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I'm stumped..

T

TonyaH

Guest
I am looking for advice/suggestions from anyone with ideas. Andrew is two and a half weeks into tobra and ceftaz ivs. A few days ago he developed chest pains, some quite severe, others just a dull ache. He says his lungs feel heavy. We have tried and tried, but other than a plug yesterday, I don't think he has much more to cough out. The clinic had us try extra cpt, etc, for a couple of days, but when his low-grade fevers (99.5-100.8), spiked up to 102.6 on Thursday night, I knew we were going in regardless to see the doc on Friday. Our doctor is out of town this week, so we saw someone else who we really like, but I am stumped. While we were at the hospital, he made this miraculous recovery...felt great, no chest pain, no fever (although I had given him Tylenol), his xrays showed improvement, his pfts were great...The doctor actually wanted to pull the picc early because his lungs sounded so good. She said the line may be infected, causing the fevers.

I said I wouldn't pull the line until we could prove it was infected. They ran cultures on the line and so far no infection has shown up. I was hesitant to pull the line iwthout knowing exactly what is cuasing this chest pain and fever. I just feel like there is something more going on. And of course, within two hours of being home, the fever came back and the chest pain started again.

Any thoughts? No pleurisy, no pneumothorax, xrays look better,,I'm completely stumped! Is there anything I may be missing? My instinct says it's a different infection, but his films look good. If you have made it this far in my post, you deserve a reward! Thanks!
 
T

TonyaH

Guest
I am looking for advice/suggestions from anyone with ideas. Andrew is two and a half weeks into tobra and ceftaz ivs. A few days ago he developed chest pains, some quite severe, others just a dull ache. He says his lungs feel heavy. We have tried and tried, but other than a plug yesterday, I don't think he has much more to cough out. The clinic had us try extra cpt, etc, for a couple of days, but when his low-grade fevers (99.5-100.8), spiked up to 102.6 on Thursday night, I knew we were going in regardless to see the doc on Friday. Our doctor is out of town this week, so we saw someone else who we really like, but I am stumped. While we were at the hospital, he made this miraculous recovery...felt great, no chest pain, no fever (although I had given him Tylenol), his xrays showed improvement, his pfts were great...The doctor actually wanted to pull the picc early because his lungs sounded so good. She said the line may be infected, causing the fevers.

I said I wouldn't pull the line until we could prove it was infected. They ran cultures on the line and so far no infection has shown up. I was hesitant to pull the line iwthout knowing exactly what is cuasing this chest pain and fever. I just feel like there is something more going on. And of course, within two hours of being home, the fever came back and the chest pain started again.

Any thoughts? No pleurisy, no pneumothorax, xrays look better,,I'm completely stumped! Is there anything I may be missing? My instinct says it's a different infection, but his films look good. If you have made it this far in my post, you deserve a reward! Thanks!
 
T

TonyaH

Guest
I am looking for advice/suggestions from anyone with ideas. Andrew is two and a half weeks into tobra and ceftaz ivs. A few days ago he developed chest pains, some quite severe, others just a dull ache. He says his lungs feel heavy. We have tried and tried, but other than a plug yesterday, I don't think he has much more to cough out. The clinic had us try extra cpt, etc, for a couple of days, but when his low-grade fevers (99.5-100.8), spiked up to 102.6 on Thursday night, I knew we were going in regardless to see the doc on Friday. Our doctor is out of town this week, so we saw someone else who we really like, but I am stumped. While we were at the hospital, he made this miraculous recovery...felt great, no chest pain, no fever (although I had given him Tylenol), his xrays showed improvement, his pfts were great...The doctor actually wanted to pull the picc early because his lungs sounded so good. She said the line may be infected, causing the fevers.

I said I wouldn't pull the line until we could prove it was infected. They ran cultures on the line and so far no infection has shown up. I was hesitant to pull the line iwthout knowing exactly what is cuasing this chest pain and fever. I just feel like there is something more going on. And of course, within two hours of being home, the fever came back and the chest pain started again.

Any thoughts? No pleurisy, no pneumothorax, xrays look better,,I'm completely stumped! Is there anything I may be missing? My instinct says it's a different infection, but his films look good. If you have made it this far in my post, you deserve a reward! Thanks!
 
T

TonyaH

Guest
I am looking for advice/suggestions from anyone with ideas. Andrew is two and a half weeks into tobra and ceftaz ivs. A few days ago he developed chest pains, some quite severe, others just a dull ache. He says his lungs feel heavy. We have tried and tried, but other than a plug yesterday, I don't think he has much more to cough out. The clinic had us try extra cpt, etc, for a couple of days, but when his low-grade fevers (99.5-100.8), spiked up to 102.6 on Thursday night, I knew we were going in regardless to see the doc on Friday. Our doctor is out of town this week, so we saw someone else who we really like, but I am stumped. While we were at the hospital, he made this miraculous recovery...felt great, no chest pain, no fever (although I had given him Tylenol), his xrays showed improvement, his pfts were great...The doctor actually wanted to pull the picc early because his lungs sounded so good. She said the line may be infected, causing the fevers.

I said I wouldn't pull the line until we could prove it was infected. They ran cultures on the line and so far no infection has shown up. I was hesitant to pull the line iwthout knowing exactly what is cuasing this chest pain and fever. I just feel like there is something more going on. And of course, within two hours of being home, the fever came back and the chest pain started again.

Any thoughts? No pleurisy, no pneumothorax, xrays look better,,I'm completely stumped! Is there anything I may be missing? My instinct says it's a different infection, but his films look good. If you have made it this far in my post, you deserve a reward! Thanks!
 
T

TonyaH

Guest
I am looking for advice/suggestions from anyone with ideas. Andrew is two and a half weeks into tobra and ceftaz ivs. A few days ago he developed chest pains, some quite severe, others just a dull ache. He says his lungs feel heavy. We have tried and tried, but other than a plug yesterday, I don't think he has much more to cough out. The clinic had us try extra cpt, etc, for a couple of days, but when his low-grade fevers (99.5-100.8), spiked up to 102.6 on Thursday night, I knew we were going in regardless to see the doc on Friday. Our doctor is out of town this week, so we saw someone else who we really like, but I am stumped. While we were at the hospital, he made this miraculous recovery...felt great, no chest pain, no fever (although I had given him Tylenol), his xrays showed improvement, his pfts were great...The doctor actually wanted to pull the picc early because his lungs sounded so good. She said the line may be infected, causing the fevers.
<br />
<br />I said I wouldn't pull the line until we could prove it was infected. They ran cultures on the line and so far no infection has shown up. I was hesitant to pull the line iwthout knowing exactly what is cuasing this chest pain and fever. I just feel like there is something more going on. And of course, within two hours of being home, the fever came back and the chest pain started again.
<br />
<br />Any thoughts? No pleurisy, no pneumothorax, xrays look better,,I'm completely stumped! Is there anything I may be missing? My instinct says it's a different infection, but his films look good. If you have made it this far in my post, you deserve a reward! Thanks!
 
L

LouLou

New member
Not that this sounds like or not like a mycobacterium infection necessarily but from my adult cf experience whenever weird things happen with our lungs docs always want to make sure they have a recent myco culture. When was his last myco culture? This is not a test that is incl. with the regular quarterly cultures.
 
L

LouLou

New member
Not that this sounds like or not like a mycobacterium infection necessarily but from my adult cf experience whenever weird things happen with our lungs docs always want to make sure they have a recent myco culture. When was his last myco culture? This is not a test that is incl. with the regular quarterly cultures.
 
L

LouLou

New member
Not that this sounds like or not like a mycobacterium infection necessarily but from my adult cf experience whenever weird things happen with our lungs docs always want to make sure they have a recent myco culture. When was his last myco culture? This is not a test that is incl. with the regular quarterly cultures.
 
L

LouLou

New member
Not that this sounds like or not like a mycobacterium infection necessarily but from my adult cf experience whenever weird things happen with our lungs docs always want to make sure they have a recent myco culture. When was his last myco culture? This is not a test that is incl. with the regular quarterly cultures.
 
L

LouLou

New member
Not that this sounds like or not like a mycobacterium infection necessarily but from my adult cf experience whenever weird things happen with our lungs docs always want to make sure they have a recent myco culture. When was his last myco culture? This is not a test that is incl. with the regular quarterly cultures.
 
T

TonyaH

Guest
Mel, the fever didn't start until two weeks after he was on the tobra, and no, does not coincide only with his tobra run.

louLou, this is interesting. The doctor yesterday mentioned a nodule that has been on his xray for months,,,it's not a new thing, but that it is often seen in pts with a mycobacteria. He has never been tested for one, he always has the regular culture done. It's been in the back of my mind. But if this exacerbation was caused by a mycobacteria, why would his xray be showing improvement? Thanks so much for your thoughts!
 
T

TonyaH

Guest
Mel, the fever didn't start until two weeks after he was on the tobra, and no, does not coincide only with his tobra run.

louLou, this is interesting. The doctor yesterday mentioned a nodule that has been on his xray for months,,,it's not a new thing, but that it is often seen in pts with a mycobacteria. He has never been tested for one, he always has the regular culture done. It's been in the back of my mind. But if this exacerbation was caused by a mycobacteria, why would his xray be showing improvement? Thanks so much for your thoughts!
 
T

TonyaH

Guest
Mel, the fever didn't start until two weeks after he was on the tobra, and no, does not coincide only with his tobra run.

louLou, this is interesting. The doctor yesterday mentioned a nodule that has been on his xray for months,,,it's not a new thing, but that it is often seen in pts with a mycobacteria. He has never been tested for one, he always has the regular culture done. It's been in the back of my mind. But if this exacerbation was caused by a mycobacteria, why would his xray be showing improvement? Thanks so much for your thoughts!
 
T

TonyaH

Guest
Mel, the fever didn't start until two weeks after he was on the tobra, and no, does not coincide only with his tobra run.

louLou, this is interesting. The doctor yesterday mentioned a nodule that has been on his xray for months,,,it's not a new thing, but that it is often seen in pts with a mycobacteria. He has never been tested for one, he always has the regular culture done. It's been in the back of my mind. But if this exacerbation was caused by a mycobacteria, why would his xray be showing improvement? Thanks so much for your thoughts!
 
T

TonyaH

Guest
Mel, the fever didn't start until two weeks after he was on the tobra, and no, does not coincide only with his tobra run.
<br />
<br />louLou, this is interesting. The doctor yesterday mentioned a nodule that has been on his xray for months,,,it's not a new thing, but that it is often seen in pts with a mycobacteria. He has never been tested for one, he always has the regular culture done. It's been in the back of my mind. But if this exacerbation was caused by a mycobacteria, why would his xray be showing improvement? Thanks so much for your thoughts!
 
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