What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Is Atypical CF really all that uncommon?

M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.

But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.

Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.

Just my 2 cents.
 
M

marcijo

Guest
Well, Amy is right in saying that we all do have CF, and that CF is CF.
<br />
<br />But...I also agree that there are a lot more cases that aren't the "norm" with CF. Not that there is a norm with CF...but I think you know what I mean.
<br />
<br />Take my case, for example...I wasn't diagnosed until I was 21 - never had any obvious symptoms until I got walking pneumonia at 21 and they wanted to figure out why I got it. Even now, I haven't yet been hospitalized for my CF - although I am sure that will come sometime in the future.
<br />
<br />Just my 2 cents.
<br />
<br />
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
 
H

hopesiris

Guest
I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know.
<br />
<br />
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote></div>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote>

If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>I saw the estimate online somewhere and asked my doctor. She said that sounds about right. Like anyone else with CF it can happen at any time but unlike most cases, I could live to be in my 80's with a really bad cough. Yes, my doc said 80's. We just don't know. </end quote>
<br />
<br />If you ever find where you read that again let me know (please) I'd like to see if it says anything about my mutation combination.
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 
You must log in or register to reply here.
Top