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I am sad

C

CFTEAMA

New member
I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I always have somkind of infection going on. So far this week I con't eat anything. so I am fed thru my g-tube becuase everything I eat blockeds me up if I don't. I have muucus mucus and more mucus that comes out with my stools and I cough awful when I do my treatments. Sometimes I get 1/4 cup of lung mucus everyday. I just feel like this diease is getting me. Yesterday I was crying and the sun came out as I cryed. My lungs feel awful most of the time. So I just need some people to take to about this. Whats going on with me?? I have been told by the doctors that there is nothing more they can do for me but IV's.
--------------------------------------------
20 w/CF DDF508
 
C

CFTEAMA

New member
I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I always have somkind of infection going on. So far this week I con't eat anything. so I am fed thru my g-tube becuase everything I eat blockeds me up if I don't. I have muucus mucus and more mucus that comes out with my stools and I cough awful when I do my treatments. Sometimes I get 1/4 cup of lung mucus everyday. I just feel like this diease is getting me. Yesterday I was crying and the sun came out as I cryed. My lungs feel awful most of the time. So I just need some people to take to about this. Whats going on with me?? I have been told by the doctors that there is nothing more they can do for me but IV's.
--------------------------------------------
20 w/CF DDF508
 
C

CFTEAMA

New member
I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I always have somkind of infection going on. So far this week I con't eat anything. so I am fed thru my g-tube becuase everything I eat blockeds me up if I don't. I have muucus mucus and more mucus that comes out with my stools and I cough awful when I do my treatments. Sometimes I get 1/4 cup of lung mucus everyday. I just feel like this diease is getting me. Yesterday I was crying and the sun came out as I cryed. My lungs feel awful most of the time. So I just need some people to take to about this. Whats going on with me?? I have been told by the doctors that there is nothing more they can do for me but IV's.
--------------------------------------------
20 w/CF DDF508
 
C

CFTEAMA

New member
I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I always have somkind of infection going on. So far this week I con't eat anything. so I am fed thru my g-tube becuase everything I eat blockeds me up if I don't. I have muucus mucus and more mucus that comes out with my stools and I cough awful when I do my treatments. Sometimes I get 1/4 cup of lung mucus everyday. I just feel like this diease is getting me. Yesterday I was crying and the sun came out as I cryed. My lungs feel awful most of the time. So I just need some people to take to about this. Whats going on with me?? I have been told by the doctors that there is nothing more they can do for me but IV's.
--------------------------------------------
20 w/CF DDF508
 
C

CFTEAMA

New member
I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I always have somkind of infection going on. So far this week I con't eat anything. so I am fed thru my g-tube becuase everything I eat blockeds me up if I don't. I have muucus mucus and more mucus that comes out with my stools and I cough awful when I do my treatments. Sometimes I get 1/4 cup of lung mucus everyday. I just feel like this diease is getting me. Yesterday I was crying and the sun came out as I cryed. My lungs feel awful most of the time. So I just need some people to take to about this. Whats going on with me?? I have been told by the doctors that there is nothing more they can do for me but IV's.
<br />--------------------------------------------
<br />20 w/CF DDF508
 
J

Jane

Digital opinion leader
Sarah, I don't have any words that can make you feel, but please know my heart is with you. Keep writing to us to vent if that helps.

The sun coming out was a special sign. <img src="i/expressions/sun.gif" border="0"> Maybe some good news is on the way. Hugs from me too.
 
J

Jane

Digital opinion leader
Sarah, I don't have any words that can make you feel, but please know my heart is with you. Keep writing to us to vent if that helps.

The sun coming out was a special sign. <img src="i/expressions/sun.gif" border="0"> Maybe some good news is on the way. Hugs from me too.
 
J

Jane

Digital opinion leader
Sarah, I don't have any words that can make you feel, but please know my heart is with you. Keep writing to us to vent if that helps.

The sun coming out was a special sign. <img src="i/expressions/sun.gif" border="0"> Maybe some good news is on the way. Hugs from me too.
 
J

Jane

Digital opinion leader
Sarah, I don't have any words that can make you feel, but please know my heart is with you. Keep writing to us to vent if that helps.

The sun coming out was a special sign. <img src="i/expressions/sun.gif" border="0"> Maybe some good news is on the way. Hugs from me too.
 
J

Jane

Digital opinion leader
Sarah, I don't have any words that can make you feel, but please know my heart is with you. Keep writing to us to vent if that helps.
<br />
<br />The sun coming out was a special sign. <img src="i/expressions/sun.gif" border="0"> Maybe some good news is on the way. Hugs from me too.
 
C

catboogie

New member
Hey Sarah,

I feel for you girl. Sounds like life is really hard for you right now and I HATE that for you.

I know it sounds crazy, but if you can muster up some energy to take even a short walk each day (I know, it's hard to feel like you have energy, but part of the battle is mental) you will feel better. You will also likely have an easier time clearing secretions.

Good luck, we'll be thinking of you...
 
C

catboogie

New member
Hey Sarah,

I feel for you girl. Sounds like life is really hard for you right now and I HATE that for you.

I know it sounds crazy, but if you can muster up some energy to take even a short walk each day (I know, it's hard to feel like you have energy, but part of the battle is mental) you will feel better. You will also likely have an easier time clearing secretions.

Good luck, we'll be thinking of you...
 
C

catboogie

New member
Hey Sarah,

I feel for you girl. Sounds like life is really hard for you right now and I HATE that for you.

I know it sounds crazy, but if you can muster up some energy to take even a short walk each day (I know, it's hard to feel like you have energy, but part of the battle is mental) you will feel better. You will also likely have an easier time clearing secretions.

Good luck, we'll be thinking of you...
 
C

catboogie

New member
Hey Sarah,

I feel for you girl. Sounds like life is really hard for you right now and I HATE that for you.

I know it sounds crazy, but if you can muster up some energy to take even a short walk each day (I know, it's hard to feel like you have energy, but part of the battle is mental) you will feel better. You will also likely have an easier time clearing secretions.

Good luck, we'll be thinking of you...
 
C

catboogie

New member
Hey Sarah,
<br />
<br />I feel for you girl. Sounds like life is really hard for you right now and I HATE that for you.
<br />
<br />I know it sounds crazy, but if you can muster up some energy to take even a short walk each day (I know, it's hard to feel like you have energy, but part of the battle is mental) you will feel better. You will also likely have an easier time clearing secretions.
<br />
<br />Good luck, we'll be thinking of you...
<br />
<br />
 
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