I am not here to lecture, but I am requesting something of ALL our members.
We have thousands of people come to this site. Many of whom dont post, but are fortunate to receive the information, knowledge & wisdom that the forum and the members offer.
Jeanne & the CF.Com team have really taken this site under their wings. They not only want us to have the great technology, but close to Jeanne's heart is us having access to any & all accurate information regarding treatments, meds etc.
This is what sends her to the CFRI Conference & the North American CF Conference. She could run the site from her desk just as easily, but it wouldnt be the vision that she has.
Part of her vision was to interview, video tape & share the interviews with the doctors from the CFRI Conference.
These videos are not only informational to us with what is in the works & in the great minds of some of the most devoted medical personnel in the CF field. The number of views of these videos is also a tool for Jeanne.
A tool that helps Jeanne show how interested our members are in learning, getting information & craving the interaction from those involved in our fight.
Anyone from pharmaceutical companies to physicians dont want to waste their time or investment into something that "appears" that the community is only interested in interacting with themselves.
Each video is only a few minutes long. I want to thank those who have viewed & commented, those who have viewed and not commented and those who I hope will take the time each day to watch one.
You will not know if its of interest to you unless you watch so please as a member of this fantastic forum, please take a peak!
THANK YOU FROM THE BOTTOM OF MY HEART~~~
We have thousands of people come to this site. Many of whom dont post, but are fortunate to receive the information, knowledge & wisdom that the forum and the members offer.
Jeanne & the CF.Com team have really taken this site under their wings. They not only want us to have the great technology, but close to Jeanne's heart is us having access to any & all accurate information regarding treatments, meds etc.
This is what sends her to the CFRI Conference & the North American CF Conference. She could run the site from her desk just as easily, but it wouldnt be the vision that she has.
Part of her vision was to interview, video tape & share the interviews with the doctors from the CFRI Conference.
These videos are not only informational to us with what is in the works & in the great minds of some of the most devoted medical personnel in the CF field. The number of views of these videos is also a tool for Jeanne.
A tool that helps Jeanne show how interested our members are in learning, getting information & craving the interaction from those involved in our fight.
Anyone from pharmaceutical companies to physicians dont want to waste their time or investment into something that "appears" that the community is only interested in interacting with themselves.
Each video is only a few minutes long. I want to thank those who have viewed & commented, those who have viewed and not commented and those who I hope will take the time each day to watch one.
You will not know if its of interest to you unless you watch so please as a member of this fantastic forum, please take a peak!
THANK YOU FROM THE BOTTOM OF MY HEART~~~