Happy Mothers Day !

[StillFighting]

Joni,

I would imagine that knowing as a child would have caused anxiety for your son as he was growing up. I am in fact doing as you suggested, as a need to know basis.

I am glad to see that others have the same feelings as myself. I know I should start those letters but I just can't seem to bring it to fruition.

I spoke about this in my presentation at the fundraiser. I must admit, that evening was very difficult for me. I had my closest friends supporting me that evening. When my presentation was over, I feel into their arms crying. They recioprocated. It was a very emotional evening.

I am a firm believer that everyone has the courage to speak about it in public, only when they are finally ready. After 7 years, I have finally made it to that point. I am now the spokesperson for CF for my local Association. I will continue to make presentations in an effort to raise funds. My next public appearance is in June.

Take care,

Ana

 

[StillFighting]

Joni,
<br />
<br />I would imagine that knowing as a child would have caused anxiety for your son as he was growing up. I am in fact doing as you suggested, as a need to know basis.
<br />
<br />I am glad to see that others have the same feelings as myself. I know I should start those letters but I just can't seem to bring it to fruition.
<br />
<br />I spoke about this in my presentation at the fundraiser. I must admit, that evening was very difficult for me. I had my closest friends supporting me that evening. When my presentation was over, I feel into their arms crying. They recioprocated. It was a very emotional evening.
<br />
<br />I am a firm believer that everyone has the courage to speak about it in public, only when they are finally ready. After 7 years, I have finally made it to that point. I am now the spokesperson for CF for my local Association. I will continue to make presentations in an effort to raise funds. My next public appearance is in June.
<br />
<br />Take care,
<br />
<br />Ana

 

[beleache]

Good for you & God Bless Ana,
 I give you so much credit & am grateful for one of my fellow Cysters being involved !  
As far as the kids go, I guess there are no handbooks on this so we fly by the seat of our pants & hope for the best..  
Talk to you soon  <img src="i/expressions/heart.gif" border="0">  joni

 

[beleache]

Good for you & God Bless Ana,
I give you so much credit & am grateful for one of my fellow Cysters being involved !
As far as the kids go, I guess there are no handbooks on this so we fly by the seat of our pants & hope for the best..
Talk to you soon <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

<p>Good for you & God Bless Ana,
<p>I give you so much credit & am grateful for one of my fellow Cysters being involved !
<p>As far as the kids go, I guess there are no handbooks on this so we fly by the seat of our pants & hope for the best..
<p>Talk to you soon <img src="i/expressions/heart.gif" border="0"> joni

 

[kiwilady]

Back on board again!
Ana I haven't seen the movie,  "'PS I love you'.  Will have to suss it out.  The letters sound like an excellent idea.
My son gave me a journal a few years ago,  I have made many entries, hopefully inspiring words to guide him through life.    Famous quotes and other words of what I consider wisdom.  <img src="i/expressions/face-icon-small-smile.gif" border="0"> 
I spoke to a friend who lost a work colleague to cancer recently, she mentioned spending time with her, helping her to make a special scrapbook for her family.  I will phone her over the weekend to see what kind of format she used. 
Cheers
Eileen.<img src="i/expressions/sun.gif" border="0">
 

 

[kiwilady]

Back on board again!
Ana I haven't seen the movie,"'PS I love you'. Will have to suss it out. The letters sound like an excellent idea.
My son gave me a journal a fewyears ago, I have made many entries, hopefully inspiring words to guide him through life. Famous quotes and other words of what I consider wisdom. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I spoke to a friend who lost a work colleague to cancerrecently, she mentioned spending time with her, helping her to make aspecial scrapbook for her family. I will phone her over the weekend to see what kind of format she used.
Cheers
Eileen.<img src="i/expressions/sun.gif" border="0">

 

[kiwilady]

<p>Back on board again!
<p>Ana I haven't seen the movie,"'PS I love you'. Will have to suss it out. The letters sound like an excellent idea.
<p>My son gave me a journal a fewyears ago, I have made many entries, hopefully inspiring words to guide him through life. Famous quotes and other words of what I consider wisdom. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<p>I spoke to a friend who lost a work colleague to cancerrecently, she mentioned spending time with her, helping her to make aspecial scrapbook for her family. I will phone her over the weekend to see what kind of format she used.
<p>Cheers
<p>Eileen.<img src="i/expressions/sun.gif" border="0">
<p>

 

[beleache]

Hi Eileen,  I would love to hear about the scrapbook ..  <img src="i/expressions/heart.gif" border="0">  joni

 

[beleache]

Hi Eileen, I would love to hear about the scrapbook .. <img src="i/expressions/heart.gif" border="0"> joni

 

[beleache]

<p>Hi Eileen, I would love to hear about the scrapbook .. <img src="i/expressions/heart.gif" border="0"> joni

 

[StillFighting]

Hi Eileen and Joni,

I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started.

When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow into adulthood. I wish I can deal with this issue a little better.

How did you clinic visit go, Eileen?

Just to bring you up to date, I work for an international accounting firm. I have started telling more people about my illness. I am trying to build momentum within the firm on a Canada wide basis so that we can be united in raising awareness and funds for CF.

However, every time I "come out", I feel overwhelmed, deflated and depressed for the day! The recipients of the news are stunned into silence. I dislike the feeling of being the elephant in the room. I am trying to understand the reasoning behind my feelings of feeling deflated. After all, I have already knowingly been living with this illness for 7 years. The only rationale I can think of is that I have been secretly hiding it for 7 years and now that I have chosen to reveal my illness, it is coming to forefront and invoking previously repressed feelings.

Any thoughts on the matter?

Ana

 

[StillFighting]

Hi Eileen and Joni,

I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started.

When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow into adulthood. I wish I can deal with this issue a little better.

How did you clinic visit go, Eileen?

Just to bring you up to date, I work for an international accounting firm. I have started telling more people about my illness. I am trying to build momentum within the firm on a Canada wide basis so that we can be united in raising awareness and funds for CF.

However, every time I "come out", I feel overwhelmed, deflated and depressed for the day! The recipients of the news are stunned into silence. I dislike the feeling of being the elephant in the room. I am trying to understand the reasoning behind my feelings of feeling deflated. After all, I have already knowingly been living with this illness for 7 years. The only rationale I can think of is that I have been secretly hiding it for 7 years and now that I have chosen to reveal my illness, it is coming to forefront and invoking previously repressed feelings.

Any thoughts on the matter?

Ana

 

[StillFighting]

Hi Eileen and Joni,
<br />
<br />I would love to hear about the scrapbook also. Maybe by hearing about it, it will give me that push and courage that I need to get started.
<br />
<br />When it comes to my daughter, I get overwhelmed thinking of the possibility that I may not see her grow into adulthood. I wish I can deal with this issue a little better.
<br />
<br />How did you clinic visit go, Eileen?
<br />
<br />Just to bring you up to date, I work for an international accounting firm. I have started telling more people about my illness. I am trying to build momentum within the firm on a Canada wide basis so that we can be united in raising awareness and funds for CF.
<br />
<br />However, every time I "come out", I feel overwhelmed, deflated and depressed for the day! The recipients of the news are stunned into silence. I dislike the feeling of being the elephant in the room. I am trying to understand the reasoning behind my feelings of feeling deflated. After all, I have already knowingly been living with this illness for 7 years. The only rationale I can think of is that I have been secretly hiding it for 7 years and now that I have chosen to reveal my illness, it is coming to forefront and invoking previously repressed feelings.
<br />
<br />Any thoughts on the matter?
<br />
<br />Ana