How do you Explain CF in the simplest form?

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i>

As a physician you would think that it would be completely within his/her realm to adequately research CF and understand it. I realize that as a non-CF specialist that there's a slight learning curve, but come on we are talking about medical professionals here.</end quote></div>


My thoughts exactly.

In fact, I was in Tokyo myself in the ER and I had to do 0 explaining of CF while I was there. The doc new very very basic info, but asked me to wait a few minutes while she looked up some literature (her english wasn't very strong).

The only questions I had to answer for her was about how I was feeling.

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i>

As a physician you would think that it would be completely within his/her realm to adequately research CF and understand it. I realize that as a non-CF specialist that there's a slight learning curve, but come on we are talking about medical professionals here.</end quote></div>


My thoughts exactly.

In fact, I was in Tokyo myself in the ER and I had to do 0 explaining of CF while I was there. The doc new very very basic info, but asked me to wait a few minutes while she looked up some literature (her english wasn't very strong).

The only questions I had to answer for her was about how I was feeling.

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i>

As a physician you would think that it would be completely within his/her realm to adequately research CF and understand it. I realize that as a non-CF specialist that there's a slight learning curve, but come on we are talking about medical professionals here.</end quote></div>


My thoughts exactly.

In fact, I was in Tokyo myself in the ER and I had to do 0 explaining of CF while I was there. The doc new very very basic info, but asked me to wait a few minutes while she looked up some literature (her english wasn't very strong).

The only questions I had to answer for her was about how I was feeling.

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i>

As a physician you would think that it would be completely within his/her realm to adequately research CF and understand it. I realize that as a non-CF specialist that there's a slight learning curve, but come on we are talking about medical professionals here.</end quote>


My thoughts exactly.

In fact, I was in Tokyo myself in the ER and I had to do 0 explaining of CF while I was there. The doc new very very basic info, but asked me to wait a few minutes while she looked up some literature (her english wasn't very strong).

The only questions I had to answer for her was about how I was feeling.

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i>
<br />
<br />As a physician you would think that it would be completely within his/her realm to adequately research CF and understand it. I realize that as a non-CF specialist that there's a slight learning curve, but come on we are talking about medical professionals here.</end quote>
<br />
<br />
<br />My thoughts exactly.
<br />
<br />In fact, I was in Tokyo myself in the ER and I had to do 0 explaining of CF while I was there. The doc new very very basic info, but asked me to wait a few minutes while she looked up some literature (her english wasn't very strong).
<br />
<br />The only questions I had to answer for her was about how I was feeling.

 

[just1more]

Fred, I think I have some basic powerpoint type info I started pulling together last year. You would need to translate (or I might be able to get a freebie from mine at work) but it might give you a good start.

Plus, then I'd have both an English & Japanese version <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[just1more]

Fred, I think I have some basic powerpoint type info I started pulling together last year. You would need to translate (or I might be able to get a freebie from mine at work) but it might give you a good start.

Plus, then I'd have both an English & Japanese version <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[just1more]

Fred, I think I have some basic powerpoint type info I started pulling together last year. You would need to translate (or I might be able to get a freebie from mine at work) but it might give you a good start.

Plus, then I'd have both an English & Japanese version <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[just1more]

Fred, I think I have some basic powerpoint type info I started pulling together last year. You would need to translate (or I might be able to get a freebie from mine at work) but it might give you a good start.

Plus, then I'd have both an English & Japanese version <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[just1more]

Fred, I think I have some basic powerpoint type info I started pulling together last year. You would need to translate (or I might be able to get a freebie from mine at work) but it might give you a good start.
<br />
<br />Plus, then I'd have both an English & Japanese version <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Cerulean]

To me, living with CF/CFRD in Japan would be scary. It's not that I don't trust the doctors, as I am sure there are some fine doctors in Japan. It's just that CF is mostly a european disease, and, correct me if I am wrong but, I'd like to think that there aren't many CFers in Japan, hence the lack of facilities and knowledgable doctors.

I'd move.

 

[Cerulean]

To me, living with CF/CFRD in Japan would be scary. It's not that I don't trust the doctors, as I am sure there are some fine doctors in Japan. It's just that CF is mostly a european disease, and, correct me if I am wrong but, I'd like to think that there aren't many CFers in Japan, hence the lack of facilities and knowledgable doctors.

I'd move.

 

[Cerulean]

To me, living with CF/CFRD in Japan would be scary. It's not that I don't trust the doctors, as I am sure there are some fine doctors in Japan. It's just that CF is mostly a european disease, and, correct me if I am wrong but, I'd like to think that there aren't many CFers in Japan, hence the lack of facilities and knowledgable doctors.

I'd move.

 

[Cerulean]

To me, living with CF/CFRD in Japan would be scary. It's not that I don't trust the doctors, as I am sure there are some fine doctors in Japan. It's just that CF is mostly a european disease, and, correct me if I am wrong but, I'd like to think that there aren't many CFers in Japan, hence the lack of facilities and knowledgable doctors.

I'd move.

 

[Cerulean]

To me, living with CF/CFRD in Japan would be scary. It's not that I don't trust the doctors, as I am sure there are some fine doctors in Japan. It's just that CF is mostly a european disease, and, correct me if I am wrong but, I'd like to think that there aren't many CFers in Japan, hence the lack of facilities and knowledgable doctors.
<br />
<br />I'd move.

 

[lmattaway]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i>
In addition, I had been able to survive in Japan without the needs that a "textbook CF patient" needs. For example, I haven't needed any nebs up until two or three years ago, and although I was on enzymes for a long time, I had been without enzymes since I've been to Japan and had been able to survive due to the different diet. </end quote></div>

This is a bit off topic, but I am fascinated about your change of diet and how it relates to your need for enzymes. Are you just consuming a lot less fat? What do you think is the main reason you've been able to get by without them? Do you get stomach aches? Gas? This is so interesting, Fred!

 

[lmattaway]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i>
In addition, I had been able to survive in Japan without the needs that a "textbook CF patient" needs. For example, I haven't needed any nebs up until two or three years ago, and although I was on enzymes for a long time, I had been without enzymes since I've been to Japan and had been able to survive due to the different diet. </end quote></div>

This is a bit off topic, but I am fascinated about your change of diet and how it relates to your need for enzymes. Are you just consuming a lot less fat? What do you think is the main reason you've been able to get by without them? Do you get stomach aches? Gas? This is so interesting, Fred!

 

[lmattaway]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i>
In addition, I had been able to survive in Japan without the needs that a "textbook CF patient" needs. For example, I haven't needed any nebs up until two or three years ago, and although I was on enzymes for a long time, I had been without enzymes since I've been to Japan and had been able to survive due to the different diet. </end quote></div>

This is a bit off topic, but I am fascinated about your change of diet and how it relates to your need for enzymes. Are you just consuming a lot less fat? What do you think is the main reason you've been able to get by without them? Do you get stomach aches? Gas? This is so interesting, Fred!

 

[lmattaway]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i>
In addition, I had been able to survive in Japan without the needs that a "textbook CF patient" needs. For example, I haven't needed any nebs up until two or three years ago, and although I was on enzymes for a long time, I had been without enzymes since I've been to Japan and had been able to survive due to the different diet. </end quote>

This is a bit off topic, but I am fascinated about your change of diet and how it relates to your need for enzymes. Are you just consuming a lot less fat? What do you think is the main reason you've been able to get by without them? Do you get stomach aches? Gas? This is so interesting, Fred!

 

[lmattaway]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i>
<br />In addition, I had been able to survive in Japan without the needs that a "textbook CF patient" needs. For example, I haven't needed any nebs up until two or three years ago, and although I was on enzymes for a long time, I had been without enzymes since I've been to Japan and had been able to survive due to the different diet. </end quote>
<br />
<br />This is a bit off topic, but I am fascinated about your change of diet and how it relates to your need for enzymes. Are you just consuming a lot less fat? What do you think is the main reason you've been able to get by without them? Do you get stomach aches? Gas? This is so interesting, Fred!