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Has anyone ever been dx'ed with this

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princessjdc

New member
No I dont know what he would of said, what was wrong with Cheyenne? If anything maybe she was ok thats what my guess would be.
 
P

princessjdc

New member
No I dont know what he would of said, what was wrong with Cheyenne? If anything maybe she was ok thats what my guess would be.
 
P

princessjdc

New member
No I dont know what he would of said, what was wrong with Cheyenne? If anything maybe she was ok thats what my guess would be.
 
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NoExcuses

New member
Oh ya.... that's incredibly common to have englarged nasal terbinates if you have allergies.

Your nasal terbinates are the passage-ways from your nose to your sinuses. Often times they become swollen and air cannot flow into the sinuses. The result? Sinus pain, pressure, and bacteria grow.

The bacteria grow, drip into the lungs, and wam-o! You've got some problems.

A great way to reduce swelling of the nasal terbinates is twofold:

1. Sudafed. <b> NOT </b> Sudafed PE. Make sure the ingredient is pseudoephedrine
2. Intranasal corticosteroid such as Flonase, Nasonex, Rhinocort Aqua, or the best of the market (Lindsey will agree, right Lindsey?) <b> Nasacort AQ </b>


It's amazing how just a few quirts up the nose over 2 weeks can really reduce swelling. Sudafed is phenominal at that as well.

It sounds like your kid has allergies too. Take her to the allergy doc, get skin tested, get a HEPA air purifier for her bedroom and the location where she does treatments, get allergy encasings for her matress and pillow (if dust mites are one of her allergens) and get her on an anti-histamine (not claritin...that is the weakest drug out there and is comparable to placebo).

Good luck and keep us posted
 
N

NoExcuses

New member
Oh ya.... that's incredibly common to have englarged nasal terbinates if you have allergies.

Your nasal terbinates are the passage-ways from your nose to your sinuses. Often times they become swollen and air cannot flow into the sinuses. The result? Sinus pain, pressure, and bacteria grow.

The bacteria grow, drip into the lungs, and wam-o! You've got some problems.

A great way to reduce swelling of the nasal terbinates is twofold:

1. Sudafed. <b> NOT </b> Sudafed PE. Make sure the ingredient is pseudoephedrine
2. Intranasal corticosteroid such as Flonase, Nasonex, Rhinocort Aqua, or the best of the market (Lindsey will agree, right Lindsey?) <b> Nasacort AQ </b>


It's amazing how just a few quirts up the nose over 2 weeks can really reduce swelling. Sudafed is phenominal at that as well.

It sounds like your kid has allergies too. Take her to the allergy doc, get skin tested, get a HEPA air purifier for her bedroom and the location where she does treatments, get allergy encasings for her matress and pillow (if dust mites are one of her allergens) and get her on an anti-histamine (not claritin...that is the weakest drug out there and is comparable to placebo).

Good luck and keep us posted
 
N

NoExcuses

New member
Oh ya.... that's incredibly common to have englarged nasal terbinates if you have allergies.

Your nasal terbinates are the passage-ways from your nose to your sinuses. Often times they become swollen and air cannot flow into the sinuses. The result? Sinus pain, pressure, and bacteria grow.

The bacteria grow, drip into the lungs, and wam-o! You've got some problems.

A great way to reduce swelling of the nasal terbinates is twofold:

1. Sudafed. <b> NOT </b> Sudafed PE. Make sure the ingredient is pseudoephedrine
2. Intranasal corticosteroid such as Flonase, Nasonex, Rhinocort Aqua, or the best of the market (Lindsey will agree, right Lindsey?) <b> Nasacort AQ </b>


It's amazing how just a few quirts up the nose over 2 weeks can really reduce swelling. Sudafed is phenominal at that as well.

It sounds like your kid has allergies too. Take her to the allergy doc, get skin tested, get a HEPA air purifier for her bedroom and the location where she does treatments, get allergy encasings for her matress and pillow (if dust mites are one of her allergens) and get her on an anti-histamine (not claritin...that is the weakest drug out there and is comparable to placebo).

Good luck and keep us posted
 
C

coltsfan715

New member
I just wanted to add to what Amy said about the antihistamine .... it is possible that if you do get your daughter allergy tested that they will NOT put her on an antihistamine.

Antihistamines will dry you out and depending on your daughters CF and her secretions they may not want to dry her out anymore than need be. THAT is the exact reason that none of my docs want me on an antihistamine. I was given Singulair to take - to hopefully reduce any asthma issues that the allergies were causing, and my ENT just changed my nose spray from Flonase to Nasacort AQ. I will say the nose bleeds I was having with Flonase are gone - but I have had sinus headaches and sinus pain more often since starting the Nasacort. I don't know if that is just my allergies acting up or if it is the med not doing as much for me as the other.

I just wanted to add that about the antihistamine because - no offense Amy - but they are pushed on here ALOT for any allergy problem and they just aren't right for everyone. YES they may help with allergies, but as my doc put it - it can be counter productive to give an antihistamine to help with allergies in hopes of helping your lungs if the med is drying you out and making the already thick and sticky secretions our body produces even dryer and stickier to the point that they become too difficult to clear from our lungs.

AGAIN - an antihistamine may be great for your daughter ... BUT your doc may also not want to put her on one. It depends on your child.

As for me I take Claritin D as I need it (per doctors orders) - not everyday only on days that I have bad allergies - sneezing and headaches. It works perfectly for me and always relieves my symptoms.

Lindsey
 
C

coltsfan715

New member
I just wanted to add to what Amy said about the antihistamine .... it is possible that if you do get your daughter allergy tested that they will NOT put her on an antihistamine.

Antihistamines will dry you out and depending on your daughters CF and her secretions they may not want to dry her out anymore than need be. THAT is the exact reason that none of my docs want me on an antihistamine. I was given Singulair to take - to hopefully reduce any asthma issues that the allergies were causing, and my ENT just changed my nose spray from Flonase to Nasacort AQ. I will say the nose bleeds I was having with Flonase are gone - but I have had sinus headaches and sinus pain more often since starting the Nasacort. I don't know if that is just my allergies acting up or if it is the med not doing as much for me as the other.

I just wanted to add that about the antihistamine because - no offense Amy - but they are pushed on here ALOT for any allergy problem and they just aren't right for everyone. YES they may help with allergies, but as my doc put it - it can be counter productive to give an antihistamine to help with allergies in hopes of helping your lungs if the med is drying you out and making the already thick and sticky secretions our body produces even dryer and stickier to the point that they become too difficult to clear from our lungs.

AGAIN - an antihistamine may be great for your daughter ... BUT your doc may also not want to put her on one. It depends on your child.

As for me I take Claritin D as I need it (per doctors orders) - not everyday only on days that I have bad allergies - sneezing and headaches. It works perfectly for me and always relieves my symptoms.

Lindsey
 
C

coltsfan715

New member
I just wanted to add to what Amy said about the antihistamine .... it is possible that if you do get your daughter allergy tested that they will NOT put her on an antihistamine.

Antihistamines will dry you out and depending on your daughters CF and her secretions they may not want to dry her out anymore than need be. THAT is the exact reason that none of my docs want me on an antihistamine. I was given Singulair to take - to hopefully reduce any asthma issues that the allergies were causing, and my ENT just changed my nose spray from Flonase to Nasacort AQ. I will say the nose bleeds I was having with Flonase are gone - but I have had sinus headaches and sinus pain more often since starting the Nasacort. I don't know if that is just my allergies acting up or if it is the med not doing as much for me as the other.

I just wanted to add that about the antihistamine because - no offense Amy - but they are pushed on here ALOT for any allergy problem and they just aren't right for everyone. YES they may help with allergies, but as my doc put it - it can be counter productive to give an antihistamine to help with allergies in hopes of helping your lungs if the med is drying you out and making the already thick and sticky secretions our body produces even dryer and stickier to the point that they become too difficult to clear from our lungs.

AGAIN - an antihistamine may be great for your daughter ... BUT your doc may also not want to put her on one. It depends on your child.

As for me I take Claritin D as I need it (per doctors orders) - not everyday only on days that I have bad allergies - sneezing and headaches. It works perfectly for me and always relieves my symptoms.

Lindsey
 
N

NoExcuses

New member
Only certain anti-histamines have anti-cholinergic effects.

It's a common mis-perception by ENT's, allergists, IM's and GP's alike that all anti-histamines have anti-cholinergic effects and therefore they shy away from anti-histamines for CFers.

But the reality is, anti-cholinergic properties are not a class effect. I would strongly recommend that you educate yourself and make sure that your physician is up to date on the latest allergy information.

Anti-cholinergic effects are easy to test for in an anti-histamine, and fexofenadine and levoceterizine simply have no anti-cholinergic effects.

One thing you find out as a CFer - not all physicians are experts in all areas and you assume they would be.
 
N

NoExcuses

New member
Only certain anti-histamines have anti-cholinergic effects.

It's a common mis-perception by ENT's, allergists, IM's and GP's alike that all anti-histamines have anti-cholinergic effects and therefore they shy away from anti-histamines for CFers.

But the reality is, anti-cholinergic properties are not a class effect. I would strongly recommend that you educate yourself and make sure that your physician is up to date on the latest allergy information.

Anti-cholinergic effects are easy to test for in an anti-histamine, and fexofenadine and levoceterizine simply have no anti-cholinergic effects.

One thing you find out as a CFer - not all physicians are experts in all areas and you assume they would be.
 
N

NoExcuses

New member
Only certain anti-histamines have anti-cholinergic effects.

It's a common mis-perception by ENT's, allergists, IM's and GP's alike that all anti-histamines have anti-cholinergic effects and therefore they shy away from anti-histamines for CFers.

But the reality is, anti-cholinergic properties are not a class effect. I would strongly recommend that you educate yourself and make sure that your physician is up to date on the latest allergy information.

Anti-cholinergic effects are easy to test for in an anti-histamine, and fexofenadine and levoceterizine simply have no anti-cholinergic effects.

One thing you find out as a CFer - not all physicians are experts in all areas and you assume they would be.
 
N

NoExcuses

New member
I want to elaborate more on anti-cholinergic effects because I think that education is one of the most powerful means of controlling our disease.

Anti-cholinergic is defined as Inhibiting or blocking the physiological action of acetylcholine at a receptor site. Symptoms include urinary retention, dry mouth, rapid heart beat, etc.

Zyrtec PI states: " In vivo and ex vivo animal models have shown negligible anticholinergic and antiserotonergic activity. In clinical studies, however, dry mouth was more common with cetirizine than with placebo"

Allegra PI states: "In laboratory animals, no anticholinergic, alpha1-adrenergic or beta-adrenergic-receptor blocking effects were observed"

Benadryl PI states: "Diphenhydramine hydrochloride is an antihistamine with anticholinergic (drying) and sedative side effects."


Many physicians who were around or in med school when Benadryl was the only option for an anti-histamine, assume that newer anti-histamines still have anticholinergic effects. So they worry about CF patients.

Many don't realize that current prescription meds do not have such effects.
 
N

NoExcuses

New member
I want to elaborate more on anti-cholinergic effects because I think that education is one of the most powerful means of controlling our disease.

Anti-cholinergic is defined as Inhibiting or blocking the physiological action of acetylcholine at a receptor site. Symptoms include urinary retention, dry mouth, rapid heart beat, etc.

Zyrtec PI states: " In vivo and ex vivo animal models have shown negligible anticholinergic and antiserotonergic activity. In clinical studies, however, dry mouth was more common with cetirizine than with placebo"

Allegra PI states: "In laboratory animals, no anticholinergic, alpha1-adrenergic or beta-adrenergic-receptor blocking effects were observed"

Benadryl PI states: "Diphenhydramine hydrochloride is an antihistamine with anticholinergic (drying) and sedative side effects."


Many physicians who were around or in med school when Benadryl was the only option for an anti-histamine, assume that newer anti-histamines still have anticholinergic effects. So they worry about CF patients.

Many don't realize that current prescription meds do not have such effects.
 
N

NoExcuses

New member
I want to elaborate more on anti-cholinergic effects because I think that education is one of the most powerful means of controlling our disease.

Anti-cholinergic is defined as Inhibiting or blocking the physiological action of acetylcholine at a receptor site. Symptoms include urinary retention, dry mouth, rapid heart beat, etc.

Zyrtec PI states: " In vivo and ex vivo animal models have shown negligible anticholinergic and antiserotonergic activity. In clinical studies, however, dry mouth was more common with cetirizine than with placebo"

Allegra PI states: "In laboratory animals, no anticholinergic, alpha1-adrenergic or beta-adrenergic-receptor blocking effects were observed"

Benadryl PI states: "Diphenhydramine hydrochloride is an antihistamine with anticholinergic (drying) and sedative side effects."


Many physicians who were around or in med school when Benadryl was the only option for an anti-histamine, assume that newer anti-histamines still have anticholinergic effects. So they worry about CF patients.

Many don't realize that current prescription meds do not have such effects.
 
L

luke

Guest
Debbie,

Like most CF'ers I have had major sinus issues. Meds didn't work for me so I had a few turbinoplasties done when I was young(under 15)....I guess they just kept cutting more away each time. I am good now due to having a major sinus revision(actually I had it done twice). Anyway...just lettting you know that if meds don't work there are surgical options as a last resort


luke
 
L

luke

Guest
Debbie,

Like most CF'ers I have had major sinus issues. Meds didn't work for me so I had a few turbinoplasties done when I was young(under 15)....I guess they just kept cutting more away each time. I am good now due to having a major sinus revision(actually I had it done twice). Anyway...just lettting you know that if meds don't work there are surgical options as a last resort


luke
 
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