Hey everyone I have some news

Aka2007 · Oct 10, 2007

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The only treatment they can do for it is a bone marrow trenstplant. And IV meds all the time. It's the same illness that people talk about where there was a boy that was so sick that he had to live in a bubble.

Thanks you guys for being there when I needed help.. I liked this web page and made many friends. Thanks again!
God bless <><

Aka2007 · Oct 10, 2007

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The only treatment they can do for it is a bone marrow trenstplant. And IV meds all the time. It's the same illness that people talk about where there was a boy that was so sick that he had to live in a bubble.

Thanks you guys for being there when I needed help.. I liked this web page and made many friends. Thanks again!
God bless <><

Aka2007 · Oct 10, 2007

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The only treatment they can do for it is a bone marrow trenstplant. And IV meds all the time. It's the same illness that people talk about where there was a boy that was so sick that he had to live in a bubble.

Thanks you guys for being there when I needed help.. I liked this web page and made many friends. Thanks again!
God bless <><

Aka2007 · Oct 10, 2007

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The only treatment they can do for it is a bone marrow trenstplant. And IV meds all the time. It's the same illness that people talk about where there was a boy that was so sick that he had to live in a bubble.

Thanks you guys for being there when I needed help.. I liked this web page and made many friends. Thanks again!
God bless <><

Aka2007 · Oct 10, 2007

I found out that I do not have cystic fibrosis after all. I have CVID an Immune system diaese that makes me have issues fighting illness like colds flu. So thats why I always have infections. CVID also makes me have digestive issues. I am glad it's not CF after all but I wish is was nothing. The only treatment they can do for it is a bone marrow trenstplant. And IV meds all the time. It's the same illness that people talk about where there was a boy that was so sick that he had to live in a bubble.

Thanks you guys for being there when I needed help.. I liked this web page and made many friends. Thanks again!
God bless <><

Marjolein · Oct 10, 2007

I am sorry to hear that. You must be happy that you really know what's going on now. I hope they can do help you with it, that the bone marrow tx can really help you.

You're in my thoughts! Please don't be a stranger. Even now you don't have CF, you can still come here. You've made friends. We can help you too, you still have the infections to fight off and more. We are going through the same thing. And even only the support can feel very good.

Love, Marjolein

Marjolein · Oct 10, 2007

I am sorry to hear that. You must be happy that you really know what's going on now. I hope they can do help you with it, that the bone marrow tx can really help you.

You're in my thoughts! Please don't be a stranger. Even now you don't have CF, you can still come here. You've made friends. We can help you too, you still have the infections to fight off and more. We are going through the same thing. And even only the support can feel very good.

Love, Marjolein

Marjolein · Oct 10, 2007

I am sorry to hear that. You must be happy that you really know what's going on now. I hope they can do help you with it, that the bone marrow tx can really help you.

You're in my thoughts! Please don't be a stranger. Even now you don't have CF, you can still come here. You've made friends. We can help you too, you still have the infections to fight off and more. We are going through the same thing. And even only the support can feel very good.

Love, Marjolein

Marjolein · Oct 10, 2007

I am sorry to hear that. You must be happy that you really know what's going on now. I hope they can do help you with it, that the bone marrow tx can really help you.

You're in my thoughts! Please don't be a stranger. Even now you don't have CF, you can still come here. You've made friends. We can help you too, you still have the infections to fight off and more. We are going through the same thing. And even only the support can feel very good.

Love, Marjolein

Marjolein · Oct 10, 2007

I am sorry to hear that. You must be happy that you really know what's going on now. I hope they can do help you with it, that the bone marrow tx can really help you.

You're in my thoughts! Please don't be a stranger. Even now you don't have CF, you can still come here. You've made friends. We can help you too, you still have the infections to fight off and more. We are going through the same thing. And even only the support can feel very good.

Love, Marjolein

JustDucky · Oct 10, 2007

Wow...Either way, this diagnosis is a hard one too with alll of the IV's and infections. I think that there is one other member who has an immunodeficiency disorder on this forum. At least by knowing you have this, you can get the correct treatment for you immune system.Please continue to post...your friends will still be here for you! Many prayers and hugs going your way..Jenn

JustDucky · Oct 10, 2007

Wow...Either way, this diagnosis is a hard one too with alll of the IV's and infections. I think that there is one other member who has an immunodeficiency disorder on this forum. At least by knowing you have this, you can get the correct treatment for you immune system.Please continue to post...your friends will still be here for you! Many prayers and hugs going your way..Jenn

JustDucky · Oct 10, 2007

Wow...Either way, this diagnosis is a hard one too with alll of the IV's and infections. I think that there is one other member who has an immunodeficiency disorder on this forum. At least by knowing you have this, you can get the correct treatment for you immune system.Please continue to post...your friends will still be here for you! Many prayers and hugs going your way..Jenn

JustDucky · Oct 10, 2007

Wow...Either way, this diagnosis is a hard one too with alll of the IV's and infections. I think that there is one other member who has an immunodeficiency disorder on this forum. At least by knowing you have this, you can get the correct treatment for you immune system.Please continue to post...your friends will still be here for you! Many prayers and hugs going your way..Jenn

JustDucky · Oct 10, 2007

Wow...Either way, this diagnosis is a hard one too with alll of the IV's and infections. I think that there is one other member who has an immunodeficiency disorder on this forum. At least by knowing you have this, you can get the correct treatment for you immune system.Please continue to post...your friends will still be here for you! Many prayers and hugs going your way..Jenn

Landy · Oct 10, 2007