What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Kalydeco concern!!!

JENNYC

New member
I am so glad that you are getting to try a new enzyme!!! I pray that helps ds!!! And may I say my mouth just hit the floor when I read how much it costs!!! Ouch!! That's triple the cost of Creon for us!! Bless your heart!! All though I do hope this is an answer to your prayers!!
 

Aboveallislove

Super Moderator
Well mail order is 70 for 3 months, so getting rest that way. Not as bad as pulmozyme which was like 800 and I didn't know re our mail order benefit that first month...that's why I tell all expecting and new cf parents to dig into insurance info. Really hoping this helps with tummy.
 

JENNYC

New member
Wow again!!!!! Our pulmozyme is 100 as well!!! That is good info for new parents....I never dreamed some were having to pay that much!!
 

cabadie1

New member
Do you still have to do all of the same treatments when you take Kaldyco? What are the side effects you are noticing? Thanks so much!
 
Top