Herbs and Therapies

Nightwriter · Jan 15, 2009

When I first started going to this doctor, my prior doctors thought everything I was doing was stupid. There was a point when I was making the transition from my old doctor (a supposed top doctor at a major medical center)to my new Dr. He knew her personally and said she was "sweet." He said he knew everything that she did and refused to work with her. He even thought the meds she put me on were unnecessary. I asked him why he never did a CT scan of my sinus's which were 100% blocked on one side. He admitted he missed on that. I asked him why he didn't test me for allergies. He said he COULD of done that if that's what I wanted. Huh??

So I stopped telling him about what I was doing. After not seeing him for a year, I went back to him. There were already big improvements happening. When he last saw me, I was in a fast declining state. He told me, "Well, that's the nature of the disease." Anyway, he listened to my chest and shocked said, "Hm, clears as a bell." He said he didn't hear the crackles that were always there. He went back to his notes to make sure. And while he was impressed with all the changess --of course, he wouldn't give my new doctor any credit. That was the last time I saw him.

When I had to leave my great doctor for 2 years due to insurance changes. I found another doctor also raised an eyebrow at everything. He refused to believe anything I said and although my chest was always clear, he didn't know what it sounded like before. When I was sick, he wanted to give me Tobi, when I told him that I was sure it was inflammation dues to a trigger that I was aware of --and that I usually got a cortisone shot. He gabe me that same look that you are talking about. I had to ask for a culture and a blood test. I quickly saw again what the old system was like and was hoping that I would be able to someday, go back to my great doctor, and thankfully I have been able to.

So I know how frustrating this medical system is. When doctors begin to look at people holistically, offer lifestyle changes and realize how to avail themselves of the meds that are available other than throwing antibiotics at everything, plus using other tools outside conventional medicine (there are credible studies available on some supplements), you will see the survival rate for CF increase dramatically.

Nightwriter · Jan 15, 2009

When I first started going to this doctor, my prior doctors thought everything I was doing was stupid. There was a point when I was making the transition from my old doctor (a supposed top doctor at a major medical center)to my new Dr. He knew her personally and said she was "sweet." He said he knew everything that she did and refused to work with her. He even thought the meds she put me on were unnecessary. I asked him why he never did a CT scan of my sinus's which were 100% blocked on one side. He admitted he missed on that. I asked him why he didn't test me for allergies. He said he COULD of done that if that's what I wanted. Huh??

So I stopped telling him about what I was doing. After not seeing him for a year, I went back to him. There were already big improvements happening. When he last saw me, I was in a fast declining state. He told me, "Well, that's the nature of the disease." Anyway, he listened to my chest and shocked said, "Hm, clears as a bell." He said he didn't hear the crackles that were always there. He went back to his notes to make sure. And while he was impressed with all the changess --of course, he wouldn't give my new doctor any credit. That was the last time I saw him.

When I had to leave my great doctor for 2 years due to insurance changes. I found another doctor also raised an eyebrow at everything. He refused to believe anything I said and although my chest was always clear, he didn't know what it sounded like before. When I was sick, he wanted to give me Tobi, when I told him that I was sure it was inflammation dues to a trigger that I was aware of --and that I usually got a cortisone shot. He gabe me that same look that you are talking about. I had to ask for a culture and a blood test. I quickly saw again what the old system was like and was hoping that I would be able to someday, go back to my great doctor, and thankfully I have been able to.

So I know how frustrating this medical system is. When doctors begin to look at people holistically, offer lifestyle changes and realize how to avail themselves of the meds that are available other than throwing antibiotics at everything, plus using other tools outside conventional medicine (there are credible studies available on some supplements), you will see the survival rate for CF increase dramatically.

Nightwriter · Jan 15, 2009

When I first started going to this doctor, my prior doctors thought everything I was doing was stupid. There was a point when I was making the transition from my old doctor (a supposed top doctor at a major medical center)to my new Dr. He knew her personally and said she was "sweet." He said he knew everything that she did and refused to work with her. He even thought the meds she put me on were unnecessary. I asked him why he never did a CT scan of my sinus's which were 100% blocked on one side. He admitted he missed on that. I asked him why he didn't test me for allergies. He said he COULD of done that if that's what I wanted. Huh??

So I stopped telling him about what I was doing. After not seeing him for a year, I went back to him. There were already big improvements happening. When he last saw me, I was in a fast declining state. He told me, "Well, that's the nature of the disease." Anyway, he listened to my chest and shocked said, "Hm, clears as a bell." He said he didn't hear the crackles that were always there. He went back to his notes to make sure. And while he was impressed with all the changess --of course, he wouldn't give my new doctor any credit. That was the last time I saw him.

When I had to leave my great doctor for 2 years due to insurance changes. I found another doctor also raised an eyebrow at everything. He refused to believe anything I said and although my chest was always clear, he didn't know what it sounded like before. When I was sick, he wanted to give me Tobi, when I told him that I was sure it was inflammation dues to a trigger that I was aware of --and that I usually got a cortisone shot. He gabe me that same look that you are talking about. I had to ask for a culture and a blood test. I quickly saw again what the old system was like and was hoping that I would be able to someday, go back to my great doctor, and thankfully I have been able to.

So I know how frustrating this medical system is. When doctors begin to look at people holistically, offer lifestyle changes and realize how to avail themselves of the meds that are available other than throwing antibiotics at everything, plus using other tools outside conventional medicine (there are credible studies available on some supplements), you will see the survival rate for CF increase dramatically.

Nightwriter · Jan 15, 2009

When I first started going to this doctor, my prior doctors thought everything I was doing was stupid. There was a point when I was making the transition from my old doctor (a supposed top doctor at a major medical center)to my new Dr. He knew her personally and said she was "sweet." He said he knew everything that she did and refused to work with her. He even thought the meds she put me on were unnecessary. I asked him why he never did a CT scan of my sinus's which were 100% blocked on one side. He admitted he missed on that. I asked him why he didn't test me for allergies. He said he COULD of done that if that's what I wanted. Huh??

So I stopped telling him about what I was doing. After not seeing him for a year, I went back to him. There were already big improvements happening. When he last saw me, I was in a fast declining state. He told me, "Well, that's the nature of the disease." Anyway, he listened to my chest and shocked said, "Hm, clears as a bell." He said he didn't hear the crackles that were always there. He went back to his notes to make sure. And while he was impressed with all the changess --of course, he wouldn't give my new doctor any credit. That was the last time I saw him.

When I had to leave my great doctor for 2 years due to insurance changes. I found another doctor also raised an eyebrow at everything. He refused to believe anything I said and although my chest was always clear, he didn't know what it sounded like before. When I was sick, he wanted to give me Tobi, when I told him that I was sure it was inflammation dues to a trigger that I was aware of --and that I usually got a cortisone shot. He gabe me that same look that you are talking about. I had to ask for a culture and a blood test. I quickly saw again what the old system was like and was hoping that I would be able to someday, go back to my great doctor, and thankfully I have been able to.

So I know how frustrating this medical system is. When doctors begin to look at people holistically, offer lifestyle changes and realize how to avail themselves of the meds that are available other than throwing antibiotics at everything, plus using other tools outside conventional medicine (there are credible studies available on some supplements), you will see the survival rate for CF increase dramatically.

Nightwriter · Jan 15, 2009

When I first started going to this doctor, my prior doctors thought everything I was doing was stupid. There was a point when I was making the transition from my old doctor (a supposed top doctor at a major medical center)to my new Dr. He knew her personally and said she was "sweet." He said he knew everything that she did and refused to work with her. He even thought the meds she put me on were unnecessary. I asked him why he never did a CT scan of my sinus's which were 100% blocked on one side. He admitted he missed on that. I asked him why he didn't test me for allergies. He said he COULD of done that if that's what I wanted. Huh??
 
 So I stopped telling him about what I was doing. After not seeing him for a year, I went back to him. There were already big improvements happening. When he last saw me, I was in a fast declining state. He told me, "Well, that's the nature of the disease." Anyway, he listened to my chest and shocked said, "Hm, clears as a bell." He said he didn't hear the crackles that were always there. He went back to his notes to make sure. And while he was impressed with all the changess --of course, he wouldn't give my new doctor any credit. That was the last time I saw him.
 
 When I had to leave my great doctor for 2 years due to insurance changes. I found another doctor also raised an eyebrow at everything. He refused to believe anything I said and although my chest was always clear, he didn't know what it sounded like before. When I was sick, he wanted to give me Tobi, when I told him that I was sure it was inflammation dues to a trigger that I was aware of --and that I usually got a cortisone shot. He gabe me that same look that you are talking about. I had to ask for a culture and a blood test. I quickly saw again what the old system was like and was hoping that I would be able to someday, go back to my great doctor, and thankfully I have been able to.
 
 So I know how frustrating this medical system is. When doctors begin to look at people holistically, offer lifestyle changes and realize how to avail themselves of the meds that are available other than throwing antibiotics at everything, plus using other tools outside conventional medicine (there are credible studies available on some supplements), you will see the survival rate for CF increase dramatically.

Nightwriter · Jan 15, 2009

I didn't see that you asked me if my lung function went up with GHS. I use NAC which is a pre-cursor to GHS. I chose this over GHS because I read that it is more readily available to the body and I saw that the Cystic Fibrosis Foundation chose to test NAC. Other people swear by GHS.

After the exposures to the fires, my lung functon really dropped. When I added in the Tumeric, NAC, and the HS, my FEV1 went back up plus a little higher. So I can't say for sure which of the things made my FEV1 improve. My guess it's everything I do together. Are you hesitant in trying NAC or GHS? Would your doctor say NOT to do it? I would print out the CFF page showing that it is being tested and show it to him. I would say that I want to try everything which is reasonable and medically safe.

I assure you, if the results of the studies for Tumeric and NAC are good, you will hear on the news all about the "new treatments" for CF which have been known for a long time and studied.

Nightwriter · Jan 15, 2009

I didn't see that you asked me if my lung function went up with GHS. I use NAC which is a pre-cursor to GHS. I chose this over GHS because I read that it is more readily available to the body and I saw that the Cystic Fibrosis Foundation chose to test NAC. Other people swear by GHS.

After the exposures to the fires, my lung functon really dropped. When I added in the Tumeric, NAC, and the HS, my FEV1 went back up plus a little higher. So I can't say for sure which of the things made my FEV1 improve. My guess it's everything I do together. Are you hesitant in trying NAC or GHS? Would your doctor say NOT to do it? I would print out the CFF page showing that it is being tested and show it to him. I would say that I want to try everything which is reasonable and medically safe.

I assure you, if the results of the studies for Tumeric and NAC are good, you will hear on the news all about the "new treatments" for CF which have been known for a long time and studied.

Nightwriter · Jan 15, 2009

I didn't see that you asked me if my lung function went up with GHS. I use NAC which is a pre-cursor to GHS. I chose this over GHS because I read that it is more readily available to the body and I saw that the Cystic Fibrosis Foundation chose to test NAC. Other people swear by GHS.

After the exposures to the fires, my lung functon really dropped. When I added in the Tumeric, NAC, and the HS, my FEV1 went back up plus a little higher. So I can't say for sure which of the things made my FEV1 improve. My guess it's everything I do together. Are you hesitant in trying NAC or GHS? Would your doctor say NOT to do it? I would print out the CFF page showing that it is being tested and show it to him. I would say that I want to try everything which is reasonable and medically safe.

I assure you, if the results of the studies for Tumeric and NAC are good, you will hear on the news all about the "new treatments" for CF which have been known for a long time and studied.

Nightwriter · Jan 15, 2009

I didn't see that you asked me if my lung function went up with GHS. I use NAC which is a pre-cursor to GHS. I chose this over GHS because I read that it is more readily available to the body and I saw that the Cystic Fibrosis Foundation chose to test NAC. Other people swear by GHS.

After the exposures to the fires, my lung functon really dropped. When I added in the Tumeric, NAC, and the HS, my FEV1 went back up plus a little higher. So I can't say for sure which of the things made my FEV1 improve. My guess it's everything I do together. Are you hesitant in trying NAC or GHS? Would your doctor say NOT to do it? I would print out the CFF page showing that it is being tested and show it to him. I would say that I want to try everything which is reasonable and medically safe.

I assure you, if the results of the studies for Tumeric and NAC are good, you will hear on the news all about the "new treatments" for CF which have been known for a long time and studied.

Nightwriter · Jan 15, 2009

I didn't see that you asked me if my lung function went up with GHS. I use NAC which is a pre-cursor to GHS. I chose this over GHS because I read that it is more readily available to the body and I saw that the Cystic Fibrosis Foundation chose to test NAC. Other people swear by GHS.
 
 After the exposures to the fires, my lung functon really dropped. When I added in the Tumeric, NAC, and the HS, my FEV1 went back up plus a little higher. So I can't say for sure which of the things made my FEV1 improve. My guess it's everything I do together. Are you hesitant in trying NAC or GHS? Would your doctor say NOT to do it? I would print out the CFF page showing that it is being tested and show it to him. I would say that I want to try everything which is reasonable and medically safe.
 
 I assure you, if the results of the studies for Tumeric and NAC are good, you will hear on the news all about the "new treatments" for CF which have been known for a long time and studied.

Zara · Jan 16, 2009

My doctor would be hesitant at first but by showing him the studies done, he would allow me a sort of trial on the GSH supplement to see if i improve in any way

do you cough when you use the hypertonic saline?
i know people cough like hell when nebulising but im so weird i hardly ever cough whilst using it? hmm...

Zara · Jan 16, 2009

My doctor would be hesitant at first but by showing him the studies done, he would allow me a sort of trial on the GSH supplement to see if i improve in any way

do you cough when you use the hypertonic saline?
i know people cough like hell when nebulising but im so weird i hardly ever cough whilst using it? hmm...

Zara · Jan 16, 2009

My doctor would be hesitant at first but by showing him the studies done, he would allow me a sort of trial on the GSH supplement to see if i improve in any way

do you cough when you use the hypertonic saline?
i know people cough like hell when nebulising but im so weird i hardly ever cough whilst using it? hmm...

Zara · Jan 16, 2009

My doctor would be hesitant at first but by showing him the studies done, he would allow me a sort of trial on the GSH supplement to see if i improve in any way

do you cough when you use the hypertonic saline?
i know people cough like hell when nebulising but im so weird i hardly ever cough whilst using it? hmm...

Zara · Jan 16, 2009

My doctor would be hesitant at first but by showing him the studies done, he would allow me a sort of trial on the GSH supplement to see if i improve in any way
 
 do you cough when you use the hypertonic saline?
 i know people cough like hell when nebulising but im so weird i hardly ever cough whilst using it? hmm...

Nightwriter · Jan 17, 2009

Hi Zara,

I wanted to give you references that you can give your doctor. The first link shows that the Cystic Fibrosis Foundation is sponsoring 2 studies. One for inhaled Glutathione and the second is for oral NAC. Of course, since the studies aren't completed yet, we don't know the results or dosages. But one of them is already in Phase 2 , so there is a positive result.

I can tell you what I take and my own dosage which I obtained by what by I could find on-line to be the most conservative amount. Then I ran it by my doctor.

I remember seeing that the CFF was also doing studies on Tumeric (curcumin) but when I checked their site it was nowhere to be seen. But I did find many articles saying that they were doing the studies. I linked one that I found.

You will also notice the CFF is also doing a study on DHA which is found in fish oil, another anti-inflammatory supplement that I take that my doc recommended. Lots of credible studies have already been done.

When I first started doing hypertonic saline, I coughed like mad. By the next day I could tolerate it. And now it doesn't make me cough a lot, but when I force a cough, mucus does come up. I then use the Flutter for 20 to 30 minutes and THEN all the mucus comes out. I love H.S. and believe it has even helped my FEV1 go up a bit more.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/pipeline/
">http://www.cff.org/treatments/pipeline/
</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.thisisms.com/article95.html
">http://www.thisisms.com/article95.html
</a>

Nightwriter · Jan 17, 2009

Hi Zara,

I wanted to give you references that you can give your doctor. The first link shows that the Cystic Fibrosis Foundation is sponsoring 2 studies. One for inhaled Glutathione and the second is for oral NAC. Of course, since the studies aren't completed yet, we don't know the results or dosages. But one of them is already in Phase 2 , so there is a positive result.

I can tell you what I take and my own dosage which I obtained by what by I could find on-line to be the most conservative amount. Then I ran it by my doctor.

I remember seeing that the CFF was also doing studies on Tumeric (curcumin) but when I checked their site it was nowhere to be seen. But I did find many articles saying that they were doing the studies. I linked one that I found.

You will also notice the CFF is also doing a study on DHA which is found in fish oil, another anti-inflammatory supplement that I take that my doc recommended. Lots of credible studies have already been done.

When I first started doing hypertonic saline, I coughed like mad. By the next day I could tolerate it. And now it doesn't make me cough a lot, but when I force a cough, mucus does come up. I then use the Flutter for 20 to 30 minutes and THEN all the mucus comes out. I love H.S. and believe it has even helped my FEV1 go up a bit more.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/pipeline/
">http://www.cff.org/treatments/pipeline/
</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.thisisms.com/article95.html
">http://www.thisisms.com/article95.html
</a>

Nightwriter · Jan 17, 2009

Hi Zara,

I wanted to give you references that you can give your doctor. The first link shows that the Cystic Fibrosis Foundation is sponsoring 2 studies. One for inhaled Glutathione and the second is for oral NAC. Of course, since the studies aren't completed yet, we don't know the results or dosages. But one of them is already in Phase 2 , so there is a positive result.

I can tell you what I take and my own dosage which I obtained by what by I could find on-line to be the most conservative amount. Then I ran it by my doctor.

I remember seeing that the CFF was also doing studies on Tumeric (curcumin) but when I checked their site it was nowhere to be seen. But I did find many articles saying that they were doing the studies. I linked one that I found.

You will also notice the CFF is also doing a study on DHA which is found in fish oil, another anti-inflammatory supplement that I take that my doc recommended. Lots of credible studies have already been done.

When I first started doing hypertonic saline, I coughed like mad. By the next day I could tolerate it. And now it doesn't make me cough a lot, but when I force a cough, mucus does come up. I then use the Flutter for 20 to 30 minutes and THEN all the mucus comes out. I love H.S. and believe it has even helped my FEV1 go up a bit more.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/pipeline/
">http://www.cff.org/treatments/pipeline/
</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.thisisms.com/article95.html
">http://www.thisisms.com/article95.html
</a>

Nightwriter · Jan 17, 2009

Hi Zara,

I wanted to give you references that you can give your doctor. The first link shows that the Cystic Fibrosis Foundation is sponsoring 2 studies. One for inhaled Glutathione and the second is for oral NAC. Of course, since the studies aren't completed yet, we don't know the results or dosages. But one of them is already in Phase 2 , so there is a positive result.

I can tell you what I take and my own dosage which I obtained by what by I could find on-line to be the most conservative amount. Then I ran it by my doctor.

I remember seeing that the CFF was also doing studies on Tumeric (curcumin) but when I checked their site it was nowhere to be seen. But I did find many articles saying that they were doing the studies. I linked one that I found.

You will also notice the CFF is also doing a study on DHA which is found in fish oil, another anti-inflammatory supplement that I take that my doc recommended. Lots of credible studies have already been done.

When I first started doing hypertonic saline, I coughed like mad. By the next day I could tolerate it. And now it doesn't make me cough a lot, but when I force a cough, mucus does come up. I then use the Flutter for 20 to 30 minutes and THEN all the mucus comes out. I love H.S. and believe it has even helped my FEV1 go up a bit more.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/pipeline/
">http://www.cff.org/treatments/pipeline/
</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.thisisms.com/article95.html
">http://www.thisisms.com/article95.html
</a>

Nightwriter · Jan 17, 2009

Hi Zara,
 
 I wanted to give you references that you can give your doctor. The first link shows that the Cystic Fibrosis Foundation is sponsoring 2 studies. One for inhaled Glutathione and the second is for oral NAC. Of course, since the studies aren't completed yet, we don't know the results or dosages. But one of them is already in Phase 2 , so there is a positive result.
 
 I can tell you what I take and my own dosage which I obtained by what by I could find on-line to be the most conservative amount. Then I ran it by my doctor.
 
 I remember seeing that the CFF was also doing studies on Tumeric (curcumin) but when I checked their site it was nowhere to be seen. But I did find many articles saying that they were doing the studies. I linked one that I found.
 
 You will also notice the CFF is also doing a study on DHA which is found in fish oil, another anti-inflammatory supplement that I take that my doc recommended. Lots of credible studies have already been done.
 
 When I first started doing hypertonic saline, I coughed like mad. By the next day I could tolerate it. And now it doesn't make me cough a lot, but when I force a cough, mucus does come up. I then use the Flutter for 20 to 30 minutes and THEN all the mucus comes out. I love H.S. and believe it has even helped my FEV1 go up a bit more.
 
 
 
 
 <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/pipeline/
 ">http://www.cff.org/treatments/pipeline/
 </a>
 
 
 
 <a target=_blank class=ftalternatingbarlinklarge href="http://www.thisisms.com/article95.html
 ">http://www.thisisms.com/article95.html
 </a>

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