I have come to a dead end with no one else with any experience to ask, so I thought of you. But I come to you HUMBLY because my daughter's problems pale in comparison to what you probably deal with daily. However, if you find it in your heart to spare a little time or insight, I'd greatly appreciate it.
I struggle so much with how hard to push for answers for my daughter. In a nutshell (and you might remember her story), she has had foamy, floating stool since she was a toddler (now 7 years old) and a confirmed fat malabsorption test. (But it was just the simple one.) Doctors have ruled out celiac's and crohn's by biopsies and blood tests. She has had 3 significant episodes of GI bleeding in past years. During one of her colonoscopies, doctor found a strange purple lesion that he had never seen before and could not label. When they went in for surgery a month later to remove that part of her intestine, there was a neat little scar in its place. Half a year later after bleeding a little bit every day for more than a month, another colonscopy found neutrophilic infiltration and colitis. Yet they ruled out inflammatory bowel disease.
Now, HERE'S WHERE I COME TO YOU WITH A FEW QUESTIONS. We just received a negative Ambry amplified genetic test for CF. I had told myself before the results came in that if they were negative, we were DONE, DONE, DONE with all the testing we have put my daughter through. We will STOP trying to find answers. We ought to be so relieved that it's probably not CF. (Her sweat tests were borderline- at least that what her doc called them - 32/33). So tonight, once again, my daughter calls me into the bathroom and there are FOAMY, WHITE BUBBLES floating all over the toilet water. And I know it's coming from her digestive system (not cleaning agents!) because when I go to wipe her, there's more bubbles that look like a dollop of whipped cream on her "poo hole", for lack of a less tacky term! Then another episode later, there are floating "blobs" of orange in the toilet. Not like an oil slick...but like "blobs." This has been typical of her for years now when she is having problems. IS THIS FAT MALABSORPTION? I feel like a "looney" mom sometimes... WHO describes that their kid is blowing bubbles out their rear end?!! IS THIS NORMAL? I just want to find a mom that will tell me that healthy kids just do this sometimes - don't worry. OR, if this is fat malabsorption, I need to know. That's why I'm asking you, since you often deal with fat malabsorption. Have you ever seen this in your child?
I've been told that fat malabsorption in children is not common, or if it occurs, it's almost always because of CF or Celiacs or Crohn's. Well, we've ruled these out. Can you see why I'm frustrated? Can you see why I come to you wanting to know if my daughter truly HAS fat malabsorption??? Should I just drop the whole thing and stop worrying?
WOW,IF ANYONE HAS STUCK WITH THIS LONG MESSAGE and not stopped reading halfway through, I thank you so much for your time! Please help relieve a mom's spinning mind and if you have any insight at all about the fat malabsorption thing, it is much appreciated!
I struggle so much with how hard to push for answers for my daughter. In a nutshell (and you might remember her story), she has had foamy, floating stool since she was a toddler (now 7 years old) and a confirmed fat malabsorption test. (But it was just the simple one.) Doctors have ruled out celiac's and crohn's by biopsies and blood tests. She has had 3 significant episodes of GI bleeding in past years. During one of her colonoscopies, doctor found a strange purple lesion that he had never seen before and could not label. When they went in for surgery a month later to remove that part of her intestine, there was a neat little scar in its place. Half a year later after bleeding a little bit every day for more than a month, another colonscopy found neutrophilic infiltration and colitis. Yet they ruled out inflammatory bowel disease.
Now, HERE'S WHERE I COME TO YOU WITH A FEW QUESTIONS. We just received a negative Ambry amplified genetic test for CF. I had told myself before the results came in that if they were negative, we were DONE, DONE, DONE with all the testing we have put my daughter through. We will STOP trying to find answers. We ought to be so relieved that it's probably not CF. (Her sweat tests were borderline- at least that what her doc called them - 32/33). So tonight, once again, my daughter calls me into the bathroom and there are FOAMY, WHITE BUBBLES floating all over the toilet water. And I know it's coming from her digestive system (not cleaning agents!) because when I go to wipe her, there's more bubbles that look like a dollop of whipped cream on her "poo hole", for lack of a less tacky term! Then another episode later, there are floating "blobs" of orange in the toilet. Not like an oil slick...but like "blobs." This has been typical of her for years now when she is having problems. IS THIS FAT MALABSORPTION? I feel like a "looney" mom sometimes... WHO describes that their kid is blowing bubbles out their rear end?!! IS THIS NORMAL? I just want to find a mom that will tell me that healthy kids just do this sometimes - don't worry. OR, if this is fat malabsorption, I need to know. That's why I'm asking you, since you often deal with fat malabsorption. Have you ever seen this in your child?
I've been told that fat malabsorption in children is not common, or if it occurs, it's almost always because of CF or Celiacs or Crohn's. Well, we've ruled these out. Can you see why I'm frustrated? Can you see why I come to you wanting to know if my daughter truly HAS fat malabsorption??? Should I just drop the whole thing and stop worrying?
WOW,IF ANYONE HAS STUCK WITH THIS LONG MESSAGE and not stopped reading halfway through, I thank you so much for your time! Please help relieve a mom's spinning mind and if you have any insight at all about the fat malabsorption thing, it is much appreciated!