Antonette~ have you had further testing for Daegan since his initial 90-mutation test? I would pursue getting that, as well as finding out the actual NUMBER result of the sweat test (not just 'normal') and if you aren't getting anywhere, taking him to a new CF center- there are a couple in PA you can choose from if the one you tried initially has not been working with you.
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<br />That many hospitalizations is worrisome and your son needs appropriate treatment no matter what is going on- but if it's cf, he needs cf-specific medications and and a start to airway clearance as soon as possible to prevent further damage to his respiratory system.
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<br />I wish the best in finding more answers for your little one. <img src="i/expressions/heart.gif" border="0">
<br />
<br />That many hospitalizations is worrisome and your son needs appropriate treatment no matter what is going on- but if it's cf, he needs cf-specific medications and and a start to airway clearance as soon as possible to prevent further damage to his respiratory system.
<br />
<br />I wish the best in finding more answers for your little one. <img src="i/expressions/heart.gif" border="0">