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I AM HOME and with a question

Jbenjamin152

New member
So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting harder, the older you get/ I have found since I was 20, It is harder to feel better after a hospital stay. I stay in the hospital longer, and wind up not able to regain my normal daily activities for alonger time after I get home each and every time. Sometimes I am just WORN OUT, sometimes I have energy just not enough to last the day, not even enough to last an hour then I'm 'wiped out'
 

Jbenjamin152

New member
So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting harder, the older you get/ I have found since I was 20, It is harder to feel better after a hospital stay. I stay in the hospital longer, and wind up not able to regain my normal daily activities for alonger time after I get home each and every time. Sometimes I am just WORN OUT, sometimes I have energy just not enough to last the day, not even enough to last an hour then I'm 'wiped out'
 

Jbenjamin152

New member
So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting harder, the older you get/ I have found since I was 20, It is harder to feel better after a hospital stay. I stay in the hospital longer, and wind up not able to regain my normal daily activities for alonger time after I get home each and every time. Sometimes I am just WORN OUT, sometimes I have energy just not enough to last the day, not even enough to last an hour then I'm 'wiped out'
 

Jbenjamin152

New member
So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting harder, the older you get/ I have found since I was 20, It is harder to feel better after a hospital stay. I stay in the hospital longer, and wind up not able to regain my normal daily activities for alonger time after I get home each and every time. Sometimes I am just WORN OUT, sometimes I have energy just not enough to last the day, not even enough to last an hour then I'm 'wiped out'
 

Jbenjamin152

New member
So just wanted to let everyone know, not only am I home but I am finally after a weeek home starting to feel pretty good. I think that the cfrd is finally becoming under control. Has anyone else that is getting to be in there later 20's find that recouping after a hospialzation is getting harder, the older you get/ I have found since I was 20, It is harder to feel better after a hospital stay. I stay in the hospital longer, and wind up not able to regain my normal daily activities for alonger time after I get home each and every time. Sometimes I am just WORN OUT, sometimes I have energy just not enough to last the day, not even enough to last an hour then I'm 'wiped out'
 

ctalbott0609

New member
I'm sorry that no one's responded to your post yet. I can't give you any advice from a Cystic's pov but I can tell you as a non-cf individual, that it DOES get harder to recuperate when you're in and out of the hospital. From about ages 7-15 I was in and out of the hospital many, many times. With each time, it seemed to be harder to re-adjust to the outside world..so to speak. No matter what though, I sympathize with you, and I've been reading about how hard your last hospital visit was. My prayers are with you, to keep recovering, and getting back to normal, as soon as possible.
 

ctalbott0609

New member
I'm sorry that no one's responded to your post yet. I can't give you any advice from a Cystic's pov but I can tell you as a non-cf individual, that it DOES get harder to recuperate when you're in and out of the hospital. From about ages 7-15 I was in and out of the hospital many, many times. With each time, it seemed to be harder to re-adjust to the outside world..so to speak. No matter what though, I sympathize with you, and I've been reading about how hard your last hospital visit was. My prayers are with you, to keep recovering, and getting back to normal, as soon as possible.
 

ctalbott0609

New member
I'm sorry that no one's responded to your post yet. I can't give you any advice from a Cystic's pov but I can tell you as a non-cf individual, that it DOES get harder to recuperate when you're in and out of the hospital. From about ages 7-15 I was in and out of the hospital many, many times. With each time, it seemed to be harder to re-adjust to the outside world..so to speak. No matter what though, I sympathize with you, and I've been reading about how hard your last hospital visit was. My prayers are with you, to keep recovering, and getting back to normal, as soon as possible.
 

ctalbott0609

New member
I'm sorry that no one's responded to your post yet. I can't give you any advice from a Cystic's pov but I can tell you as a non-cf individual, that it DOES get harder to recuperate when you're in and out of the hospital. From about ages 7-15 I was in and out of the hospital many, many times. With each time, it seemed to be harder to re-adjust to the outside world..so to speak. No matter what though, I sympathize with you, and I've been reading about how hard your last hospital visit was. My prayers are with you, to keep recovering, and getting back to normal, as soon as possible.
 

ctalbott0609

New member
I'm sorry that no one's responded to your post yet. I can't give you any advice from a Cystic's pov but I can tell you as a non-cf individual, that it DOES get harder to recuperate when you're in and out of the hospital. From about ages 7-15 I was in and out of the hospital many, many times. With each time, it seemed to be harder to re-adjust to the outside world..so to speak. No matter what though, I sympathize with you, and I've been reading about how hard your last hospital visit was. My prayers are with you, to keep recovering, and getting back to normal, as soon as possible.
 

JustDucky

New member
Absolutely...I just went through a nearly month long hospitalization and it has really taken the wind out of my sails so to speak. I still do not even feel close to baseline, I have been out a week now too. I know it will take quite a bit longer before I am feeling my "normal" self. I was also quite sick going in, much sicker than I have been in previous admissions. I think that has alot to do with it. I was also on strict isolation, so no walking around to keep my strength up...so the longer I am in, the weaker I am coming out.
I hope you bounce back soon, Keep the faith
Hugs, Jenn
 

JustDucky

New member
Absolutely...I just went through a nearly month long hospitalization and it has really taken the wind out of my sails so to speak. I still do not even feel close to baseline, I have been out a week now too. I know it will take quite a bit longer before I am feeling my "normal" self. I was also quite sick going in, much sicker than I have been in previous admissions. I think that has alot to do with it. I was also on strict isolation, so no walking around to keep my strength up...so the longer I am in, the weaker I am coming out.
I hope you bounce back soon, Keep the faith
Hugs, Jenn
 

JustDucky

New member
Absolutely...I just went through a nearly month long hospitalization and it has really taken the wind out of my sails so to speak. I still do not even feel close to baseline, I have been out a week now too. I know it will take quite a bit longer before I am feeling my "normal" self. I was also quite sick going in, much sicker than I have been in previous admissions. I think that has alot to do with it. I was also on strict isolation, so no walking around to keep my strength up...so the longer I am in, the weaker I am coming out.
I hope you bounce back soon, Keep the faith
Hugs, Jenn
 

JustDucky

New member
Absolutely...I just went through a nearly month long hospitalization and it has really taken the wind out of my sails so to speak. I still do not even feel close to baseline, I have been out a week now too. I know it will take quite a bit longer before I am feeling my "normal" self. I was also quite sick going in, much sicker than I have been in previous admissions. I think that has alot to do with it. I was also on strict isolation, so no walking around to keep my strength up...so the longer I am in, the weaker I am coming out.
I hope you bounce back soon, Keep the faith
Hugs, Jenn
 

JustDucky

New member
Absolutely...I just went through a nearly month long hospitalization and it has really taken the wind out of my sails so to speak. I still do not even feel close to baseline, I have been out a week now too. I know it will take quite a bit longer before I am feeling my "normal" self. I was also quite sick going in, much sicker than I have been in previous admissions. I think that has alot to do with it. I was also on strict isolation, so no walking around to keep my strength up...so the longer I am in, the weaker I am coming out.
<br />I hope you bounce back soon, Keep the faith
<br />Hugs, Jenn
 

NYCLawGirl

New member
I find that in general as I get older (and my lung health declines) it is more and more difficult to recover from ANY exacerbation, whether I start out in the hospital or do it all from home. Remember that the drugs are hard on your system also, so it's normal to need some "recovery" time not only from the infection, but from the meds. Not to mention the fact that hospitals can be STRESSFUL and difficult in terms of eating, sleeping, and just plain old anxiety. Take your time, give yourself some space, and things will pick up again soon, I promise <img src="i/expressions/face-icon-small-wink.gif" border="0">

Congrats on being home!!! You've been through a lot lately and deserve to just relax and enjoy this time now. Hope you have a great holiday!
 

NYCLawGirl

New member
I find that in general as I get older (and my lung health declines) it is more and more difficult to recover from ANY exacerbation, whether I start out in the hospital or do it all from home. Remember that the drugs are hard on your system also, so it's normal to need some "recovery" time not only from the infection, but from the meds. Not to mention the fact that hospitals can be STRESSFUL and difficult in terms of eating, sleeping, and just plain old anxiety. Take your time, give yourself some space, and things will pick up again soon, I promise <img src="i/expressions/face-icon-small-wink.gif" border="0">

Congrats on being home!!! You've been through a lot lately and deserve to just relax and enjoy this time now. Hope you have a great holiday!
 

NYCLawGirl

New member
I find that in general as I get older (and my lung health declines) it is more and more difficult to recover from ANY exacerbation, whether I start out in the hospital or do it all from home. Remember that the drugs are hard on your system also, so it's normal to need some "recovery" time not only from the infection, but from the meds. Not to mention the fact that hospitals can be STRESSFUL and difficult in terms of eating, sleeping, and just plain old anxiety. Take your time, give yourself some space, and things will pick up again soon, I promise <img src="i/expressions/face-icon-small-wink.gif" border="0">

Congrats on being home!!! You've been through a lot lately and deserve to just relax and enjoy this time now. Hope you have a great holiday!
 

NYCLawGirl

New member
I find that in general as I get older (and my lung health declines) it is more and more difficult to recover from ANY exacerbation, whether I start out in the hospital or do it all from home. Remember that the drugs are hard on your system also, so it's normal to need some "recovery" time not only from the infection, but from the meds. Not to mention the fact that hospitals can be STRESSFUL and difficult in terms of eating, sleeping, and just plain old anxiety. Take your time, give yourself some space, and things will pick up again soon, I promise <img src="i/expressions/face-icon-small-wink.gif" border="0">

Congrats on being home!!! You've been through a lot lately and deserve to just relax and enjoy this time now. Hope you have a great holiday!
 

NYCLawGirl

New member
I find that in general as I get older (and my lung health declines) it is more and more difficult to recover from ANY exacerbation, whether I start out in the hospital or do it all from home. Remember that the drugs are hard on your system also, so it's normal to need some "recovery" time not only from the infection, but from the meds. Not to mention the fact that hospitals can be STRESSFUL and difficult in terms of eating, sleeping, and just plain old anxiety. Take your time, give yourself some space, and things will pick up again soon, I promise <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />Congrats on being home!!! You've been through a lot lately and deserve to just relax and enjoy this time now. Hope you have a great holiday!
 
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