesn't have to run all over campus.
 

AbsintheSorrow

New member
I would very much indeed go into a pack of lit cigarettes to see Amy Lee!!!!!!!! You know me too well. Amy Lee is my Goddess. Thank you. Have a nice day.
 

Liza

New member
Thank you guys so much for your responses! I so look forward to hearing from you again, and anyone else that can give me so advice. Liza
 
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