Letter writing to raise money for CF

[Jane]

Here's ours for this year. I email it out to everyone at school/work and in my address book.

Dear Friends,

On Sunday May 20 our family and our team, <b>THE "J" TEAM</b> will be walking in THE GREAT STRIDES walk for Cystic Fibrosis. It is our 16th year! Great Strides is The Cystic Fibrosis Foundation's largest national event. The CFF is the primary sponsor of critical research that is making tremendous advances toward a cure and control of cystic fibrosis. This year our boys have been directly affected by such research.

One year ago our doctors told us that the boys' lungs had deteriorated alarmingly due to atypical bacteria they had contracted. Being new, the bacterium had no history of treatment and was resistant to almost all antibiotics. It was frightening to watch our doctors struggle for answers while the boys became sicker. After months of trial and error treatments, their medical team came upon a combination of new antibiotics. During the 6 months on these drugs the boys became stronger and healthier. By the time they completed their treatment, their lungs had improved 80%! No one, not even the doctors had expected this remarkable outcome. It was a miracle to be sure!

The CF Foundation slogan<i> "adding tomorrows everyday" </i>states their pledge to CF families. Our boys are doing well today because of this commitment. Please read more about CF and other ways the CFF is adding tomorrows for CF patients at www.cff.org .

We invite you to support our team for the GREAT STRIDES walk. To walk with our team please contact me at j3bnap@verizon.net. You can sponsor The J Team by donating online at <a target=_blank class=ftalternatingbarlinklarge href="http://greatstrides.cff.org">http://greatstrides.cff.org</a> , (enter my name and follow the instructions), or by check (checks can be made out to CFF). Your help does make a difference!!

As always, we appreciate your support and thank you on behalf of our boys!

 

[izemmom]

OMG!!!! I just had a total "blonde" moment! I completely forgot that I sent Nicole a couple of paragraphs for her letter...and then I read it here and thought, "Gosh, that sounds like us..." only to see the link to our montage at the end! I will admit I thought it was pretty well written before I realized I wrote it! LOL! Can you say overworked, overtired, stressed out and forgetful??????? Thanks everyone for sharing your letters! When I get home tonight, if I don's collapse first, I'll try to post mine.

 

[izemmom]

OMG!!!! I just had a total "blonde" moment! I completely forgot that I sent Nicole a couple of paragraphs for her letter...and then I read it here and thought, "Gosh, that sounds like us..." only to see the link to our montage at the end! I will admit I thought it was pretty well written before I realized I wrote it! LOL! Can you say overworked, overtired, stressed out and forgetful??????? Thanks everyone for sharing your letters! When I get home tonight, if I don's collapse first, I'll try to post mine.

 

[izemmom]

OMG!!!! I just had a total "blonde" moment! I completely forgot that I sent Nicole a couple of paragraphs for her letter...and then I read it here and thought, "Gosh, that sounds like us..." only to see the link to our montage at the end! I will admit I thought it was pretty well written before I realized I wrote it! LOL! Can you say overworked, overtired, stressed out and forgetful??????? Thanks everyone for sharing your letters! When I get home tonight, if I don's collapse first, I'll try to post mine.

 

[lilismom]

I've been working on a letter as well- I think I'm ready to get it printed - let me know what you all think

On May 20, 2007 the Hargreaves family along with a team of friends will be taking part in the Cystic fibrosis Great Strides walk in Seattle. The walk is the largest yearly fundraiser for the Cystic Fibrosis (CF) Foundation with walks taking place throughout the country.
As most of you know, Lili was diagnosed with Cystic Fibrosis in April of 2006. During our 2 1/2 week stay at Children's Hospital in Seattle we learned the average life expectancy for people with CF is currently about 35. Needless to say, this came as devastating news to us. At the same time, the staff at the hospital's Cystic Fibrosis Clinic laid out a treatment plan that will help Lili maximize and extend the years she does have.


Life with CF

Having lived with CF as a family for a year now, we're happy to report that we've settled into a routine that causes little disruption in our lives. Lili receives a 10 minute inhaled medication once a day, and receives 15 minutes of chest therapy in the morning and evening. This is the most time consuming part of her treatment, which involves clapping on her chest while she lays in different positions to loosen mucus in her lungs. She also takes enzymes with every snack and meal to aid in digestion.
So far, her progress looks good. She is at a healthy weight for her age and her lungs have steadily shown improvement. At the same time, she has been on a lot of antibiotics to fight off bacteria growing in her lungs. Most importantly, her disease hasn't had any real effect on the quality of her life. She's goes to preschool three mornings a week, loves riding her bike and is a wonderful older sister to Mia.
The other night as we were doing her evening treatment, she somewhat matter-of-factly said, "I don't want to have CF anymore, I wish somebody else would go to the hospital instead of me." As parents, we find ways to cope with the hardship and inconvenience that CF brings, but it's sometimes painful to watch Lili slowly realizing that she has a serious disease.
Our hope is that treatments improve and new treatments are developed so that CF will no longer be a life threatening disease and Lili will have a long and healthy life. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in extending the quality of life for those with CF.

Please help the CF Foundation fund research

Last year, just a month after finding out that Lili had CF our family and friends raised over $8000. We were touched beyond words by the outpouring of support and generosity - thank you again to all who participated!
This year, we're hoping to do even better! Here are some ways that you can help us to support the Cystic Fibrosis Foundation in their efforts to improve the lives of those with CF:

. Send a tax deductible contribution in the enclosed envelope. Make the check payable to the Cystic Fibrosis Foundation with Team Lili in the memo space. Many companies will match your contribution so please check with your employer.
. You can donate online by going to: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/Great_Strides/SarahHargreaves4826">http://www.cff.org/Great_Strides/SarahHargreaves4826</a>
. You can help spread the word by forwarding this letter to your friends and family. No donation is too small.
. Join our Team and walk in Seattle on May 20th! You can pre-register for the walk at the website given above.

We are deeply grateful for any way you choose to help Lili and thousands of others living with Cystic Fibrosis.
Thanks for your support.

Sincerely,
Sarah & Stuart Hargreaves

 

[lilismom]

I've been working on a letter as well- I think I'm ready to get it printed - let me know what you all think

On May 20, 2007 the Hargreaves family along with a team of friends will be taking part in the Cystic fibrosis Great Strides walk in Seattle. The walk is the largest yearly fundraiser for the Cystic Fibrosis (CF) Foundation with walks taking place throughout the country.
As most of you know, Lili was diagnosed with Cystic Fibrosis in April of 2006. During our 2 1/2 week stay at Children's Hospital in Seattle we learned the average life expectancy for people with CF is currently about 35. Needless to say, this came as devastating news to us. At the same time, the staff at the hospital's Cystic Fibrosis Clinic laid out a treatment plan that will help Lili maximize and extend the years she does have.


Life with CF

Having lived with CF as a family for a year now, we're happy to report that we've settled into a routine that causes little disruption in our lives. Lili receives a 10 minute inhaled medication once a day, and receives 15 minutes of chest therapy in the morning and evening. This is the most time consuming part of her treatment, which involves clapping on her chest while she lays in different positions to loosen mucus in her lungs. She also takes enzymes with every snack and meal to aid in digestion.
So far, her progress looks good. She is at a healthy weight for her age and her lungs have steadily shown improvement. At the same time, she has been on a lot of antibiotics to fight off bacteria growing in her lungs. Most importantly, her disease hasn't had any real effect on the quality of her life. She's goes to preschool three mornings a week, loves riding her bike and is a wonderful older sister to Mia.
The other night as we were doing her evening treatment, she somewhat matter-of-factly said, "I don't want to have CF anymore, I wish somebody else would go to the hospital instead of me." As parents, we find ways to cope with the hardship and inconvenience that CF brings, but it's sometimes painful to watch Lili slowly realizing that she has a serious disease.
Our hope is that treatments improve and new treatments are developed so that CF will no longer be a life threatening disease and Lili will have a long and healthy life. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in extending the quality of life for those with CF.

Please help the CF Foundation fund research

Last year, just a month after finding out that Lili had CF our family and friends raised over $8000. We were touched beyond words by the outpouring of support and generosity - thank you again to all who participated!
This year, we're hoping to do even better! Here are some ways that you can help us to support the Cystic Fibrosis Foundation in their efforts to improve the lives of those with CF:

. Send a tax deductible contribution in the enclosed envelope. Make the check payable to the Cystic Fibrosis Foundation with Team Lili in the memo space. Many companies will match your contribution so please check with your employer.
. You can donate online by going to: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/Great_Strides/SarahHargreaves4826">http://www.cff.org/Great_Strides/SarahHargreaves4826</a>
. You can help spread the word by forwarding this letter to your friends and family. No donation is too small.
. Join our Team and walk in Seattle on May 20th! You can pre-register for the walk at the website given above.

We are deeply grateful for any way you choose to help Lili and thousands of others living with Cystic Fibrosis.
Thanks for your support.

Sincerely,
Sarah & Stuart Hargreaves

 

[lilismom]

I've been working on a letter as well- I think I'm ready to get it printed - let me know what you all think

On May 20, 2007 the Hargreaves family along with a team of friends will be taking part in the Cystic fibrosis Great Strides walk in Seattle. The walk is the largest yearly fundraiser for the Cystic Fibrosis (CF) Foundation with walks taking place throughout the country.
As most of you know, Lili was diagnosed with Cystic Fibrosis in April of 2006. During our 2 1/2 week stay at Children's Hospital in Seattle we learned the average life expectancy for people with CF is currently about 35. Needless to say, this came as devastating news to us. At the same time, the staff at the hospital's Cystic Fibrosis Clinic laid out a treatment plan that will help Lili maximize and extend the years she does have.


Life with CF

Having lived with CF as a family for a year now, we're happy to report that we've settled into a routine that causes little disruption in our lives. Lili receives a 10 minute inhaled medication once a day, and receives 15 minutes of chest therapy in the morning and evening. This is the most time consuming part of her treatment, which involves clapping on her chest while she lays in different positions to loosen mucus in her lungs. She also takes enzymes with every snack and meal to aid in digestion.
So far, her progress looks good. She is at a healthy weight for her age and her lungs have steadily shown improvement. At the same time, she has been on a lot of antibiotics to fight off bacteria growing in her lungs. Most importantly, her disease hasn't had any real effect on the quality of her life. She's goes to preschool three mornings a week, loves riding her bike and is a wonderful older sister to Mia.
The other night as we were doing her evening treatment, she somewhat matter-of-factly said, "I don't want to have CF anymore, I wish somebody else would go to the hospital instead of me." As parents, we find ways to cope with the hardship and inconvenience that CF brings, but it's sometimes painful to watch Lili slowly realizing that she has a serious disease.
Our hope is that treatments improve and new treatments are developed so that CF will no longer be a life threatening disease and Lili will have a long and healthy life. Research and care supported by the Cystic Fibrosis Foundation are making a huge difference in extending the quality of life for those with CF.

Please help the CF Foundation fund research

Last year, just a month after finding out that Lili had CF our family and friends raised over $8000. We were touched beyond words by the outpouring of support and generosity - thank you again to all who participated!
This year, we're hoping to do even better! Here are some ways that you can help us to support the Cystic Fibrosis Foundation in their efforts to improve the lives of those with CF:

. Send a tax deductible contribution in the enclosed envelope. Make the check payable to the Cystic Fibrosis Foundation with Team Lili in the memo space. Many companies will match your contribution so please check with your employer.
. You can donate online by going to: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/Great_Strides/SarahHargreaves4826">http://www.cff.org/Great_Strides/SarahHargreaves4826</a>
. You can help spread the word by forwarding this letter to your friends and family. No donation is too small.
. Join our Team and walk in Seattle on May 20th! You can pre-register for the walk at the website given above.

We are deeply grateful for any way you choose to help Lili and thousands of others living with Cystic Fibrosis.
Thanks for your support.

Sincerely,
Sarah & Stuart Hargreaves

 

[princessjdc]

I think it sounds good Sarah. Good job!

 

[princessjdc]

I think it sounds good Sarah. Good job!

 

[princessjdc]

I think it sounds good Sarah. Good job!

 

[izemmom]

Here's the letter i sent out this year:



(Great Strides LOGO is usually here)

Join Us for Great Strides 2007!

It is hard to believe that it's been a year since I wrote my first Great Strides Fundraising letter! Our lives have been filled with ups and downs these past 12 months...mostly ups. We have a beautiful new home and two girls who are smart, funny, and growing like weeds. This year also brought us more than our fair share of medicines, infections, trips to the doctor, even our first trip to the ER and hospitalization. We have learned more about CF than I knew there was to learn! But, as Emily reaches each new stage of development, it becomes clear that we will never know enough.

When dealing with this disease, there is only one absolute: Money buys research and ONLY research will buy a cure. We have committed ourselves to raising funds for the Cystic Fibrosis Foundation every year until a cure is found. It is the Foundation's goal to find a cure for CF. Along the way, they are identifying better treatments, developing more effective medicines and increasing the accessibility of life-lengthening therapies. As our pulmonologist stated recently, the Foundation is working to make CF a manageable illness, not the fatal disease that it is today.

Great Strides is the most productive fundraiser held annually by the Cystic Fibrosis Foundation. Last year more than 50 friends and family members joined us to walk and raise over $15,000! We were overwhelmed with the response. This year, our goal is to raise $20,000. Will you help us?

Joining a team is easy! Check the next page to see which walk site and date works for you. We are walking in Fond du Lac and Milwaukee again this year, but you can form a team and walk at any of the Great Strides walks around the state. Check the Great Strides website www.cff.org/great_strides for a complete list. After selecting your walk site, you can register on line or contact me and I'll take care of the registration for you.

We are encouraging all returning walkers to consider gathering a few friends, neighbors or co-workers and form a team of their own this year. More walkers means more funds raised, which brings us one step closer to a cure and better CF care. To register your own team, visit the website given above and simply register as a team leader. There is minimal work involved in managing your team, and I'll be happy to help.

There Are Many Ways to Give Emily More Hope for the Future!

<u>Join A Great Strides Team</u>
(Info for our two walks is usually here)

<u>Join Us For Tomato Dodgeball</u>

On May 19, our friends from McMann and Tate Productions will present Tomato Dodgeball - an evening of improvisational comedy at the Cedarburg Cultural Center. The evening includes pizza and beer, and a silent auction. Proceeds from the event will benefit the Cystic Fibrosis Foundation. Visit www.tomatododgeball.com for details. This is a great show! It is modeled after TV's Whose Line Is It Anyway? You WILL laugh...and help us to find a cure. What a deal!

<u>Make a Donation In Emily's Honor</u>

To donate to the Cystic Fibrosis Foundation, visit www.cff.org/great_strides. Just click on Find a Walker and enter one of our names. Or, if you prefer, checks made out to CFF can be sent to us, and will be added to other funds collected for the walk.

Please do what you can to give Emily and others with CF more tomorrows! The average life expectancy for a person with CF is now 36 years. This is a huge change from thirty years ago when children diagnosed with CF were not expected to live to age 12. But, it just isn't good enough. With your help, we can ensure a brighter...and longer future for Emily.


(Pic of Em is usually here)

 

[izemmom]

Here's the letter i sent out this year:



(Great Strides LOGO is usually here)

Join Us for Great Strides 2007!

It is hard to believe that it's been a year since I wrote my first Great Strides Fundraising letter! Our lives have been filled with ups and downs these past 12 months...mostly ups. We have a beautiful new home and two girls who are smart, funny, and growing like weeds. This year also brought us more than our fair share of medicines, infections, trips to the doctor, even our first trip to the ER and hospitalization. We have learned more about CF than I knew there was to learn! But, as Emily reaches each new stage of development, it becomes clear that we will never know enough.

When dealing with this disease, there is only one absolute: Money buys research and ONLY research will buy a cure. We have committed ourselves to raising funds for the Cystic Fibrosis Foundation every year until a cure is found. It is the Foundation's goal to find a cure for CF. Along the way, they are identifying better treatments, developing more effective medicines and increasing the accessibility of life-lengthening therapies. As our pulmonologist stated recently, the Foundation is working to make CF a manageable illness, not the fatal disease that it is today.

Great Strides is the most productive fundraiser held annually by the Cystic Fibrosis Foundation. Last year more than 50 friends and family members joined us to walk and raise over $15,000! We were overwhelmed with the response. This year, our goal is to raise $20,000. Will you help us?

Joining a team is easy! Check the next page to see which walk site and date works for you. We are walking in Fond du Lac and Milwaukee again this year, but you can form a team and walk at any of the Great Strides walks around the state. Check the Great Strides website www.cff.org/great_strides for a complete list. After selecting your walk site, you can register on line or contact me and I'll take care of the registration for you.

We are encouraging all returning walkers to consider gathering a few friends, neighbors or co-workers and form a team of their own this year. More walkers means more funds raised, which brings us one step closer to a cure and better CF care. To register your own team, visit the website given above and simply register as a team leader. There is minimal work involved in managing your team, and I'll be happy to help.

There Are Many Ways to Give Emily More Hope for the Future!

<u>Join A Great Strides Team</u>
(Info for our two walks is usually here)

<u>Join Us For Tomato Dodgeball</u>

On May 19, our friends from McMann and Tate Productions will present Tomato Dodgeball - an evening of improvisational comedy at the Cedarburg Cultural Center. The evening includes pizza and beer, and a silent auction. Proceeds from the event will benefit the Cystic Fibrosis Foundation. Visit www.tomatododgeball.com for details. This is a great show! It is modeled after TV's Whose Line Is It Anyway? You WILL laugh...and help us to find a cure. What a deal!

<u>Make a Donation In Emily's Honor</u>

To donate to the Cystic Fibrosis Foundation, visit www.cff.org/great_strides. Just click on Find a Walker and enter one of our names. Or, if you prefer, checks made out to CFF can be sent to us, and will be added to other funds collected for the walk.

Please do what you can to give Emily and others with CF more tomorrows! The average life expectancy for a person with CF is now 36 years. This is a huge change from thirty years ago when children diagnosed with CF were not expected to live to age 12. But, it just isn't good enough. With your help, we can ensure a brighter...and longer future for Emily.


(Pic of Em is usually here)

 

[izemmom]

Here's the letter i sent out this year:



(Great Strides LOGO is usually here)

Join Us for Great Strides 2007!

It is hard to believe that it's been a year since I wrote my first Great Strides Fundraising letter! Our lives have been filled with ups and downs these past 12 months...mostly ups. We have a beautiful new home and two girls who are smart, funny, and growing like weeds. This year also brought us more than our fair share of medicines, infections, trips to the doctor, even our first trip to the ER and hospitalization. We have learned more about CF than I knew there was to learn! But, as Emily reaches each new stage of development, it becomes clear that we will never know enough.

When dealing with this disease, there is only one absolute: Money buys research and ONLY research will buy a cure. We have committed ourselves to raising funds for the Cystic Fibrosis Foundation every year until a cure is found. It is the Foundation's goal to find a cure for CF. Along the way, they are identifying better treatments, developing more effective medicines and increasing the accessibility of life-lengthening therapies. As our pulmonologist stated recently, the Foundation is working to make CF a manageable illness, not the fatal disease that it is today.

Great Strides is the most productive fundraiser held annually by the Cystic Fibrosis Foundation. Last year more than 50 friends and family members joined us to walk and raise over $15,000! We were overwhelmed with the response. This year, our goal is to raise $20,000. Will you help us?

Joining a team is easy! Check the next page to see which walk site and date works for you. We are walking in Fond du Lac and Milwaukee again this year, but you can form a team and walk at any of the Great Strides walks around the state. Check the Great Strides website www.cff.org/great_strides for a complete list. After selecting your walk site, you can register on line or contact me and I'll take care of the registration for you.

We are encouraging all returning walkers to consider gathering a few friends, neighbors or co-workers and form a team of their own this year. More walkers means more funds raised, which brings us one step closer to a cure and better CF care. To register your own team, visit the website given above and simply register as a team leader. There is minimal work involved in managing your team, and I'll be happy to help.

There Are Many Ways to Give Emily More Hope for the Future!

<u>Join A Great Strides Team</u>
(Info for our two walks is usually here)

<u>Join Us For Tomato Dodgeball</u>

On May 19, our friends from McMann and Tate Productions will present Tomato Dodgeball - an evening of improvisational comedy at the Cedarburg Cultural Center. The evening includes pizza and beer, and a silent auction. Proceeds from the event will benefit the Cystic Fibrosis Foundation. Visit www.tomatododgeball.com for details. This is a great show! It is modeled after TV's Whose Line Is It Anyway? You WILL laugh...and help us to find a cure. What a deal!

<u>Make a Donation In Emily's Honor</u>

To donate to the Cystic Fibrosis Foundation, visit www.cff.org/great_strides. Just click on Find a Walker and enter one of our names. Or, if you prefer, checks made out to CFF can be sent to us, and will be added to other funds collected for the walk.

Please do what you can to give Emily and others with CF more tomorrows! The average life expectancy for a person with CF is now 36 years. This is a huge change from thirty years ago when children diagnosed with CF were not expected to live to age 12. But, it just isn't good enough. With your help, we can ensure a brighter...and longer future for Emily.


(Pic of Em is usually here)