I have not been doing my inhaled meds/physio

[lightNlife]

I think we've all been in your situation. I know I sure was. One of the things that was a wake up call for me was when CF friend of mine was dismissed from my clinic's care for his refusal to cooperate. He didn't do his treatments, he didn't eat right or take care of himself at all. The docs told him that if he wasn't going to put in the effort, then they weren't either. He was referred to a different doctor.

4 months later, he died.

I know that the treatments are overwhelming and time consuming. I used to think that so long as I was doing "okay" then I really didn't need to do much work to take care of myself. When I finally DID take care of myself, I saw how crappy my "okay" had truly been. I was truly shocked by how much better I began to feel.

CF is complicated. You know that. We all struggle with it in different ways. Even when we do our absolute best to take care of ourselves, CF sometimes does its own thing.

Why even bother at all then? Here's why: Because the burden of CF alone is tough to bear. Imagine carrying the burden of guilt of knowing you could have done better.

The fact that you were honest enough to share about your non-compliance demonstrates that part of you knows you HAVE to do the right thing before it all gets out of hand. You may be feeling like you'll be giving something up by doing all the treatments all the time. That's normal. We all have other things we'd rather be doing than sucking down meds and coughing out our guts. But think of it this way: you stand to gain far more by being compliant.

Lately I've come to see that I'm not losing time, but investing in it. Like most investments it's not a guarantee. Nontheless, I invest my time doing treatments in the hopes that it will translate into a payo of of more time to spend doing the things I enjoy--like being my husband's lover and best friend.

Best wishes to you, my anonymous friend. Take care of yourself.

-Lauren

 

[lightNlife]

I think we've all been in your situation. I know I sure was. One of the things that was a wake up call for me was when CF friend of mine was dismissed from my clinic's care for his refusal to cooperate. He didn't do his treatments, he didn't eat right or take care of himself at all. The docs told him that if he wasn't going to put in the effort, then they weren't either. He was referred to a different doctor.

4 months later, he died.

I know that the treatments are overwhelming and time consuming. I used to think that so long as I was doing "okay" then I really didn't need to do much work to take care of myself. When I finally DID take care of myself, I saw how crappy my "okay" had truly been. I was truly shocked by how much better I began to feel.

CF is complicated. You know that. We all struggle with it in different ways. Even when we do our absolute best to take care of ourselves, CF sometimes does its own thing.

Why even bother at all then? Here's why: Because the burden of CF alone is tough to bear. Imagine carrying the burden of guilt of knowing you could have done better.

The fact that you were honest enough to share about your non-compliance demonstrates that part of you knows you HAVE to do the right thing before it all gets out of hand. You may be feeling like you'll be giving something up by doing all the treatments all the time. That's normal. We all have other things we'd rather be doing than sucking down meds and coughing out our guts. But think of it this way: you stand to gain far more by being compliant.

Lately I've come to see that I'm not losing time, but investing in it. Like most investments it's not a guarantee. Nontheless, I invest my time doing treatments in the hopes that it will translate into a payo of of more time to spend doing the things I enjoy--like being my husband's lover and best friend.

Best wishes to you, my anonymous friend. Take care of yourself.

-Lauren

 

[CyndiW555]

Wow, I was you for a while. I was very stressed and didn't know why. I didn't do my meds and didn't know why. I asked, Why doesn't my hubby care? He never helps me. The first thing i did was deal with the stress. I found a great person to speek with and a great pill. I went through 3 drs. and 3 pills and about 5 years to get the person and pill right. I am not saying you need more meds to take, just start talking to someone.

I realized, mostly by my self, that no one is going to care. Just me, that is all I have. Yes I have a family, but other people can't make you happy. Oprah says it. Soul mate??? no, your only soul mate is the one you have in side of you. Take your 5 year old self out to the fridge after you are done reading this and breath in one thing today and for the next 5 days. Then have 1 day off. Only one a week. then you can go to only one day off every 2 weeks. Somedays I pick the day and some days they just happen. Only I can do them only I can decide not to do them.

as amy says something like who is going to care about your health? Just you!

Now get up, just go and do it. You get to pick which you do and how many times this month. Then make sure you do more next month. I promise you, you will love yourself more every day and you will love looking at the 5 year old inside and someday you can say look at how far we have come! NOW GO! NO whining.

 

[CyndiW555]

Wow, I was you for a while. I was very stressed and didn't know why. I didn't do my meds and didn't know why. I asked, Why doesn't my hubby care? He never helps me. The first thing i did was deal with the stress. I found a great person to speek with and a great pill. I went through 3 drs. and 3 pills and about 5 years to get the person and pill right. I am not saying you need more meds to take, just start talking to someone.

I realized, mostly by my self, that no one is going to care. Just me, that is all I have. Yes I have a family, but other people can't make you happy. Oprah says it. Soul mate??? no, your only soul mate is the one you have in side of you. Take your 5 year old self out to the fridge after you are done reading this and breath in one thing today and for the next 5 days. Then have 1 day off. Only one a week. then you can go to only one day off every 2 weeks. Somedays I pick the day and some days they just happen. Only I can do them only I can decide not to do them.

as amy says something like who is going to care about your health? Just you!

Now get up, just go and do it. You get to pick which you do and how many times this month. Then make sure you do more next month. I promise you, you will love yourself more every day and you will love looking at the 5 year old inside and someday you can say look at how far we have come! NOW GO! NO whining.

 

[CyndiW555]

Wow, I was you for a while. I was very stressed and didn't know why. I didn't do my meds and didn't know why. I asked, Why doesn't my hubby care? He never helps me. The first thing i did was deal with the stress. I found a great person to speek with and a great pill. I went through 3 drs. and 3 pills and about 5 years to get the person and pill right. I am not saying you need more meds to take, just start talking to someone.

I realized, mostly by my self, that no one is going to care. Just me, that is all I have. Yes I have a family, but other people can't make you happy. Oprah says it. Soul mate??? no, your only soul mate is the one you have in side of you. Take your 5 year old self out to the fridge after you are done reading this and breath in one thing today and for the next 5 days. Then have 1 day off. Only one a week. then you can go to only one day off every 2 weeks. Somedays I pick the day and some days they just happen. Only I can do them only I can decide not to do them.

as amy says something like who is going to care about your health? Just you!

Now get up, just go and do it. You get to pick which you do and how many times this month. Then make sure you do more next month. I promise you, you will love yourself more every day and you will love looking at the 5 year old inside and someday you can say look at how far we have come! NOW GO! NO whining.

 

[dasjsmum]

[

Lately I've come to see that I'm not losing time, but investing in it. Like most investments it's not a guarantee. Nontheless, I invest my time doing treatments in the hopes that it will translate into a payo of of more time to spend doing the things I enjoy--like being my husband's lover and best friend.



Best wishes to you, my anonymous friend. Take care of yourself.



-Lauren</end quote></div>

Well said! I loved your comment and attitude. Sorry this above is a quote from Lauren, dont know if I've done it properly!

 

[dasjsmum]

[

Lately I've come to see that I'm not losing time, but investing in it. Like most investments it's not a guarantee. Nontheless, I invest my time doing treatments in the hopes that it will translate into a payo of of more time to spend doing the things I enjoy--like being my husband's lover and best friend.



Best wishes to you, my anonymous friend. Take care of yourself.



-Lauren</end quote></div>

Well said! I loved your comment and attitude. Sorry this above is a quote from Lauren, dont know if I've done it properly!

 

[dasjsmum]

[

Lately I've come to see that I'm not losing time, but investing in it. Like most investments it's not a guarantee. Nontheless, I invest my time doing treatments in the hopes that it will translate into a payo of of more time to spend doing the things I enjoy--like being my husband's lover and best friend.



Best wishes to you, my anonymous friend. Take care of yourself.



-Lauren</end quote></div>

Well said! I loved your comment and attitude. Sorry this above is a quote from Lauren, dont know if I've done it properly!

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>


It's like I need to be treated like a 5 year old......someone needs to take me by my hand and stay with me until I'm done. But I have no one in my life to do that for me....no one to ask...."did you do your med's yet today? want help with your physio?" No one in my house even noticed that me med supply in the fridge has not moved in over a month...and it's on the top shelf!


Someone please pick my brain for me and give me some insight?????????</end quote></div>



I think the above paragraph might show why you are not compliant. YOu are seeign if anyone will notice. Perhaps you are depressed and thinking noone cares abotu what you are doing so you are testing this out by seeing if anyone 'notices'? Perhaps in addition to seekign some counseling which--let's face it we all need now and then you could talk with whomever you live with and ask them to be a bit 'naggy' on you? Or you could use the checklist liek soemone mentioned, put it on the fridge and tell your live in mates why so they can see it and ask you about all the blank spots?

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>


It's like I need to be treated like a 5 year old......someone needs to take me by my hand and stay with me until I'm done. But I have no one in my life to do that for me....no one to ask...."did you do your med's yet today? want help with your physio?" No one in my house even noticed that me med supply in the fridge has not moved in over a month...and it's on the top shelf!


Someone please pick my brain for me and give me some insight?????????</end quote></div>



I think the above paragraph might show why you are not compliant. YOu are seeign if anyone will notice. Perhaps you are depressed and thinking noone cares abotu what you are doing so you are testing this out by seeing if anyone 'notices'? Perhaps in addition to seekign some counseling which--let's face it we all need now and then you could talk with whomever you live with and ask them to be a bit 'naggy' on you? Or you could use the checklist liek soemone mentioned, put it on the fridge and tell your live in mates why so they can see it and ask you about all the blank spots?

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>


It's like I need to be treated like a 5 year old......someone needs to take me by my hand and stay with me until I'm done. But I have no one in my life to do that for me....no one to ask...."did you do your med's yet today? want help with your physio?" No one in my house even noticed that me med supply in the fridge has not moved in over a month...and it's on the top shelf!


Someone please pick my brain for me and give me some insight?????????</end quote></div>



I think the above paragraph might show why you are not compliant. YOu are seeign if anyone will notice. Perhaps you are depressed and thinking noone cares abotu what you are doing so you are testing this out by seeing if anyone 'notices'? Perhaps in addition to seekign some counseling which--let's face it we all need now and then you could talk with whomever you live with and ask them to be a bit 'naggy' on you? Or you could use the checklist liek soemone mentioned, put it on the fridge and tell your live in mates why so they can see it and ask you about all the blank spots?