I am sad

[Ricky123]

try to be positive,no matter how how hard things may seem for you there is always someone worser off than you,
most people that come on this exellent site for people with cf iam sure have suffered emotionally at some point from having this difficult disease,so you are not alone in your suffering,

all the best and i hope things take a turn for the better

good luck and try to be positive

 

[Ricky123]

try to be positive,no matter how how hard things may seem for you there is always someone worser off than you,
most people that come on this exellent site for people with cf iam sure have suffered emotionally at some point from having this difficult disease,so you are not alone in your suffering,

all the best and i hope things take a turn for the better

good luck and try to be positive

 

[Ricky123]

try to be positive,no matter how how hard things may seem for you there is always someone worser off than you,
most people that come on this exellent site for people with cf iam sure have suffered emotionally at some point from having this difficult disease,so you are not alone in your suffering,

all the best and i hope things take a turn for the better

good luck and try to be positive

 

[Ricky123]

try to be positive,no matter how how hard things may seem for you there is always someone worser off than you,
most people that come on this exellent site for people with cf iam sure have suffered emotionally at some point from having this difficult disease,so you are not alone in your suffering,

all the best and i hope things take a turn for the better

good luck and try to be positive

 

[Ricky123]

try to be positive,no matter how how hard things may seem for you there is always someone worser off than you,
<br />most people that come on this exellent site for people with cf iam sure have suffered emotionally at some point from having this difficult disease,so you are not alone in your suffering,
<br />
<br />all the best and i hope things take a turn for the better
<br />
<br />good luck and try to be positive

 

[Diane]

((((((((HUGGS)))))))) to you Sarah. I know how difficult this illness can be at times and it can really get us down. Keep fighting and dont give up hope. Laura had a good suggestion....If you can get the strength to go for a walk it will do wonders for you, mentally and physically. Sometimes i notice when i walk briskly on my treadmill, i feel clearer in the lungs the next day (probably because i am able to move the crap in my lungs better, from all the heavy breathing) Exercise also helps release endorphins in the blood that are good mood enhancers. A good mood can make you feel better physically as well as mentally. I will say a prayer for you that things get better <img src="i/expressions/heart.gif" border="0">

 

[Diane]

((((((((HUGGS)))))))) to you Sarah. I know how difficult this illness can be at times and it can really get us down. Keep fighting and dont give up hope. Laura had a good suggestion....If you can get the strength to go for a walk it will do wonders for you, mentally and physically. Sometimes i notice when i walk briskly on my treadmill, i feel clearer in the lungs the next day (probably because i am able to move the crap in my lungs better, from all the heavy breathing) Exercise also helps release endorphins in the blood that are good mood enhancers. A good mood can make you feel better physically as well as mentally. I will say a prayer for you that things get better <img src="i/expressions/heart.gif" border="0">

 

[Diane]

((((((((HUGGS)))))))) to you Sarah. I know how difficult this illness can be at times and it can really get us down. Keep fighting and dont give up hope. Laura had a good suggestion....If you can get the strength to go for a walk it will do wonders for you, mentally and physically. Sometimes i notice when i walk briskly on my treadmill, i feel clearer in the lungs the next day (probably because i am able to move the crap in my lungs better, from all the heavy breathing) Exercise also helps release endorphins in the blood that are good mood enhancers. A good mood can make you feel better physically as well as mentally. I will say a prayer for you that things get better <img src="i/expressions/heart.gif" border="0">

 

[Diane]

((((((((HUGGS)))))))) to you Sarah. I know how difficult this illness can be at times and it can really get us down. Keep fighting and dont give up hope. Laura had a good suggestion....If you can get the strength to go for a walk it will do wonders for you, mentally and physically. Sometimes i notice when i walk briskly on my treadmill, i feel clearer in the lungs the next day (probably because i am able to move the crap in my lungs better, from all the heavy breathing) Exercise also helps release endorphins in the blood that are good mood enhancers. A good mood can make you feel better physically as well as mentally. I will say a prayer for you that things get better <img src="i/expressions/heart.gif" border="0">

 

[Diane]

((((((((HUGGS)))))))) to you Sarah. I know how difficult this illness can be at times and it can really get us down. Keep fighting and dont give up hope. Laura had a good suggestion....If you can get the strength to go for a walk it will do wonders for you, mentally and physically. Sometimes i notice when i walk briskly on my treadmill, i feel clearer in the lungs the next day (probably because i am able to move the crap in my lungs better, from all the heavy breathing) Exercise also helps release endorphins in the blood that are good mood enhancers. A good mood can make you feel better physically as well as mentally. I will say a prayer for you that things get better <img src="i/expressions/heart.gif" border="0">

 

[Wheezie]

I'm confused - your last thread (from April 23) said your PFT's were 96%, which you said was unusual for you, but even so, you regularly fell within the 50 - 75% range. I know everyone is different in how their disease progresses, but it just seems like very conflicting information to me. When you say you are on IVs every other 4 weeks, is this because of infection/exacerbation, or is it because your physician subscribes to that particular treatment method (regular IVs to prevent ANY infection from EVER setting in - the Dutch method I think it is)? Quite frankly, that is the only reason I can think of that would logically explain why someone with 96% lung function would be on IVs so frequently. If you were getting infections that often, I don't see how your lung function could sustain itself in that range - infections, over time, cause permanent damage.

Nevertheless, I know that each of us deals with our own personal struggles in different ways, and I'm sorry you are feeling so down. I do hope things look up soon for you.

 

[Wheezie]

I'm confused - your last thread (from April 23) said your PFT's were 96%, which you said was unusual for you, but even so, you regularly fell within the 50 - 75% range. I know everyone is different in how their disease progresses, but it just seems like very conflicting information to me. When you say you are on IVs every other 4 weeks, is this because of infection/exacerbation, or is it because your physician subscribes to that particular treatment method (regular IVs to prevent ANY infection from EVER setting in - the Dutch method I think it is)? Quite frankly, that is the only reason I can think of that would logically explain why someone with 96% lung function would be on IVs so frequently. If you were getting infections that often, I don't see how your lung function could sustain itself in that range - infections, over time, cause permanent damage.

Nevertheless, I know that each of us deals with our own personal struggles in different ways, and I'm sorry you are feeling so down. I do hope things look up soon for you.

 

[Wheezie]

I'm confused - your last thread (from April 23) said your PFT's were 96%, which you said was unusual for you, but even so, you regularly fell within the 50 - 75% range. I know everyone is different in how their disease progresses, but it just seems like very conflicting information to me. When you say you are on IVs every other 4 weeks, is this because of infection/exacerbation, or is it because your physician subscribes to that particular treatment method (regular IVs to prevent ANY infection from EVER setting in - the Dutch method I think it is)? Quite frankly, that is the only reason I can think of that would logically explain why someone with 96% lung function would be on IVs so frequently. If you were getting infections that often, I don't see how your lung function could sustain itself in that range - infections, over time, cause permanent damage.

Nevertheless, I know that each of us deals with our own personal struggles in different ways, and I'm sorry you are feeling so down. I do hope things look up soon for you.

 

[Wheezie]

I'm confused - your last thread (from April 23) said your PFT's were 96%, which you said was unusual for you, but even so, you regularly fell within the 50 - 75% range. I know everyone is different in how their disease progresses, but it just seems like very conflicting information to me. When you say you are on IVs every other 4 weeks, is this because of infection/exacerbation, or is it because your physician subscribes to that particular treatment method (regular IVs to prevent ANY infection from EVER setting in - the Dutch method I think it is)? Quite frankly, that is the only reason I can think of that would logically explain why someone with 96% lung function would be on IVs so frequently. If you were getting infections that often, I don't see how your lung function could sustain itself in that range - infections, over time, cause permanent damage.

Nevertheless, I know that each of us deals with our own personal struggles in different ways, and I'm sorry you are feeling so down. I do hope things look up soon for you.

 

[Wheezie]

I'm confused - your last thread (from April 23) said your PFT's were 96%, which you said was unusual for you, but even so, you regularly fell within the 50 - 75% range. I know everyone is different in how their disease progresses, but it just seems like very conflicting information to me. When you say you are on IVs every other 4 weeks, is this because of infection/exacerbation, or is it because your physician subscribes to that particular treatment method (regular IVs to prevent ANY infection from EVER setting in - the Dutch method I think it is)? Quite frankly, that is the only reason I can think of that would logically explain why someone with 96% lung function would be on IVs so frequently. If you were getting infections that often, I don't see how your lung function could sustain itself in that range - infections, over time, cause permanent damage.
<br />
<br />Nevertheless, I know that each of us deals with our own personal struggles in different ways, and I'm sorry you are feeling so down. I do hope things look up soon for you.

 

[AnD]

Just a thought, but if you post your daily treatment routine, the bugs you culture, and your meds that you are on, there may be someone (or a several people) who can make suggestions to help you get things sorted out, and see if there is anything new/different to try...I'm sorry you are having a rough time.

 

[AnD]

Just a thought, but if you post your daily treatment routine, the bugs you culture, and your meds that you are on, there may be someone (or a several people) who can make suggestions to help you get things sorted out, and see if there is anything new/different to try...I'm sorry you are having a rough time.

 

[AnD]

Just a thought, but if you post your daily treatment routine, the bugs you culture, and your meds that you are on, there may be someone (or a several people) who can make suggestions to help you get things sorted out, and see if there is anything new/different to try...I'm sorry you are having a rough time.

 

[AnD]

Just a thought, but if you post your daily treatment routine, the bugs you culture, and your meds that you are on, there may be someone (or a several people) who can make suggestions to help you get things sorted out, and see if there is anything new/different to try...I'm sorry you are having a rough time.

 

[AnD]

Just a thought, but if you post your daily treatment routine, the bugs you culture, and your meds that you are on, there may be someone (or a several people) who can make suggestions to help you get things sorted out, and see if there is anything new/different to try...I'm sorry you are having a rough time.