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Cystic Fibrosis Forum (EXP)

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Hello everyone

kayleesgrandma

New member
Welcome <img src="i/expressions/face-icon-small-happy.gif" border="0"> You had better be strong of will, cause this place will suck you in and keep you coming back! Can't wait to hear your story.
 

donnadee

New member
Thank you for the welcome.  I have always been sick for most
of my life with pheumonia, bronchitis and numerous GI problems.
 I move to Knoxville from Florida last August.  In
December I got very sick and they found pseudomonis, so the MD
checked for CF and it was positive.  I was relieved at first
because I finally felt like I was not crazy, like alot of the
dostors would treat me.  But since then I have gone down hill,
I have been in hosptal 4x, just got  out last Monday and am
still on IV's.  My PFT's have declined alot also.  From
56%in December to 28% now.  I am pretty scared that it will
not go back up, but I'm trying to stay positive.  I'm glad to
have found a site like this.  I think it will help talking to
other people who know how I feel.<br>
<br>
Thank you, Donna
 

donnadee

New member
Thank you for the welcome.  I have always been sick for most
of my life with pheumonia, bronchitis and numerous GI problems.
 I move to Knoxville from Florida last August.  In
December I got very sick and they found pseudomonis, so the MD
checked for CF and it was positive.  I was relieved at first
because I finally felt like I was not crazy, like alot of the
dostors would treat me.  But since then I have gone down hill,
I have been in hosptal 4x, just got  out last Monday and am
still on IV's.  My PFT's have declined alot also.  From
56%in December to 28% now.  I am pretty scared that it will
not go back up, but I'm trying to stay positive.  I'm glad to
have found a site like this.  I think it will help talking to
other people who know how I feel.<br>
<br>
Thank you, Donna
 

donnadee

New member
Thank you for the welcome.  I have always been sick for most
of my life with pheumonia, bronchitis and numerous GI problems.
 I move to Knoxville from Florida last August.  In
December I got very sick and they found pseudomonis, so the MD
checked for CF and it was positive.  I was relieved at first
because I finally felt like I was not crazy, like alot of the
dostors would treat me.  But since then I have gone down hill,
I have been in hosptal 4x, just got  out last Monday and am
still on IV's.  My PFT's have declined alot also.  From
56%in December to 28% now.  I am pretty scared that it will
not go back up, but I'm trying to stay positive.  I'm glad to
have found a site like this.  I think it will help talking to
other people who know how I feel.<br>
<br>
Thank you, Donna
 

HairGirl

New member
Welcome Donna<img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry to hear you've been in the hospital so much this year, I have pft's in the twenty's right now too. This site is very supportive and can help you! Let's both get our pft's up!!!!!!
 

HairGirl

New member
Welcome Donna<img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry to hear you've been in the hospital so much this year, I have pft's in the twenty's right now too. This site is very supportive and can help you! Let's both get our pft's up!!!!!!
 

HairGirl

New member
Welcome Donna<img src="i/expressions/face-icon-small-smile.gif" border="0"> Sorry to hear you've been in the hospital so much this year, I have pft's in the twenty's right now too. This site is very supportive and can help you! Let's both get our pft's up!!!!!!
 

Jem

New member
Welcome Donna! You will learn a lot from the many experiences shared here and I bet your PFT's will improve with trying something that has helped someone else. For me Hypertonic Saline has been something that I have recently began, 4 months ago, and it has helped my Fev 1 to go up and I know it has helped others. Good luck to you and I will be looking for your posts! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Jem

New member
Welcome Donna! You will learn a lot from the many experiences shared here and I bet your PFT's will improve with trying something that has helped someone else. For me Hypertonic Saline has been something that I have recently began, 4 months ago, and it has helped my Fev 1 to go up and I know it has helped others. Good luck to you and I will be looking for your posts! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Jem

New member
Welcome Donna! You will learn a lot from the many experiences shared here and I bet your PFT's will improve with trying something that has helped someone else. For me Hypertonic Saline has been something that I have recently began, 4 months ago, and it has helped my Fev 1 to go up and I know it has helped others. Good luck to you and I will be looking for your posts! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

coltsfan715

New member
Donna,

Where in Florida did you move from? I live in Florida also - just have family in TN.

I hate that you haven't been doing well this past year. I will say from my experiences with CF it seems to come in waves at times. You will be relatively healthy then you can hit a bad run of months and just be sick time after time. I am currently going through that now as well. I understand it can be very frustrating.

I hope you are feeling better on IVs this time around though.

Take Care,
Lindsey
 

coltsfan715

New member
Donna,

Where in Florida did you move from? I live in Florida also - just have family in TN.

I hate that you haven't been doing well this past year. I will say from my experiences with CF it seems to come in waves at times. You will be relatively healthy then you can hit a bad run of months and just be sick time after time. I am currently going through that now as well. I understand it can be very frustrating.

I hope you are feeling better on IVs this time around though.

Take Care,
Lindsey
 

coltsfan715

New member
Donna,

Where in Florida did you move from? I live in Florida also - just have family in TN.

I hate that you haven't been doing well this past year. I will say from my experiences with CF it seems to come in waves at times. You will be relatively healthy then you can hit a bad run of months and just be sick time after time. I am currently going through that now as well. I understand it can be very frustrating.

I hope you are feeling better on IVs this time around though.

Take Care,
Lindsey
 
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