What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Hi I'm new

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moosemom</b></i>

Sure enough, they found the other bad gene D1152H to go with W1282X that they already knew about.</end quote></div>

Hi, Marci. I noticed that you have one of the nonsense mutations (W1282X). Have you heard about a new drug that is in trials specifically for these types of genes?

It is called PTC124. I thought you might be interested in some information regarding it.

You can find some information here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/2.4_faqs.aspx">http://www.ptcbio.com/2.4_faqs.aspx</a>

My daughter also has this mutation and I am very hopeful about this potential medication! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moosemom</b></i>

Sure enough, they found the other bad gene D1152H to go with W1282X that they already knew about.</end quote></div>

Hi, Marci. I noticed that you have one of the nonsense mutations (W1282X). Have you heard about a new drug that is in trials specifically for these types of genes?

It is called PTC124. I thought you might be interested in some information regarding it.

You can find some information here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/2.4_faqs.aspx">http://www.ptcbio.com/2.4_faqs.aspx</a>

My daughter also has this mutation and I am very hopeful about this potential medication! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moosemom</b></i>

Sure enough, they found the other bad gene D1152H to go with W1282X that they already knew about.</end quote></div>

Hi, Marci. I noticed that you have one of the nonsense mutations (W1282X). Have you heard about a new drug that is in trials specifically for these types of genes?

It is called PTC124. I thought you might be interested in some information regarding it.

You can find some information here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/2.4_faqs.aspx">http://www.ptcbio.com/2.4_faqs.aspx</a>

My daughter also has this mutation and I am very hopeful about this potential medication! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moosemom</b></i>

Sure enough, they found the other bad gene D1152H to go with W1282X that they already knew about.</end quote>

Hi, Marci. I noticed that you have one of the nonsense mutations (W1282X). Have you heard about a new drug that is in trials specifically for these types of genes?

It is called PTC124. I thought you might be interested in some information regarding it.

You can find some information here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/2.4_faqs.aspx">http://www.ptcbio.com/2.4_faqs.aspx</a>

My daughter also has this mutation and I am very hopeful about this potential medication! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moosemom</b></i>
<br />
<br />Sure enough, they found the other bad gene D1152H to go with W1282X that they already knew about.</end quote>
<br />
<br />Hi, Marci. I noticed that you have one of the nonsense mutations (W1282X). Have you heard about a new drug that is in trials specifically for these types of genes?
<br />
<br />It is called PTC124. I thought you might be interested in some information regarding it.
<br />
<br />You can find some information here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/2.4_faqs.aspx">http://www.ptcbio.com/2.4_faqs.aspx</a>
<br />
<br />My daughter also has this mutation and I am very hopeful about this potential medication! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
 

karismom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Welcome Marci

I hope with all my heart that you will find on this site what I have when I needed it the most..... LOVE and FRIENDSHIP.

peace.

lisa <img src="i/expressions/rose.gif" border="0">
 

karismom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Welcome Marci

I hope with all my heart that you will find on this site what I have when I needed it the most..... LOVE and FRIENDSHIP.

peace.

lisa <img src="i/expressions/rose.gif" border="0">
 

karismom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Welcome Marci

I hope with all my heart that you will find on this site what I have when I needed it the most..... LOVE and FRIENDSHIP.

peace.

lisa <img src="i/expressions/rose.gif" border="0">
 

karismom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Welcome Marci

I hope with all my heart that you will find on this site what I have when I needed it the most..... LOVE and FRIENDSHIP.

peace.

lisa <img src="i/expressions/rose.gif" border="0">
 

karismom

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Welcome Marci
<br />
<br />I hope with all my heart that you will find on this site what I have when I needed it the most..... LOVE and FRIENDSHIP.
<br />
<br />peace.
<br />
<br />lisa <img src="i/expressions/rose.gif" border="0">
 
Top