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Has anyone been pregnant with low FEV1?

Scarlett81

New member
Hey again-

Well I attribute my bouncing back to many things-firstly, (I gotta give the abbreviate version here...), but I had a lot of emotional trauma in my childhood, and in the past two years I started treating my depression. This has helped my physical cf so much, b/c like so many, when I was very deeply depressed I didn't care about chest pt, vitamins, what I ate. I just didn't care. So, number one, treating my mental health.


Number two, diet. I went to nutritionists, naturopathic doctors, accupuncturists...read all I could about diet and healthy foods, vitamin supplements, how they work on a cellular/chemical level, and educated myself on what I should be taking to get healthier. Mind you, none of this is a cure. But even if it helps me have less exacerbations, and a higher immune system it's worth it.
One of those supplements that I think helped alot was glutathione.


3, my overall schedule had to change. I'm a housewife, and while I have responsibilites and do alot of volunteer work-there were plenty of days where I'd stay up late cause I could, and sleep in cause I could. So I changed that-I go to bed early now, get up at 7:00 every day no matter what, do my AM PT immediately, and basically stay on a strict schedule.


It was my cf doc that helped with alot of this-she said I needed to 'test' myself to see if I could really take care of myself 100% good and stay on a schedule with restrictions-similar to if I had a baby. B/c a problem that she sees in mom's with cf-whether they give birth or adopt, is that the lifestyle change is too much and they slack on chest pt, and rest, and diet and they go downhill. So I'm just trying to be smart and make sure I can do this.

As far as adoption vs. pregnancy, as many mentioned and I'm just reiterating-there is NO easy way out!<img src="i/expressions/face-icon-small-smile.gif" border="0"> We just went through talking with our social worker and lawyer about this, and yes-this country and foreign country's can not discriminate against you for health reasons-it is illegal. But, the fact is they do. Which is usually why adoption cost so much. The only thing I will say-and I'm not singling anyone out by saying this-so don't anyone get mad!-but I've been seeing alot of negative talk about adoption, negative in the sense of the obstacles, and sure there are. But, it's so possible, and happens to people with 'disabilities' all the time! My cf center staff has helped dozens upon dozens of people to get children. You need to go to the right people-the right agency, get a social worker, get enough financial backing. I feel so bad for all of you dealing with the obstacles right now impeding you from getting your children-and I hope they come to you soon!!!! We all gotta stick together in this fight!
 

anonymous

New member
I had all three of my children with an FEV1 below 50%. I only had major problems with my last because I caught a major bug, which killed my lungs when I was about six months along. We had to be very careful what meds I took; I went on Oxygen and had IV treatments. My lungs were so tired and it was so hard to breath. I was miserable for the next three months because my lungs just weren't getting over the infection and having a baby pushing up against them didn't help. However, once the baby was born my lungs returned to normal within a month or two.

Katie
 

ladybug

New member
Christian,

GOOD for you!!! I can tell your positive attitude had A LOT to do with you getting better!!! You inspire me!

As far as the adoption stuff, I know it CAN be done, its just finding the right country and agency. If you do a search online, you can usually click on the country's requirments and will see that "normal life expectancy" is on MANY, if not all of them. They do have exceptions to these, however, you just have to find them. And, yes, I would think its illegal in the US to discriminate, but you must remember that other countries don't play by OUR rules, so they CAN make and enforce restrictions on who their babies go to. I know people with CF do adopt, however, so its not impossible, just a bit more difficult and may take a bit more time to do the research.

BEST OF LUCK TO YOU!!!! WITH YOUR ATTITUDE, I DON'T DOUBT YOU WILL BE A MOTHER WHENEVER YOU WANT TO BE!!!
<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Scarlett81

New member
aw, thanks ladybug-
I didn't think it was possible to bounce back so high with my pfts. But, it can be done. thanks for your encouraging comments.
 
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