Looking For Answers

[IG]

First of all San Antonio has an Adult CF clinic. (I was under Dr. Fornos after the peds side)
Christus Santa Rosa Children's hospital (yes it is a children's hospital, but it has an adult program)
I cannot stress enough times how great they are there.
The people are top notch, some of the best that I've ever dealt with.
And I've dealt with a lot of idiots.

My suggestion: Do NOT go to methodist. I don't even know if they have an adult center, but the person that runs the peds program is a real b*tch, and was more harmful than helpful to my health.

Really all you have to do is search for 'Santa Rosa' on these boards and you'll get a lot of feed back (primarily from me but some from another person (Amanda) as well)

 

[beyerdug]

Thank you Emily, Janet, and Candice:

I have looked at Christus Santa Rosa and found out that my insurance will cover me there. I didn't know they had an adult center so I was reluctant to call. Its a relief because I Saw that there is an adult center in Houston but that would be a much further drive. Since I already go to San Antonio 4 times a week for school, and the hospital is only 5 minutes from campus, it should't be hard for me to attend an appointment. You three people have given me heartfelt advice and encouragement and I can't thank you enough. I wish the very best for all of you.

Thank you,
Doug

 

[anonymous]

That's great news Doug! I hope after your initial checkup at Christus Santa Rosa you will give us an update. I will look forward to reading it and I do hope you will be feeling much better very soon.

--Janet 47 w/CF

 

[anonymous]

I am so glad to hear from all of you guys - especially Janet and Doug. I have a 9 yr old boy and it gives me so much hope when I hear from older cf patients w milder symptoms! My son loves to be outside - playing, working anything just being active - and I'm so thankful - he's not a video-tv dude like his cousin and some friends. I keep hoping that he won't have alot of problems - at least til he's older. Thanks for sharing your life with us all! I wish you all the best of luck!!
PS my son really enjoys his cf doc and staff and we're never their more than 1-2 hours!

 

[Ricky]

Emily,
I'm sorry if i offened you for using the word "idiot",but sometimes tough talk or tough love is what somone needs to get them out of their rut. I am 1 of 7 children and the only sibling to contract CF. I was never treated any differently than any of my brothers and sisters while we were groing up together. I've gone through every emotion in the last 40 years that one person can go through, from heartache to feeling sorry for myself to saying why me and all of the others that go along with having this disease and someone was always there to help me out along the way whether it was with words of encouragement or a swift kick in the hind quarters and saying snap out of it. I was just being real. I'f you have a chronic disease especially a chronic lung disease, smoking in the real world I live in is "idiotic". But I appreciate your advise and I will be a little more cautios and sensitive with the words I use in the future (maybe). Ha! Ha!

 

[Emily65Roses]

Oh it's idiotic to me too. And I wasn't offended personally. Just trying to keep the judgment / drama crap to a low. Ahahaa.

And I know if I were Doug, I'd be embarassed as hell to come here and say this junk and ask for advice. But he had nowhere else to ask, and wasn't coming here to be like "HAHA I'M 40 AND SMOKED AND HEALTHY, NEENER NEENER!" If someone did that, I'd praise you using stronger words than idiot. <img src="i/expressions/face-icon-small-tongue.gif" border="0">