hiatal hernia repair

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nick9742</b></i>

If you are well controlled with pills, I'd highly suggest you wait about this. I'd also get a second opinion on if it's absolutely necessary for a TX, I didn't think it would be if you have good control with something like Nexium...I had one when I was 15 and it's single handedly the worst decision I've made regarding my health and has been detrimental to my nutrition and weight gain. I weighed 130 just before I had it done, and because I was having lots of reflux not controlled by medicine they suggested this.</end quote></div>


It seems weird to me that anything that causes CFers to loose intense amounts of weight (that we usually work years putting on) would be a requirement for Tx. I always thought being a "healthy weight" with CF is also a criteria of Tx. So, isn't this a catch-22?

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nick9742</b></i>

If you are well controlled with pills, I'd highly suggest you wait about this. I'd also get a second opinion on if it's absolutely necessary for a TX, I didn't think it would be if you have good control with something like Nexium...I had one when I was 15 and it's single handedly the worst decision I've made regarding my health and has been detrimental to my nutrition and weight gain. I weighed 130 just before I had it done, and because I was having lots of reflux not controlled by medicine they suggested this.</end quote></div>


It seems weird to me that anything that causes CFers to loose intense amounts of weight (that we usually work years putting on) would be a requirement for Tx. I always thought being a "healthy weight" with CF is also a criteria of Tx. So, isn't this a catch-22?

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nick9742</b></i>

If you are well controlled with pills, I'd highly suggest you wait about this. I'd also get a second opinion on if it's absolutely necessary for a TX, I didn't think it would be if you have good control with something like Nexium...I had one when I was 15 and it's single handedly the worst decision I've made regarding my health and has been detrimental to my nutrition and weight gain. I weighed 130 just before I had it done, and because I was having lots of reflux not controlled by medicine they suggested this.</end quote></div>


It seems weird to me that anything that causes CFers to loose intense amounts of weight (that we usually work years putting on) would be a requirement for Tx. I always thought being a "healthy weight" with CF is also a criteria of Tx. So, isn't this a catch-22?

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nick9742</b></i>

If you are well controlled with pills, I'd highly suggest you wait about this. I'd also get a second opinion on if it's absolutely necessary for a TX, I didn't think it would be if you have good control with something like Nexium...I had one when I was 15 and it's single handedly the worst decision I've made regarding my health and has been detrimental to my nutrition and weight gain. I weighed 130 just before I had it done, and because I was having lots of reflux not controlled by medicine they suggested this.</end quote>


It seems weird to me that anything that causes CFers to loose intense amounts of weight (that we usually work years putting on) would be a requirement for Tx. I always thought being a "healthy weight" with CF is also a criteria of Tx. So, isn't this a catch-22?

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nick9742</b></i>
<br />
<br />If you are well controlled with pills, I'd highly suggest you wait about this. I'd also get a second opinion on if it's absolutely necessary for a TX, I didn't think it would be if you have good control with something like Nexium...I had one when I was 15 and it's single handedly the worst decision I've made regarding my health and has been detrimental to my nutrition and weight gain. I weighed 130 just before I had it done, and because I was having lots of reflux not controlled by medicine they suggested this.</end quote>
<br />
<br />
<br />It seems weird to me that anything that causes CFers to loose intense amounts of weight (that we usually work years putting on) would be a requirement for Tx. I always thought being a "healthy weight" with CF is also a criteria of Tx. So, isn't this a catch-22?
<br />
<br />

 

[Skye]

THANK YOU both for commenting and helping me walk through this. I tend to agree with you Sonia and after much thinking and really worrying about this I came to a late realization today and called my surgeon. I am NOT ANYWHERE close to wanting to have this done. I was thinking it might help improve lung function or keep me from getting slight dips in my FEV1; but, I have not been on IV's for 7 months and there is NO evidence that any of my exacerbations are related to reflux...I feel pretty well- controlled in that regard and I take many precautions. I can't find much research in adults and most I know of have it done post-tx. The thing that freaked me out the most is maybe not being able to vomit. WOW, I can't imagine not being able to have that relief. Sometimes that is the only thing that helps me to feel better. I am NOT willing to give that up right now. If I have to do it in the future to protect new lungs or if I have some unexplained severe dips in FEV1...I will revisit the idea; but, for now my instinct tells me to leave it alone. My insticts are pretty reliable most of the time. My docs proprably think I am nuts for going in circles on this and ending up back at square one....but, I needed that cirlce to get to my decision<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you all again and I will keep you all updated about this saga.

 

[Skye]

THANK YOU both for commenting and helping me walk through this. I tend to agree with you Sonia and after much thinking and really worrying about this I came to a late realization today and called my surgeon. I am NOT ANYWHERE close to wanting to have this done. I was thinking it might help improve lung function or keep me from getting slight dips in my FEV1; but, I have not been on IV's for 7 months and there is NO evidence that any of my exacerbations are related to reflux...I feel pretty well- controlled in that regard and I take many precautions. I can't find much research in adults and most I know of have it done post-tx. The thing that freaked me out the most is maybe not being able to vomit. WOW, I can't imagine not being able to have that relief. Sometimes that is the only thing that helps me to feel better. I am NOT willing to give that up right now. If I have to do it in the future to protect new lungs or if I have some unexplained severe dips in FEV1...I will revisit the idea; but, for now my instinct tells me to leave it alone. My insticts are pretty reliable most of the time. My docs proprably think I am nuts for going in circles on this and ending up back at square one....but, I needed that cirlce to get to my decision<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you all again and I will keep you all updated about this saga.

 

[Skye]

THANK YOU both for commenting and helping me walk through this. I tend to agree with you Sonia and after much thinking and really worrying about this I came to a late realization today and called my surgeon. I am NOT ANYWHERE close to wanting to have this done. I was thinking it might help improve lung function or keep me from getting slight dips in my FEV1; but, I have not been on IV's for 7 months and there is NO evidence that any of my exacerbations are related to reflux...I feel pretty well- controlled in that regard and I take many precautions. I can't find much research in adults and most I know of have it done post-tx. The thing that freaked me out the most is maybe not being able to vomit. WOW, I can't imagine not being able to have that relief. Sometimes that is the only thing that helps me to feel better. I am NOT willing to give that up right now. If I have to do it in the future to protect new lungs or if I have some unexplained severe dips in FEV1...I will revisit the idea; but, for now my instinct tells me to leave it alone. My insticts are pretty reliable most of the time. My docs proprably think I am nuts for going in circles on this and ending up back at square one....but, I needed that cirlce to get to my decision<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you all again and I will keep you all updated about this saga.

 

[Skye]

THANK YOU both for commenting and helping me walk through this. I tend to agree with you Sonia and after much thinking and really worrying about this I came to a late realization today and called my surgeon. I am NOT ANYWHERE close to wanting to have this done. I was thinking it might help improve lung function or keep me from getting slight dips in my FEV1; but, I have not been on IV's for 7 months and there is NO evidence that any of my exacerbations are related to reflux...I feel pretty well- controlled in that regard and I take many precautions. I can't find much research in adults and most I know of have it done post-tx. The thing that freaked me out the most is maybe not being able to vomit. WOW, I can't imagine not being able to have that relief. Sometimes that is the only thing that helps me to feel better. I am NOT willing to give that up right now. If I have to do it in the future to protect new lungs or if I have some unexplained severe dips in FEV1...I will revisit the idea; but, for now my instinct tells me to leave it alone. My insticts are pretty reliable most of the time. My docs proprably think I am nuts for going in circles on this and ending up back at square one....but, I needed that cirlce to get to my decision<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you all again and I will keep you all updated about this saga.

 

[Skye]

THANK YOU both for commenting and helping me walk through this. I tend to agree with you Sonia and after much thinking and really worrying about this I came to a late realization today and called my surgeon. I am NOT ANYWHERE close to wanting to have this done. I was thinking it might help improve lung function or keep me from getting slight dips in my FEV1; but, I have not been on IV's for 7 months and there is NO evidence that any of my exacerbations are related to reflux...I feel pretty well- controlled in that regard and I take many precautions. I can't find much research in adults and most I know of have it done post-tx. The thing that freaked me out the most is maybe not being able to vomit. WOW, I can't imagine not being able to have that relief. Sometimes that is the only thing that helps me to feel better. I am NOT willing to give that up right now. If I have to do it in the future to protect new lungs or if I have some unexplained severe dips in FEV1...I will revisit the idea; but, for now my instinct tells me to leave it alone. My insticts are pretty reliable most of the time. My docs proprably think I am nuts for going in circles on this and ending up back at square one....but, I needed that cirlce to get to my decision<img src="i/expressions/face-icon-small-smile.gif" border="0"> Thank you all again and I will keep you all updated about this saga.

 

[nick9742]

I'm glad you've decided to wait. There is a lot of nausea involved with the surgery (especially for me) and the fact that you can't throw up at all or burp to relieve gas can make you feel horrible for days. Mine has broken, which means it's back to normal and I can burp and vomit like normal. But it was hell for 2 years!

Anyway, glad I could help you make a decision about it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[nick9742]

I'm glad you've decided to wait. There is a lot of nausea involved with the surgery (especially for me) and the fact that you can't throw up at all or burp to relieve gas can make you feel horrible for days. Mine has broken, which means it's back to normal and I can burp and vomit like normal. But it was hell for 2 years!

Anyway, glad I could help you make a decision about it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[nick9742]

I'm glad you've decided to wait. There is a lot of nausea involved with the surgery (especially for me) and the fact that you can't throw up at all or burp to relieve gas can make you feel horrible for days. Mine has broken, which means it's back to normal and I can burp and vomit like normal. But it was hell for 2 years!

Anyway, glad I could help you make a decision about it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[nick9742]

I'm glad you've decided to wait. There is a lot of nausea involved with the surgery (especially for me) and the fact that you can't throw up at all or burp to relieve gas can make you feel horrible for days. Mine has broken, which means it's back to normal and I can burp and vomit like normal. But it was hell for 2 years!

Anyway, glad I could help you make a decision about it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[nick9742]

I'm glad you've decided to wait. There is a lot of nausea involved with the surgery (especially for me) and the fact that you can't throw up at all or burp to relieve gas can make you feel horrible for days. Mine has broken, which means it's back to normal and I can burp and vomit like normal. But it was hell for 2 years!
<br />
<br />Anyway, glad I could help you make a decision about it! <img src="i/expressions/face-icon-small-smile.gif" border="0">