So far my brain will not act up for the Dr's and cameras.
I am getting very frusterated and wish I would just have a seizure so that we can go on with the treatments.
The plan for tonight is sleep deprivation. The nuerologist thinks that the lack of sleep may bring one on. She says that more often than not it works. She says that it usually brings one on the following day.
Thanks everyone for your thoughts and prayers!!
Lauren;
Seizures feel different for everyone. Because there are so many diff types of seizures each one can present differently.
The grand mal (or tonic clonic), is the worst one that there is.
My first seizure was a grand mal. When it first started it felt just like the feeling right before you pass out, queezy, vision changes (double vision for me), I smelled lavendar and the right side of my body became slowly rigid. I then fell on the ground and passed out. When I woke up I felt vibrating waves throughout my muscles that became worse when my skin was touched. Those feeling eventually went away, probably lasted 10 min, but seemed like an eternity!
My other seizures are called focal seizures. A focal seizure only affects parts of the body at a time instead of the whole body. Sometimes my arm shakes along with my head, while the whole time being awake and aware of what is happening. My last focal came with something diff than my norm. When I tried to talk it came out like jibberish and moaning.
Sometimes my seizures look like I am sleeping. I am hard to awake and cant answer questions and am very confused. Those are the unclear ones. They are not sure what kind of seizures those are. I have had those for a couple of years now but did not know they were seizures. Not until my grand mal in Aug did my Dr and I know what the other episodes were.
Terri;
I hope that when they figure out what part of the brain the seizures are coming from that they will be able to treat it better with meds. They say that there are other alternatives to surgery. Surgery is usually the last resort.
I hope you are staying well and I am sorry to hear about your mom. You are in my thoughts!!!
Fourkidsmom;
Thank you for telling me about your daughter. I find that very interesting that the EEG did not pick up her seizures at first. I have a feeling that it wont pick up mine too. I haven't had the MRI yet so I dont know exactly what that will show if anything. Knowing about your daughter's not being picked up on is helpfull and gives me hope that even if it doesn't show this time that maybe next time it will. Thank You!!
Sally and John thank you so much for your well wishes. I will let Damon know that you said he can reach out to you if he needs to. You both mean alot to me!!!
Well now that I have jabbered on I will stop now. Thanks everyone!! You have no idea what you all mean to me!!!! Thanks
<b>Take care of you!!!</b>