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Hypertonic saline

C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
C

creation301

New member
We had an appointment today. Our daughter has used pulmozyme for about the last two years. She is too young to test for pft's but she continues to retract a bit. The dr. wants her to stop the pulmozyme and start Hypertonic Saline. She doesn't really cough that much with her treatments, so his thought was that maybe HS would get things moving.

What is the youngest age that anyone has known it to be used? I know that a lot of the adults use it and say that it makes a big difference, how will I know if it is working with her? I am ready to try something new, but a little nerveous at the same time. She has done well the last few months and I just want it to continue or get better.

If anyone has any input or is using HS with smaller children please let me know how it is going. Or if any of the adult have any words of wisdom I would be grateful.

Thank you- Tiffany
 
P

princessjdc

New member
Well one way to know its working is she'll cough, thats what it did to me until it cleared me all up now I only cough when I have a cold or something. Im not sure about the age thing though, sorry cant help you out in that part.
 
P

princessjdc

New member
Well one way to know its working is she'll cough, thats what it did to me until it cleared me all up now I only cough when I have a cold or something. Im not sure about the age thing though, sorry cant help you out in that part.
 
P

princessjdc

New member
Well one way to know its working is she'll cough, thats what it did to me until it cleared me all up now I only cough when I have a cold or something. Im not sure about the age thing though, sorry cant help you out in that part.
 
L

lflatford

New member
Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the concentration of the saline getting into her lungs. After a few times, she got use to it, like all the other meds.
Avery was the youngest to be put on it at the time and we have nothing but great things to say about it. If they are offering to put your child on it, then I would stand by that b/c Avery has had no problems. She is at this point not a cougher, she was not been sick in at least a year. She does it twice a day, and right now she is only on the HS and not Pulmozyme,but she normally does the two. Hope this helps !!

Chuck father to Avery 3 with double DF508 and Rhett 2 no cf/carrier living in Knoxville, TN
 
L

lflatford

New member
Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the concentration of the saline getting into her lungs. After a few times, she got use to it, like all the other meds.
Avery was the youngest to be put on it at the time and we have nothing but great things to say about it. If they are offering to put your child on it, then I would stand by that b/c Avery has had no problems. She is at this point not a cougher, she was not been sick in at least a year. She does it twice a day, and right now she is only on the HS and not Pulmozyme,but she normally does the two. Hope this helps !!

Chuck father to Avery 3 with double DF508 and Rhett 2 no cf/carrier living in Knoxville, TN
 
L

lflatford

New member
Our daughter has had very little if any lung issues. But her Doctors has had her on HS for over a year, she started it right after the New England Journal of Med. published it's findings in the clinical trials. She has been on the full dosage, and the only problem she had was getting use to the concentration of the saline getting into her lungs. After a few times, she got use to it, like all the other meds.
Avery was the youngest to be put on it at the time and we have nothing but great things to say about it. If they are offering to put your child on it, then I would stand by that b/c Avery has had no problems. She is at this point not a cougher, she was not been sick in at least a year. She does it twice a day, and right now she is only on the HS and not Pulmozyme,but she normally does the two. Hope this helps !!

Chuck father to Avery 3 with double DF508 and Rhett 2 no cf/carrier living in Knoxville, TN
 
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