Yes i have talked to my mom many times and told her how lucky i am to have what i have. My mom and i are very close and talk every day. I can just hear her disappointment when things aren't going in the right direction for me concerning cf, which is when i take the opportunity to remind her how well i am doing at 43 with cf. She has always been looking/waiting for a cure and i have told her a million times to forget that idea. A "cure" isnt a reasonable thing to believe will happen in my lifetime ( If it ever happens at all) I think the idea of a treatment <u>like insulin to a diabetic </u>is more feasible and probable. She always gets real quiet when i say that, but i dont want to let her have unrealistic expectations. My first Dr. who diagnosed me when i was 3 told my parents i would outgrow cf since i was so mild. I have no idea what he was thinking or why he would say such a thing, but for years my parents really believed it may be true since i didnt have any real signs of cf till i reached my 20's. What a shock when they finally found out that cf is progressive.....to be perfectly honest even i was in my own world of denial since i was doing so well.... till i got cepacia. Then the changes started happening and we all got a huge wake up call and crash course of cf. I dont feel as bad for me as i do for them. I know it hurts them and i dont want it to. I know parents worry no matter if their children are healthy or not, but i really dont want them to feel so bad about me.
As for my dad saying "I Love You" i think thats great because i know it isnt an easy thing for him to say so it means a lot to me, but i dont want him to worry about me, it just makes me feel bad.
As for my dad saying "I Love You" i think thats great because i know it isnt an easy thing for him to say so it means a lot to me, but i dont want him to worry about me, it just makes me feel bad.