Have you ever had to "prove" you had CF?

[Jason]

Have you ever had to

Yes I have had to prove it, not tO DOC'S but to others with cf, because I am 198lbs of mscle and all the people on here said i was faking it. It sucks

 

[dbtoo]

Have you ever had to

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.

 

[dbtoo]

Have you ever had to

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.

 

[dbtoo]

Have you ever had to

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.

 

[JennifersHope]

Have you ever had to

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.</end quote></div>



I have had that happen to me as well.. I was sweat tested so many times....because ppl wanted to do it at their hospital..... and I always agreed to it because I always kept hoping that they were wrong... and that the other sweat tests were wrong..

Jennifer

 

[JennifersHope]

Have you ever had to

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.</end quote></div>



I have had that happen to me as well.. I was sweat tested so many times....because ppl wanted to do it at their hospital..... and I always agreed to it because I always kept hoping that they were wrong... and that the other sweat tests were wrong..

Jennifer

 

[JennifersHope]

Have you ever had to

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

Whenever I moved, the 'new' CF clinic insisted on sweat testing me again, they always thought I had been misdiagnosed, until the results came back.</end quote></div>



I have had that happen to me as well.. I was sweat tested so many times....because ppl wanted to do it at their hospital..... and I always agreed to it because I always kept hoping that they were wrong... and that the other sweat tests were wrong..

Jennifer

 

[julie61554]

Have you ever had to

When I was 19 I moved out of state. I started coughing up blood and my lung hurt so bad to breathe. My husband's (at that time) brother took me to the e.r. They asked me if I even knew what CF was. I had to literally tell them what cf was!

They kept asking me if I was sure I didn't fall, or hurt myself somehow. They finally did do an x-ray and found out that I had a hole in my lung the size of a quarter. They put me on antibiotics and I moved back to my home state, immediately. When I got back to Illinois my long time cf dr. put me in the hospital.

Because of that incident, to this day I am afraid to move away from Illinois. My husband and I have talked about it, but I think we would have to be in a very dire situation for me to leave.

Julie

 

[julie61554]

Have you ever had to

When I was 19 I moved out of state. I started coughing up blood and my lung hurt so bad to breathe. My husband's (at that time) brother took me to the e.r. They asked me if I even knew what CF was. I had to literally tell them what cf was!

They kept asking me if I was sure I didn't fall, or hurt myself somehow. They finally did do an x-ray and found out that I had a hole in my lung the size of a quarter. They put me on antibiotics and I moved back to my home state, immediately. When I got back to Illinois my long time cf dr. put me in the hospital.

Because of that incident, to this day I am afraid to move away from Illinois. My husband and I have talked about it, but I think we would have to be in a very dire situation for me to leave.

Julie

 

[julie61554]

Have you ever had to

When I was 19 I moved out of state. I started coughing up blood and my lung hurt so bad to breathe. My husband's (at that time) brother took me to the e.r. They asked me if I even knew what CF was. I had to literally tell them what cf was!

They kept asking me if I was sure I didn't fall, or hurt myself somehow. They finally did do an x-ray and found out that I had a hole in my lung the size of a quarter. They put me on antibiotics and I moved back to my home state, immediately. When I got back to Illinois my long time cf dr. put me in the hospital.

Because of that incident, to this day I am afraid to move away from Illinois. My husband and I have talked about it, but I think we would have to be in a very dire situation for me to leave.

Julie