I received the following in an email from the CFF.org advocacy news. I thought others might be interested in this info -- If for some reason it is not ok to pass this along and/or post this I apologizes, please remove the post. Thanks
GRASSROOTS UPDATE
Goal: We Need 150 Caucus Members by 2008!
Currently, 103 U.S. Representatives are members of the Congressional Cystic Fibrosis Caucus. You can help us increase that number to 150 by making your voice heard!
Ask your Representative to support issues that matter to people with CF by joining the Caucus. Members of Congress must hear from you, their constituent, that people with CF need a voice in Washington, D.C.
Visit our Advocacy web page for a list of current Caucus members, tips on how to make your request, a sample letter, and to submit your request using our online system.
LEGISLATIVE UPDATE
Guaranteeing Quality Health Care for Kids with CF
When Congress reconvenes this month, the debate over the State Children's Health Insurance Program (SCHIP) will continue. If you have already written to your Members of Congress about how important health care coverage is for people with CF, THANK YOU!
The CF Foundation will continue to speak out on behalf of people with CF who must have access to quality care and innovative therapies to keep themselves alive and healthy.
See what a difference a letter to your elected official can make!
President Vetoes Major Bill to Boost Biomedical Research Funding
On Nov. 13, President Bush vetoed the annual spending bill that funds the National Institutes of Health (NIH) and other important health programs. NIH works in collaboration with the CF Foundation on research to find a cure or control for CF.
At issue is the cost of legislation. The bill proposed $29.9 billion for the NIH ($1 billion above last year's amount), while the President requests a $289 million cut in funding for the agency.
The House of Representatives failed in an attempt to override the President's veto, coming just two votes short. Negotiations on the bill are set to continue today, as Congress returns from Thanksgiving recess.
See how your Member of Congress voted!
MAKE AN IMPACT ON CF
GET INVOLVED
Register to be an Advocate for CF. Sign up to receive the Advocacy Newsletter and Advocacy Action Alerts.
SPEAK OUT
Take five minutes to make a difference today. Use the Advocacy Toolkit as a step-by-step guide to communicating with your elected officials.
INSPIRE ACTION
There is power in numbers - forward this to friends and family, and ask them to speak out about cystic fibrosis.
Thank you for your support!
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate
">http://www.cff.org/GetInvolved/Advocate
</a>
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The mission of the CF Foundation - a donor-supported, nonprofit organization - is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. To learn more about the Foundation, visit www.cff.org.
You are receiving this e-mail because you subscribed to a Foundation mailing list or received it from a subscriber. If you received this e-mail in error or no longer wish to receive updates, please click below to unsubscribe. Click here to subscribe to our mailing list or change your profile, or to read our privacy policy.
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GRASSROOTS UPDATE
Goal: We Need 150 Caucus Members by 2008!
Currently, 103 U.S. Representatives are members of the Congressional Cystic Fibrosis Caucus. You can help us increase that number to 150 by making your voice heard!
Ask your Representative to support issues that matter to people with CF by joining the Caucus. Members of Congress must hear from you, their constituent, that people with CF need a voice in Washington, D.C.
Visit our Advocacy web page for a list of current Caucus members, tips on how to make your request, a sample letter, and to submit your request using our online system.
LEGISLATIVE UPDATE
Guaranteeing Quality Health Care for Kids with CF
When Congress reconvenes this month, the debate over the State Children's Health Insurance Program (SCHIP) will continue. If you have already written to your Members of Congress about how important health care coverage is for people with CF, THANK YOU!
The CF Foundation will continue to speak out on behalf of people with CF who must have access to quality care and innovative therapies to keep themselves alive and healthy.
See what a difference a letter to your elected official can make!
President Vetoes Major Bill to Boost Biomedical Research Funding
On Nov. 13, President Bush vetoed the annual spending bill that funds the National Institutes of Health (NIH) and other important health programs. NIH works in collaboration with the CF Foundation on research to find a cure or control for CF.
At issue is the cost of legislation. The bill proposed $29.9 billion for the NIH ($1 billion above last year's amount), while the President requests a $289 million cut in funding for the agency.
The House of Representatives failed in an attempt to override the President's veto, coming just two votes short. Negotiations on the bill are set to continue today, as Congress returns from Thanksgiving recess.
See how your Member of Congress voted!
MAKE AN IMPACT ON CF
GET INVOLVED
Register to be an Advocate for CF. Sign up to receive the Advocacy Newsletter and Advocacy Action Alerts.
SPEAK OUT
Take five minutes to make a difference today. Use the Advocacy Toolkit as a step-by-step guide to communicating with your elected officials.
INSPIRE ACTION
There is power in numbers - forward this to friends and family, and ask them to speak out about cystic fibrosis.
Thank you for your support!
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
(800) FIGHT CF
E-mail: publicpolicy@cff.org
Web: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate
">http://www.cff.org/GetInvolved/Advocate
</a>
-------------------------
The mission of the CF Foundation - a donor-supported, nonprofit organization - is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. To learn more about the Foundation, visit www.cff.org.
You are receiving this e-mail because you subscribed to a Foundation mailing list or received it from a subscriber. If you received this e-mail in error or no longer wish to receive updates, please click below to unsubscribe. Click here to subscribe to our mailing list or change your profile, or to read our privacy policy.
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