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just not sure....

S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

</end quote></div>

Things can change with your body at any time. Your body chemistry and acid production can change at the drop of a hat. So this shouldn't seem weird to you at all


<div class="FTQUOTE"><begin quote>

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? </end quote></div>

No, that's not odd at all. Inflammation is just as much of an issue as mucus is. Which is why I referred you to the fact that you might be having nocturnal aspiration of gastric juice. This can cause inflammation and decrease FEV1 by quite a bit. Maybe you didn't read my post before writing this...


<div class="FTQUOTE"><begin quote>

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.</end quote></div>


Inconclusive?! Really?!

Aspirating gastric juice is pretty clear cut in how it can aggravate the lungs.

Pretty straight forward.....
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

</end quote></div>

Things can change with your body at any time. Your body chemistry and acid production can change at the drop of a hat. So this shouldn't seem weird to you at all


<div class="FTQUOTE"><begin quote>

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? </end quote></div>

No, that's not odd at all. Inflammation is just as much of an issue as mucus is. Which is why I referred you to the fact that you might be having nocturnal aspiration of gastric juice. This can cause inflammation and decrease FEV1 by quite a bit. Maybe you didn't read my post before writing this...


<div class="FTQUOTE"><begin quote>

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.</end quote></div>


Inconclusive?! Really?!

Aspirating gastric juice is pretty clear cut in how it can aggravate the lungs.

Pretty straight forward.....
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

</end quote></div>

Things can change with your body at any time. Your body chemistry and acid production can change at the drop of a hat. So this shouldn't seem weird to you at all


<div class="FTQUOTE"><begin quote>

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? </end quote></div>

No, that's not odd at all. Inflammation is just as much of an issue as mucus is. Which is why I referred you to the fact that you might be having nocturnal aspiration of gastric juice. This can cause inflammation and decrease FEV1 by quite a bit. Maybe you didn't read my post before writing this...


<div class="FTQUOTE"><begin quote>

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.</end quote></div>


Inconclusive?! Really?!

Aspirating gastric juice is pretty clear cut in how it can aggravate the lungs.

Pretty straight forward.....
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.

</end quote>

Things can change with your body at any time. Your body chemistry and acid production can change at the drop of a hat. So this shouldn't seem weird to you at all


<div class="FTQUOTE"><begin quote>

However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? </end quote>

No, that's not odd at all. Inflammation is just as much of an issue as mucus is. Which is why I referred you to the fact that you might be having nocturnal aspiration of gastric juice. This can cause inflammation and decrease FEV1 by quite a bit. Maybe you didn't read my post before writing this...


<div class="FTQUOTE"><begin quote>

Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.</end quote>


Inconclusive?! Really?!

Aspirating gastric juice is pretty clear cut in how it can aggravate the lungs.

Pretty straight forward.....
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>
<br />
<br />
<br />I've been on the same acid blockers for GERD for years and have not changed anything, so it just seems weird that all of a sudden my meds stop working and all this becomes an issue.
<br />
<br /></end quote>
<br />
<br />Things can change with your body at any time. Your body chemistry and acid production can change at the drop of a hat. So this shouldn't seem weird to you at all
<br />
<br />
<br /><div class="FTQUOTE"><begin quote>
<br />
<br />However, isn't it odd that with an exacerbation (if it is/isn't that), there wouldn't be any increase in cough/gunk?? </end quote>
<br />
<br />No, that's not odd at all. Inflammation is just as much of an issue as mucus is. Which is why I referred you to the fact that you might be having nocturnal aspiration of gastric juice. This can cause inflammation and decrease FEV1 by quite a bit. Maybe you didn't read my post before writing this...
<br />
<br />
<br /><div class="FTQUOTE"><begin quote>
<br />
<br />Thanks for the info... Keep the suggestions/ideas coming. I have searched extensively for actual medical research confirming that GERD can lower pfts in people with lung disease and it seems pretty inconclusive.</end quote>
<br />
<br />
<br />Inconclusive?! Really?!
<br />
<br />Aspirating gastric juice is pretty clear cut in how it can aggravate the lungs.
<br />
<br />Pretty straight forward.....
<br />
 
L

ladybug

New member
Amy,

Thanks, I did read your post. I am not waking with night sweats, and I DO have decreased exercise tolerance. So, since those are some things you clearly pointed to in your blog about having the aspiration at night, I'm not certain that is my problem. It could be, but I"m not sure. I never wake with hearburn. It is always after I eat and then all day after that. And, unlike you, I DO feel it and know its there.

I also read that you've had luck with medication for your aspiration and the night sweats have stopped. I am on 30 mg of prevacid twice a day and zantac 150 mg. twice a day (they are both the highest my CF doc feels comfortable with me taking since prevacid is kinda the "gold status" according to them.) I've been on nexium, aciphex and prilosec Rx'd and NONE of that helped. The prevacid HAS worked for the last few years. The zantac they just added and its done nothing for the burn.

You mention NOT having had a barium swallow, which I mention in my response I HAD and what they found.

So, I guess I just feel my situation is a bit different than yours. That's all. I thought my responses were directed mostly to your post since I talk about the exercise thing and the fact I've had the barium and the fact no meds have been working. All these things contradict what your blog post was about so I felt I was directly responding to that. I guess I could have cut and pasted to make it more clear?

I will be very happy if all this is is GERD and they can find something I haven't tried to fix it. I would be very glad if this isn't another exacerbation and it would clear lots up about why I never feel all that much better with regard to the sob whenever I come off abx.

I will be gettting a "consult" with a GI doc within the next 30 days, as these are the hoops I have to jump through with the military healthcare system. At that point, they will likely schedule tests/retests.

In the meantime, if anyone else has information on this topic or has noticed this with regard to their own personal situation, please share.

I have done google and yahoo searches on pft and GERD specifically (not aspirating gastric juices). I have found a few articles that come up inconclusive and one even said coffee has a positive effect on asthmatics' pfts when taken prior to blowing. I think I'd be hurting somethin' fierce if I were to do that! It does mention in that article that many with asthma also have GERD and that its not clear how that effects pfts.

If someone has research articles and can site them (with regard to how GERD/reflux effect pfts of asthma or cf patients), I'd love to read them.

Thanks, guys and gals.
 
L

ladybug

New member
Amy,

Thanks, I did read your post. I am not waking with night sweats, and I DO have decreased exercise tolerance. So, since those are some things you clearly pointed to in your blog about having the aspiration at night, I'm not certain that is my problem. It could be, but I"m not sure. I never wake with hearburn. It is always after I eat and then all day after that. And, unlike you, I DO feel it and know its there.

I also read that you've had luck with medication for your aspiration and the night sweats have stopped. I am on 30 mg of prevacid twice a day and zantac 150 mg. twice a day (they are both the highest my CF doc feels comfortable with me taking since prevacid is kinda the "gold status" according to them.) I've been on nexium, aciphex and prilosec Rx'd and NONE of that helped. The prevacid HAS worked for the last few years. The zantac they just added and its done nothing for the burn.

You mention NOT having had a barium swallow, which I mention in my response I HAD and what they found.

So, I guess I just feel my situation is a bit different than yours. That's all. I thought my responses were directed mostly to your post since I talk about the exercise thing and the fact I've had the barium and the fact no meds have been working. All these things contradict what your blog post was about so I felt I was directly responding to that. I guess I could have cut and pasted to make it more clear?

I will be very happy if all this is is GERD and they can find something I haven't tried to fix it. I would be very glad if this isn't another exacerbation and it would clear lots up about why I never feel all that much better with regard to the sob whenever I come off abx.

I will be gettting a "consult" with a GI doc within the next 30 days, as these are the hoops I have to jump through with the military healthcare system. At that point, they will likely schedule tests/retests.

In the meantime, if anyone else has information on this topic or has noticed this with regard to their own personal situation, please share.

I have done google and yahoo searches on pft and GERD specifically (not aspirating gastric juices). I have found a few articles that come up inconclusive and one even said coffee has a positive effect on asthmatics' pfts when taken prior to blowing. I think I'd be hurting somethin' fierce if I were to do that! It does mention in that article that many with asthma also have GERD and that its not clear how that effects pfts.

If someone has research articles and can site them (with regard to how GERD/reflux effect pfts of asthma or cf patients), I'd love to read them.

Thanks, guys and gals.
 
L

ladybug

New member
Amy,

Thanks, I did read your post. I am not waking with night sweats, and I DO have decreased exercise tolerance. So, since those are some things you clearly pointed to in your blog about having the aspiration at night, I'm not certain that is my problem. It could be, but I"m not sure. I never wake with hearburn. It is always after I eat and then all day after that. And, unlike you, I DO feel it and know its there.

I also read that you've had luck with medication for your aspiration and the night sweats have stopped. I am on 30 mg of prevacid twice a day and zantac 150 mg. twice a day (they are both the highest my CF doc feels comfortable with me taking since prevacid is kinda the "gold status" according to them.) I've been on nexium, aciphex and prilosec Rx'd and NONE of that helped. The prevacid HAS worked for the last few years. The zantac they just added and its done nothing for the burn.

You mention NOT having had a barium swallow, which I mention in my response I HAD and what they found.

So, I guess I just feel my situation is a bit different than yours. That's all. I thought my responses were directed mostly to your post since I talk about the exercise thing and the fact I've had the barium and the fact no meds have been working. All these things contradict what your blog post was about so I felt I was directly responding to that. I guess I could have cut and pasted to make it more clear?

I will be very happy if all this is is GERD and they can find something I haven't tried to fix it. I would be very glad if this isn't another exacerbation and it would clear lots up about why I never feel all that much better with regard to the sob whenever I come off abx.

I will be gettting a "consult" with a GI doc within the next 30 days, as these are the hoops I have to jump through with the military healthcare system. At that point, they will likely schedule tests/retests.

In the meantime, if anyone else has information on this topic or has noticed this with regard to their own personal situation, please share.

I have done google and yahoo searches on pft and GERD specifically (not aspirating gastric juices). I have found a few articles that come up inconclusive and one even said coffee has a positive effect on asthmatics' pfts when taken prior to blowing. I think I'd be hurting somethin' fierce if I were to do that! It does mention in that article that many with asthma also have GERD and that its not clear how that effects pfts.

If someone has research articles and can site them (with regard to how GERD/reflux effect pfts of asthma or cf patients), I'd love to read them.

Thanks, guys and gals.
 
L

ladybug

New member
Amy,

Thanks, I did read your post. I am not waking with night sweats, and I DO have decreased exercise tolerance. So, since those are some things you clearly pointed to in your blog about having the aspiration at night, I'm not certain that is my problem. It could be, but I"m not sure. I never wake with hearburn. It is always after I eat and then all day after that. And, unlike you, I DO feel it and know its there.

I also read that you've had luck with medication for your aspiration and the night sweats have stopped. I am on 30 mg of prevacid twice a day and zantac 150 mg. twice a day (they are both the highest my CF doc feels comfortable with me taking since prevacid is kinda the "gold status" according to them.) I've been on nexium, aciphex and prilosec Rx'd and NONE of that helped. The prevacid HAS worked for the last few years. The zantac they just added and its done nothing for the burn.

You mention NOT having had a barium swallow, which I mention in my response I HAD and what they found.

So, I guess I just feel my situation is a bit different than yours. That's all. I thought my responses were directed mostly to your post since I talk about the exercise thing and the fact I've had the barium and the fact no meds have been working. All these things contradict what your blog post was about so I felt I was directly responding to that. I guess I could have cut and pasted to make it more clear?

I will be very happy if all this is is GERD and they can find something I haven't tried to fix it. I would be very glad if this isn't another exacerbation and it would clear lots up about why I never feel all that much better with regard to the sob whenever I come off abx.

I will be gettting a "consult" with a GI doc within the next 30 days, as these are the hoops I have to jump through with the military healthcare system. At that point, they will likely schedule tests/retests.

In the meantime, if anyone else has information on this topic or has noticed this with regard to their own personal situation, please share.

I have done google and yahoo searches on pft and GERD specifically (not aspirating gastric juices). I have found a few articles that come up inconclusive and one even said coffee has a positive effect on asthmatics' pfts when taken prior to blowing. I think I'd be hurting somethin' fierce if I were to do that! It does mention in that article that many with asthma also have GERD and that its not clear how that effects pfts.

If someone has research articles and can site them (with regard to how GERD/reflux effect pfts of asthma or cf patients), I'd love to read them.

Thanks, guys and gals.
 
L

ladybug

New member
Amy,
<br />
<br />Thanks, I did read your post. I am not waking with night sweats, and I DO have decreased exercise tolerance. So, since those are some things you clearly pointed to in your blog about having the aspiration at night, I'm not certain that is my problem. It could be, but I"m not sure. I never wake with hearburn. It is always after I eat and then all day after that. And, unlike you, I DO feel it and know its there.
<br />
<br />I also read that you've had luck with medication for your aspiration and the night sweats have stopped. I am on 30 mg of prevacid twice a day and zantac 150 mg. twice a day (they are both the highest my CF doc feels comfortable with me taking since prevacid is kinda the "gold status" according to them.) I've been on nexium, aciphex and prilosec Rx'd and NONE of that helped. The prevacid HAS worked for the last few years. The zantac they just added and its done nothing for the burn.
<br />
<br />You mention NOT having had a barium swallow, which I mention in my response I HAD and what they found.
<br />
<br />So, I guess I just feel my situation is a bit different than yours. That's all. I thought my responses were directed mostly to your post since I talk about the exercise thing and the fact I've had the barium and the fact no meds have been working. All these things contradict what your blog post was about so I felt I was directly responding to that. I guess I could have cut and pasted to make it more clear?
<br />
<br />I will be very happy if all this is is GERD and they can find something I haven't tried to fix it. I would be very glad if this isn't another exacerbation and it would clear lots up about why I never feel all that much better with regard to the sob whenever I come off abx.
<br />
<br />I will be gettting a "consult" with a GI doc within the next 30 days, as these are the hoops I have to jump through with the military healthcare system. At that point, they will likely schedule tests/retests.
<br />
<br />In the meantime, if anyone else has information on this topic or has noticed this with regard to their own personal situation, please share.
<br />
<br />I have done google and yahoo searches on pft and GERD specifically (not aspirating gastric juices). I have found a few articles that come up inconclusive and one even said coffee has a positive effect on asthmatics' pfts when taken prior to blowing. I think I'd be hurting somethin' fierce if I were to do that! It does mention in that article that many with asthma also have GERD and that its not clear how that effects pfts.
<br />
<br />If someone has research articles and can site them (with regard to how GERD/reflux effect pfts of asthma or cf patients), I'd love to read them.
<br />
<br />Thanks, guys and gals.
 
L

ladybug

New member
i also wanted to mention at my previous center that they looked at my x-ray and said the increase in heartburn (at that time) was related to tons of air trapping increasing pressure on my esophogus and THAT is what was causing the sob, lower pft, etc.

so, its kinda the chicken or the egg thing: is the reflux causing the sob by aspirating into the lungs, thereby necessitating treatment of reflux? OR are the lungs so inflamed by infection that they're causing the reflux to worsen as the air pushes gastric juices up, thereby necessitating treating the infection?

thoughts? what has your doc done if you've been in this situation? do they treat the GERD or treat the infection and hope the GERD goes away? at this point i'm so at a loss and just so afraid..... will i ever feel "normal" again? i'm afraid to eat cause i know i'll be burpy all night from it. urgh....
 
L

ladybug

New member
i also wanted to mention at my previous center that they looked at my x-ray and said the increase in heartburn (at that time) was related to tons of air trapping increasing pressure on my esophogus and THAT is what was causing the sob, lower pft, etc.

so, its kinda the chicken or the egg thing: is the reflux causing the sob by aspirating into the lungs, thereby necessitating treatment of reflux? OR are the lungs so inflamed by infection that they're causing the reflux to worsen as the air pushes gastric juices up, thereby necessitating treating the infection?

thoughts? what has your doc done if you've been in this situation? do they treat the GERD or treat the infection and hope the GERD goes away? at this point i'm so at a loss and just so afraid..... will i ever feel "normal" again? i'm afraid to eat cause i know i'll be burpy all night from it. urgh....
 
L

ladybug

New member
i also wanted to mention at my previous center that they looked at my x-ray and said the increase in heartburn (at that time) was related to tons of air trapping increasing pressure on my esophogus and THAT is what was causing the sob, lower pft, etc.

so, its kinda the chicken or the egg thing: is the reflux causing the sob by aspirating into the lungs, thereby necessitating treatment of reflux? OR are the lungs so inflamed by infection that they're causing the reflux to worsen as the air pushes gastric juices up, thereby necessitating treating the infection?

thoughts? what has your doc done if you've been in this situation? do they treat the GERD or treat the infection and hope the GERD goes away? at this point i'm so at a loss and just so afraid..... will i ever feel "normal" again? i'm afraid to eat cause i know i'll be burpy all night from it. urgh....
 
L

ladybug

New member
i also wanted to mention at my previous center that they looked at my x-ray and said the increase in heartburn (at that time) was related to tons of air trapping increasing pressure on my esophogus and THAT is what was causing the sob, lower pft, etc.

so, its kinda the chicken or the egg thing: is the reflux causing the sob by aspirating into the lungs, thereby necessitating treatment of reflux? OR are the lungs so inflamed by infection that they're causing the reflux to worsen as the air pushes gastric juices up, thereby necessitating treating the infection?

thoughts? what has your doc done if you've been in this situation? do they treat the GERD or treat the infection and hope the GERD goes away? at this point i'm so at a loss and just so afraid..... will i ever feel "normal" again? i'm afraid to eat cause i know i'll be burpy all night from it. urgh....
 
L

ladybug

New member
i also wanted to mention at my previous center that they looked at my x-ray and said the increase in heartburn (at that time) was related to tons of air trapping increasing pressure on my esophogus and THAT is what was causing the sob, lower pft, etc.
<br />
<br />so, its kinda the chicken or the egg thing: is the reflux causing the sob by aspirating into the lungs, thereby necessitating treatment of reflux? OR are the lungs so inflamed by infection that they're causing the reflux to worsen as the air pushes gastric juices up, thereby necessitating treating the infection?
<br />
<br />thoughts? what has your doc done if you've been in this situation? do they treat the GERD or treat the infection and hope the GERD goes away? at this point i'm so at a loss and just so afraid..... will i ever feel "normal" again? i'm afraid to eat cause i know i'll be burpy all night from it. urgh....
 
N

Nightwriter

New member
Hi Sonia,

I always like that you are trying to think through what is happening to you. My doctor calls it detective work. I think you've hit several things.

Moving-- This is a huge source of inflammation. In fact if you were to do a quick search of the forum and blogs -- many people get flareups or exacerbations right after a move. First, new environment, different air. Dealing with dust when packing. Then if the home has fresh paint of new carpets (or just cleaned), there can be gassing off for months or longer.

I used to have heartburn and took acid blockers (Zantac, Tagament, Prilosec) too. When I first started going to my doctor, she told me since the two "tubes" (esaphagus/trachea openings) are near each other, when one is inflamed, it affects the other. The inflammation can originate in either place. Many people have chronic coughs that originate with reflux.

I don't need any stomach medication anymore. And in fact, I just sent a friend of mine to my doctor who was on DOUBLE stomach medication. He is off it completely.

How? You know how I've talked about reducing asthma triggers/chemical sensitivities, getting an air purifyer, HEPA vacuum, encasing bedding etc. A really helpful supplement that I (and my friend) take is a 14 strain probiotic prescribed by my doc. My friend actually takes that one and one additional 3 strain version.

My doctor frequently gets people who suffer with heartburn or IBS (again all from inflammation) and frequently they have been put on Nexium which is about the worse thing anyone can take if you are chemically sensitive. The purple dye actually makes many people sick. My doctor takes them off of it and prescribes something without dye if medication is necessary and supplements (after allergy testing and other tests as well). My friend was completely off the medication in 3 weeks and is thrilled.

Of course I don't know what is appropriate for you. But you can discuss some of these things with your team. You are very lucky to have a team that recognizes inflammation can cause exacerbations. And in the long run, you will do much better if you identify and treat the source of exacerbations BEFORE it turns into infection. THIS preserves lung function. My CT scans are better NOW than 12 years ago than when I was on antibiotics frequently.

When I have a cough including just a dry cough -- I take ginger tea and I have found Airborne helps my dry cough. Again, check with your docs.
 
N

Nightwriter

New member
Hi Sonia,

I always like that you are trying to think through what is happening to you. My doctor calls it detective work. I think you've hit several things.

Moving-- This is a huge source of inflammation. In fact if you were to do a quick search of the forum and blogs -- many people get flareups or exacerbations right after a move. First, new environment, different air. Dealing with dust when packing. Then if the home has fresh paint of new carpets (or just cleaned), there can be gassing off for months or longer.

I used to have heartburn and took acid blockers (Zantac, Tagament, Prilosec) too. When I first started going to my doctor, she told me since the two "tubes" (esaphagus/trachea openings) are near each other, when one is inflamed, it affects the other. The inflammation can originate in either place. Many people have chronic coughs that originate with reflux.

I don't need any stomach medication anymore. And in fact, I just sent a friend of mine to my doctor who was on DOUBLE stomach medication. He is off it completely.

How? You know how I've talked about reducing asthma triggers/chemical sensitivities, getting an air purifyer, HEPA vacuum, encasing bedding etc. A really helpful supplement that I (and my friend) take is a 14 strain probiotic prescribed by my doc. My friend actually takes that one and one additional 3 strain version.

My doctor frequently gets people who suffer with heartburn or IBS (again all from inflammation) and frequently they have been put on Nexium which is about the worse thing anyone can take if you are chemically sensitive. The purple dye actually makes many people sick. My doctor takes them off of it and prescribes something without dye if medication is necessary and supplements (after allergy testing and other tests as well). My friend was completely off the medication in 3 weeks and is thrilled.

Of course I don't know what is appropriate for you. But you can discuss some of these things with your team. You are very lucky to have a team that recognizes inflammation can cause exacerbations. And in the long run, you will do much better if you identify and treat the source of exacerbations BEFORE it turns into infection. THIS preserves lung function. My CT scans are better NOW than 12 years ago than when I was on antibiotics frequently.

When I have a cough including just a dry cough -- I take ginger tea and I have found Airborne helps my dry cough. Again, check with your docs.
 
N

Nightwriter

New member
Hi Sonia,

I always like that you are trying to think through what is happening to you. My doctor calls it detective work. I think you've hit several things.

Moving-- This is a huge source of inflammation. In fact if you were to do a quick search of the forum and blogs -- many people get flareups or exacerbations right after a move. First, new environment, different air. Dealing with dust when packing. Then if the home has fresh paint of new carpets (or just cleaned), there can be gassing off for months or longer.

I used to have heartburn and took acid blockers (Zantac, Tagament, Prilosec) too. When I first started going to my doctor, she told me since the two "tubes" (esaphagus/trachea openings) are near each other, when one is inflamed, it affects the other. The inflammation can originate in either place. Many people have chronic coughs that originate with reflux.

I don't need any stomach medication anymore. And in fact, I just sent a friend of mine to my doctor who was on DOUBLE stomach medication. He is off it completely.

How? You know how I've talked about reducing asthma triggers/chemical sensitivities, getting an air purifyer, HEPA vacuum, encasing bedding etc. A really helpful supplement that I (and my friend) take is a 14 strain probiotic prescribed by my doc. My friend actually takes that one and one additional 3 strain version.

My doctor frequently gets people who suffer with heartburn or IBS (again all from inflammation) and frequently they have been put on Nexium which is about the worse thing anyone can take if you are chemically sensitive. The purple dye actually makes many people sick. My doctor takes them off of it and prescribes something without dye if medication is necessary and supplements (after allergy testing and other tests as well). My friend was completely off the medication in 3 weeks and is thrilled.

Of course I don't know what is appropriate for you. But you can discuss some of these things with your team. You are very lucky to have a team that recognizes inflammation can cause exacerbations. And in the long run, you will do much better if you identify and treat the source of exacerbations BEFORE it turns into infection. THIS preserves lung function. My CT scans are better NOW than 12 years ago than when I was on antibiotics frequently.

When I have a cough including just a dry cough -- I take ginger tea and I have found Airborne helps my dry cough. Again, check with your docs.
 
N

Nightwriter

New member
Hi Sonia,

I always like that you are trying to think through what is happening to you. My doctor calls it detective work. I think you've hit several things.

Moving-- This is a huge source of inflammation. In fact if you were to do a quick search of the forum and blogs -- many people get flareups or exacerbations right after a move. First, new environment, different air. Dealing with dust when packing. Then if the home has fresh paint of new carpets (or just cleaned), there can be gassing off for months or longer.

I used to have heartburn and took acid blockers (Zantac, Tagament, Prilosec) too. When I first started going to my doctor, she told me since the two "tubes" (esaphagus/trachea openings) are near each other, when one is inflamed, it affects the other. The inflammation can originate in either place. Many people have chronic coughs that originate with reflux.

I don't need any stomach medication anymore. And in fact, I just sent a friend of mine to my doctor who was on DOUBLE stomach medication. He is off it completely.

How? You know how I've talked about reducing asthma triggers/chemical sensitivities, getting an air purifyer, HEPA vacuum, encasing bedding etc. A really helpful supplement that I (and my friend) take is a 14 strain probiotic prescribed by my doc. My friend actually takes that one and one additional 3 strain version.

My doctor frequently gets people who suffer with heartburn or IBS (again all from inflammation) and frequently they have been put on Nexium which is about the worse thing anyone can take if you are chemically sensitive. The purple dye actually makes many people sick. My doctor takes them off of it and prescribes something without dye if medication is necessary and supplements (after allergy testing and other tests as well). My friend was completely off the medication in 3 weeks and is thrilled.

Of course I don't know what is appropriate for you. But you can discuss some of these things with your team. You are very lucky to have a team that recognizes inflammation can cause exacerbations. And in the long run, you will do much better if you identify and treat the source of exacerbations BEFORE it turns into infection. THIS preserves lung function. My CT scans are better NOW than 12 years ago than when I was on antibiotics frequently.

When I have a cough including just a dry cough -- I take ginger tea and I have found Airborne helps my dry cough. Again, check with your docs.
 
N

Nightwriter

New member
Hi Sonia,
<br />
<br />I always like that you are trying to think through what is happening to you. My doctor calls it detective work. I think you've hit several things.
<br />
<br />Moving-- This is a huge source of inflammation. In fact if you were to do a quick search of the forum and blogs -- many people get flareups or exacerbations right after a move. First, new environment, different air. Dealing with dust when packing. Then if the home has fresh paint of new carpets (or just cleaned), there can be gassing off for months or longer.
<br />
<br />I used to have heartburn and took acid blockers (Zantac, Tagament, Prilosec) too. When I first started going to my doctor, she told me since the two "tubes" (esaphagus/trachea openings) are near each other, when one is inflamed, it affects the other. The inflammation can originate in either place. Many people have chronic coughs that originate with reflux.
<br />
<br />I don't need any stomach medication anymore. And in fact, I just sent a friend of mine to my doctor who was on DOUBLE stomach medication. He is off it completely.
<br />
<br />How? You know how I've talked about reducing asthma triggers/chemical sensitivities, getting an air purifyer, HEPA vacuum, encasing bedding etc. A really helpful supplement that I (and my friend) take is a 14 strain probiotic prescribed by my doc. My friend actually takes that one and one additional 3 strain version.
<br />
<br />My doctor frequently gets people who suffer with heartburn or IBS (again all from inflammation) and frequently they have been put on Nexium which is about the worse thing anyone can take if you are chemically sensitive. The purple dye actually makes many people sick. My doctor takes them off of it and prescribes something without dye if medication is necessary and supplements (after allergy testing and other tests as well). My friend was completely off the medication in 3 weeks and is thrilled.
<br />
<br />Of course I don't know what is appropriate for you. But you can discuss some of these things with your team. You are very lucky to have a team that recognizes inflammation can cause exacerbations. And in the long run, you will do much better if you identify and treat the source of exacerbations BEFORE it turns into infection. THIS preserves lung function. My CT scans are better NOW than 12 years ago than when I was on antibiotics frequently.
<br />
<br />When I have a cough including just a dry cough -- I take ginger tea and I have found Airborne helps my dry cough. Again, check with your docs.
<br />
<br />
 
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