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In need of some good thoughts

J

julie

New member
I am definately going to put a message in the prayer topic, but for those that don't check it-I wanted to post something here.

As many of you know, Mark and I have been working towards In Vitro Fertilization (IVF) for almost 2 years now. Each time we get close to having enough money, something happens, like $2500 worth of car repairs or a car dies and needs a brand new engine.... so it keeps getting postponed. Prior to that, Mark's hormone levels were "misbehaving" and before we could do the treatment he had to have a solid 3 months of medication and then a solid 3 months of normal hormone levels and then all the financial stuff started happening. I do believe everything happens for a reason and out of this, I was able to select orders to Washington State, which is what we really wanted. Especially so if we are going to start a family because Mark's parents and My parents live in Washington. So, there has been good out of all the postponements.

In August we applied for a <i>from INCIID the Heart</i>, the first National IVF scholarship (.<a target=new class=ftalternatingbarlinklarge href="http://www.inciid.org/faq.php?cat=infertility101&id=22">http://www.inciid.org/faq.php?cat=infertility101&id=22</a>) I recieved a very exciting and encouraging email yesterday. We have not been selected yet, but I wanted to share the email and ask for people to keep us in their thoughts and prayers about this matter, please!

<blockquote>Quote<br><hr>I wanted to let you know that your application for the From INCIID the Heart program has been processed, found to be complete and will be considered by the selection committee in late December. If the committee has further questions, we will let you know as soon as possible. We will notify you of their decision in early January. Regards, Linda<hr></blockquote>

I will of course keep everyone posted when we recieve information about whether or not we are selected. In the meantime, I hope that people can keep us in their thoughts, we want this SO bad!

Thanks everyone!
 
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Emily65Roses

New member
Good thoughts coming your way from me. Kids = awesome. And as I want them too, I can imagine your anxiousness. Hehehehe. <img src="i/expressions/heart.gif" border="0">
 
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anonymous

New member
Julie....

You and Mark will be in my prayers... I also believe that everything has a reason..... I always try to trust in the Lord , i know easier said than done because i also find myself giving my burdens to the Lord and then trying to take care of things myself.... Like i said before.... What a BEAUTIFUL baby the two of you will have

kaitsmom<img src="i/expressions/rose.gif" border="0">
 
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miesl

New member
Much, much luck to you and Mark! Hopefully I'll make one of these posts in the future.

-Michelle
 
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JennifersHope

New member
Julie and Mark,

You will both be in my prayers for this application to go through.. I know the feeling of truly wanting a to be pregnant. I already know in my heart that things are going to work out for you one way or another... I am so excited to see...

Please keeep us posted.....

Hoping for a baby for you in 2006,

Jennifer
 
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az65roses

New member
Hi Julie,

I've been reading these posts for months and really found your last post so touching. I just had to wish you and Mark great luck and success with your invitro. My husband (who doesn't have cf) and I have been trying to get pregnant for the last 1 1/2 years. Talk about an emotional roller coaster ... We've gone through the fertility treatments, the drugs (pills and injections) and have tried insemination a few times without success and now our last step is invitro. So, I can somewhat relate to what you guys are going through with the money issue, emotional issues and whatever else life gives us. I am a firm believer in everything happening for a reason and I believe that you and Mark deserve to be parents, so in saying that I just wanted to tell you that I am hoping and praying for you two. Good Luck!

Stacia
28
w/cf
 
J

julie

New member
Just wanted to share this with you All, INCIID in people Magazine (the one with Brittany and Her husband and new baby on the cover). It talks about their scholarship program. It's a PDF file so it may take a few minutes to show up <a target=new class=ftalternatingbarlinklarge href="http://www.inciid.org/attachments/babylove-people.pdf">http://www.inciid.org/attachments/babylove-people.pdf</a>

Thanks to all who have posted, it's wonderful to know there is support out there. I have recently contacted the CFF about what they are doing for adults with CF since now more than 40% of the pop. living with CF are adults. How are they addressing adult issues, helping older families, reproductive insight/studies. I haven't heard anything back, but then again i just recieved a response from them about CFRD that I sent in September. Amazing.


Thanks to everyone!
 
J

JT

New member
Julie,

You are definitely in our thoughts/prayers.

Regarding the ball not rolling for financial reasons . . . if you're contemplating a move out of state, why not move to one of the states that mandates insurance to coverage IVF? I know a move is a big deal, but so are the costs associated with IVF. I imagine you've thought about and researched all of your options, and am more curious as to what your reasoning is than I actually think you haven't thought of this.

Regards, JT
 
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julie

New member
Believe me, I'd love to move to a state that mandates IVF coverage, and there are bills written in WA just not "ready to go" yet, but I am part of a group advocating for that. I can't move where I want because it's a military move. I had the option of staying in CA or moving to WA, that's it. I can't wait to get out of CA, and our familes are in WA for when I get deployed, so that's better for both of us.
 
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65rosessamurai

Guest
Julie,
First, I'd also like to congradulate you on the good news. I'm sure with your experience, it will most definitely help all the other CF males who wish to have families.

Next, I'd like to inquire about why your move to WA is a military move? Are you in the military, or is Mark in the military?
 
J

julie

New member
I'm in the military, Navy. Mark tried to join the Marines out of High school but made the mistake of disclosing his CF (as he states) and they lead him along for a bit, saying he could join, they would put him on double rations.... then they said he couldn't-he was crushed.

I've been on "shore duty" here in CA for almost 2 years now, and I am due to transfer to "sea duty" for 3 years. That's why we were pushing so hard for the IVF stuff last year (if you read the journal entries on my site, you can see we were scheduled for Feb 05 and then October 05). That way, I could finish out my time on Shore duty (I wasn't "due" to transfer until May 2006 and they would extend that another year if I had a baby), we could have a baby and I could be around for the first year and then go to sea. When the opportunity came up to transfer to WA, I jumped at it, but I had to be willing to transfer in January vice May. I didn't want to be stuck in CA and neither did Mark. So, we set the baby hopes aside for a while and figured we'd do it after I came back from my deployment next year. But now with Mark's graduation coming up, our move and the fact that I didn't realize it was so hard to put my hopes of a baby aside, we decided to have some more testing for Mark here in CA where the military paid for the male portion. When the results of that were normal (normal spermatogenesis), after everything (labs) pointed that they should be nothing/abnormal, I couldn't deny myself the fact that maybe we should continue to pursue the IVF. It surely isn't perfect timing, especially for the pending deployment, which I really want to go on because we are going to some amazing places, but you just can't deny such a heartfelt desire!

Does that answer the question, and then some? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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65rosessamurai

Guest
And then some! (Thanks!)

Actually, I didn't think it would be Mark, because I was also denied when I went that route (actually because they kept knocking on my door), when I mentioned the CF! Yes, CF is a major factor in rejection for military. My older sister went that route to help pay her way through college (that's probably why they were knocking on my door) for her degree in medicine. It's also where she met her husband.

I was considering that idea, until the CF was disclosed, but I think I would have made an excellent General!! (LOL)

Sounds like the Army and Navy are quite similar in their "timing"! So, does this mean you'll be taking Mark and a Laptop on the boat?

Hopefully, the timing works out great, you two get a chance to see the world, before settling down for your family! One thing for sure, it'll probably be harder to do all of that traveling after having children.

(P.S. My dad used to be in the navy, too! He was in Okinawa, and Yokohama-"Yokosuka" a few times--but this was way before I WAS born!)
 
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rose4cale

New member
Julie, I am hoping and praying that your prayers are answered. Like I've said before, my kids are the whole reason for my being. I didn't know I could love so much and I believe that anyone who wants to know that feeling should have every opportunity possible to do so.

Are you packed yet??? Lots on your mind right now, I know. Hopefully they will let you know soon!<img src="i/expressions/rose.gif" border="0">
 
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julie

New member
Just finishing up most of the packing, leaving out what I need for the next week and a few days. I have going away parties scheduled all over the place and I made rank this test cycle (from an E3 to an E4) and I am now a Petty officer. It means more money every month and more respect , so theres a party for that too. And I'm on the color guard so there's a party for that. I hate living out of a box and digging to the bottom for an outfit I thought I'd never wear. ahhhh life.

My mom and dad decided last week that they are going to fly down here and drive up with us. My mom was concerned about us driving the pass, and thought 4 drivers was better than 2. Additionally, the dogs with be in the pathfinder with Mark and the cats will be in the honda, so it will be good to have a passenger in each car to tend to the animals. Benadryl can only last for so long.... My parents are great, they are so good to Mark and I, so very good!
 
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