What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

How open are you about CF?

b12bc

New member
I understand your point Colin, and I respect and admire your openness about it. I really don't consider being private as lying or denying who I am (I'm not sure if that part was directed at me or not), and if somebody outright asks what is wrong, I do answer honestly. I just don't tend to have the energy or motivation to say any more than I have to. And I'll say again that my close friends DO know - between having to check my glucose 10 times a day and doing treatments and taking pills every time I eat, it would be impossible to hide. My friends would be my friends if I had 5 arms and a tail. They aren't the people that bother me. Even the kind, well-intentioned, curious ones don't bother me. I guess I have just had too many run-ins with people who treat me like dirt or like I'm an invalid because I ended up with some shitty genes and cough a lot. If I CAN avoid that, why wouldn't I?
 

b12bc

New member
I understand your point Colin, and I respect and admire your openness about it. I really don't consider being private as lying or denying who I am (I'm not sure if that part was directed at me or not), and if somebody outright asks what is wrong, I do answer honestly. I just don't tend to have the energy or motivation to say any more than I have to. And I'll say again that my close friends DO know - between having to check my glucose 10 times a day and doing treatments and taking pills every time I eat, it would be impossible to hide. My friends would be my friends if I had 5 arms and a tail. They aren't the people that bother me. Even the kind, well-intentioned, curious ones don't bother me. I guess I have just had too many run-ins with people who treat me like dirt or like I'm an invalid because I ended up with some shitty genes and cough a lot. If I CAN avoid that, why wouldn't I?
 
Top