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Looking for something

A

anonymous

New member
Hello everyone, I have been lurking on this website for a while now but haven't written for a long time. I chose to write now because I am looking for something specific and think someone out here might be able to help me!

My husband is the one with CF, we are Canadians. He uses a PronebUltra (nebulizer the French word is 'compresseur'), he has to use it twice a day, about 15-20 minutes every time. Apparently there is a nebulizer that is only used in the US (for now at least) that takes a lot less time to do but is still as 'good'. Does anyone know about it, or maybe even use it?

Sorry this is so vague, I'm really just taking a chance here!! (and hoping this thing really exists, it would improve his life a LOT)

Thank you on his behalf ( he would write himself but English isn't his strong suit<img src="i/expressions/face-icon-small-happy.gif" border="0">)

Amelie (wife of Marc-Andre 24w/CF)
 
A

anonymous

New member
Hello everyone, I have been lurking on this website for a while now but haven't written for a long time. I chose to write now because I am looking for something specific and think someone out here might be able to help me!

My husband is the one with CF, we are Canadians. He uses a PronebUltra (nebulizer the French word is 'compresseur'), he has to use it twice a day, about 15-20 minutes every time. Apparently there is a nebulizer that is only used in the US (for now at least) that takes a lot less time to do but is still as 'good'. Does anyone know about it, or maybe even use it?

Sorry this is so vague, I'm really just taking a chance here!! (and hoping this thing really exists, it would improve his life a LOT)

Thank you on his behalf ( he would write himself but English isn't his strong suit<img src="i/expressions/face-icon-small-happy.gif" border="0">)

Amelie (wife of Marc-Andre 24w/CF)
 
A

anonymous

New member
Hello everyone, I have been lurking on this website for a while now but haven't written for a long time. I chose to write now because I am looking for something specific and think someone out here might be able to help me!

My husband is the one with CF, we are Canadians. He uses a PronebUltra (nebulizer the French word is 'compresseur'), he has to use it twice a day, about 15-20 minutes every time. Apparently there is a nebulizer that is only used in the US (for now at least) that takes a lot less time to do but is still as 'good'. Does anyone know about it, or maybe even use it?

Sorry this is so vague, I'm really just taking a chance here!! (and hoping this thing really exists, it would improve his life a LOT)

Thank you on his behalf ( he would write himself but English isn't his strong suit<img src="i/expressions/face-icon-small-happy.gif" border="0">)

Amelie (wife of Marc-Andre 24w/CF)
 
C

catboogie

New member
amelie (cool name!),

a lot of cf patients in the U.S. use Pari nbeulizer cups (what you put the medicine into) but the compressors vary a lot as far as i know. Pari also makes them but there are many other companies.

a couple of companies have quick delivery nebulizers, but they are not yet approved for all medications as far as i know. they are very expensive and my clinic has told me people only are using them for inhaled antibiotics. (this may not be for everyone, just what i know.)

i don't know what medicine your husband nebulizes, but in general, 15-20 minutes two times a day does not sound excessive.

good luck! and welcome to the site.
 
C

catboogie

New member
amelie (cool name!),

a lot of cf patients in the U.S. use Pari nbeulizer cups (what you put the medicine into) but the compressors vary a lot as far as i know. Pari also makes them but there are many other companies.

a couple of companies have quick delivery nebulizers, but they are not yet approved for all medications as far as i know. they are very expensive and my clinic has told me people only are using them for inhaled antibiotics. (this may not be for everyone, just what i know.)

i don't know what medicine your husband nebulizes, but in general, 15-20 minutes two times a day does not sound excessive.

good luck! and welcome to the site.
 
C

catboogie

New member
amelie (cool name!),

a lot of cf patients in the U.S. use Pari nbeulizer cups (what you put the medicine into) but the compressors vary a lot as far as i know. Pari also makes them but there are many other companies.

a couple of companies have quick delivery nebulizers, but they are not yet approved for all medications as far as i know. they are very expensive and my clinic has told me people only are using them for inhaled antibiotics. (this may not be for everyone, just what i know.)

i don't know what medicine your husband nebulizes, but in general, 15-20 minutes two times a day does not sound excessive.

good luck! and welcome to the site.
 
B

bmombtoo

New member
Could it be the "proneb-ultra"? That is the name of the
machine we recently got, just this week. It seems to work pretty
quickly but like the others said I think it depends on what kind of
nebulizer cup you use and the medication.<br>
<br>
Best of luck!
 
B

bmombtoo

New member
Could it be the "proneb-ultra"? That is the name of the
machine we recently got, just this week. It seems to work pretty
quickly but like the others said I think it depends on what kind of
nebulizer cup you use and the medication.<br>
<br>
Best of luck!
 
B

bmombtoo

New member
Could it be the "proneb-ultra"? That is the name of the
machine we recently got, just this week. It seems to work pretty
quickly but like the others said I think it depends on what kind of
nebulizer cup you use and the medication.<br>
<br>
Best of luck!
 
I

IG

Guest
prob. talking about the Pari e-flow. It's brand new and uses ultrasonic vaporization or something like that..
ex. a normal pulmo treatment would be about 3 or 4 minutes compaired to the usual 10 minutes or so.
Anyway it's not FDA approved and as far priceing goes I've seen $2,600 on an independent website, but that was just one price and like I said it's not approved for anything. As far as I've seen only used in medical trials and such.
(BF has one, it's cool, looks like a flying saucer).
Actually he needs to do a treatment tonight... I'll make a video and post it on here.
 
I

IG

Guest
prob. talking about the Pari e-flow. It's brand new and uses ultrasonic vaporization or something like that..
ex. a normal pulmo treatment would be about 3 or 4 minutes compaired to the usual 10 minutes or so.
Anyway it's not FDA approved and as far priceing goes I've seen $2,600 on an independent website, but that was just one price and like I said it's not approved for anything. As far as I've seen only used in medical trials and such.
(BF has one, it's cool, looks like a flying saucer).
Actually he needs to do a treatment tonight... I'll make a video and post it on here.
 
I

IG

Guest
prob. talking about the Pari e-flow. It's brand new and uses ultrasonic vaporization or something like that..
ex. a normal pulmo treatment would be about 3 or 4 minutes compaired to the usual 10 minutes or so.
Anyway it's not FDA approved and as far priceing goes I've seen $2,600 on an independent website, but that was just one price and like I said it's not approved for anything. As far as I've seen only used in medical trials and such.
(BF has one, it's cool, looks like a flying saucer).
Actually he needs to do a treatment tonight... I'll make a video and post it on here.
 
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