mom2lillian
New member
I am apalled at your situation. I too was once there but I did not have a cf dx however all my coughing and complaining should have been enough.
I would print some articles and have a true heart to heart with your parents. If that doesnt work I would start doing things to 'make a point' and protect your health.
I basically was only home when I had to be and I would stay in my room with a towel at the door to block what I could.
After my dx (I had returned to living at home for a short time because I was ill before dx) my dad decided to stop smoknig in the house. I said some very hurtful things about him and my mother because of the choices they had made. I woudl not suggest doing this it was very heat of the moment and passionate and I have never quiet seen hurt on my mothers face like that time. I would recommend you guard against doing that and go for the education, although they 'know' it is easy to minimize, negate, justify and just be in denial. Honestly if they dont smoke in the house they probably assume all is fine that they are 'protecting you'.
I would also talk to your cf social worker about your concerns if your talks have not gone well and see what help they can be.
Oh and you could also go to buying a carbon mask and wearing that whenever you leave your bedroom, go in the car, or garage to 'make your point' so to speak.
Some measures may be extreme but I am assuming since they have been doing this for 16 years it will take nothing short of a verbal 2x4 over the head for them to 'get it'.
I would print some articles and have a true heart to heart with your parents. If that doesnt work I would start doing things to 'make a point' and protect your health.
I basically was only home when I had to be and I would stay in my room with a towel at the door to block what I could.
After my dx (I had returned to living at home for a short time because I was ill before dx) my dad decided to stop smoknig in the house. I said some very hurtful things about him and my mother because of the choices they had made. I woudl not suggest doing this it was very heat of the moment and passionate and I have never quiet seen hurt on my mothers face like that time. I would recommend you guard against doing that and go for the education, although they 'know' it is easy to minimize, negate, justify and just be in denial. Honestly if they dont smoke in the house they probably assume all is fine that they are 'protecting you'.
I would also talk to your cf social worker about your concerns if your talks have not gone well and see what help they can be.
Oh and you could also go to buying a carbon mask and wearing that whenever you leave your bedroom, go in the car, or garage to 'make your point' so to speak.
Some measures may be extreme but I am assuming since they have been doing this for 16 years it will take nothing short of a verbal 2x4 over the head for them to 'get it'.