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lung transplant information

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malibra

New member
Hello,I was just wanting to hear from anyone with CF , or family member, who has had a lung transplant. My brother has just been confronted by his doctor that he needs to think about going on the transplant list. I would like to hear from someone who has had the procedure. thank you.
 
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anonymous

New member
Hi,My name is Andrew. I had a lung transplant about 6 months ago. I'm sure this would be a very anxious time for you and your family. I would be happy to answer any questions that you might have. Feel free to post any questions up or email me at hopeandrew@hotmail.com.
 
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RadChevy

New member
Hi Malibra, Lung Tx is a big step, but the results are wonderful. I had my lung tx 6.5 years ago and my sister 3 years ago.If you have some specific questions, or your brother does, please feel free to ask. There is so much to share and not sure where you want to start.I also have a web site that is called Transplant Support - Lung, Heart/Lung, Heart and lots of great resources there and information and also an email support group and chat. I will list the info below, feel free to check it out. It is free.Joanne M. SchumCystic FibrosisBi-lateral Lung Transplant RecipientSeptember 12, 1997University of North Carolina Hospitals Chapel HillResidence: Upstate New Yorkemail: luckylungsforjo@aol.comManager of: Transplant Support - Lung, Heart/Lung, Hearthttp://groups.msn.com/TransplantSupportLungHeartLungHeart"Taking Flight - Inspirational Stories of Lung Transplantation" Compiled by Joanne SchumAuthored by lung recipients around the worldhttp://www.trafford.com/robots/02-0497.htmlhttp://www.trafford.com/
 
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anonymous

New member
Thank you so much Andrew and Joanne for your replies. I have already corresponded with Andrew and Joanne I will be sending you an email very soon. It is so good to hear how well you all are doing and over the course of the next few months/years Im sure I will have many questions. Again I really appreciate all of your help. I look forward to corresponding with you both.Tonya
 
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anonymous

New member
Hi,My name is Andrea. I have CF and have had a lung transplant in 1996. I am 22 now and doing well. I would do it again if I had to. It saved my life, and I am thankful I was able to get the chance. I was on the waiting list for 3 years. They said I wouldn't live to 16, but I got the transplant at almost 15 years old. So here I am and doing very well. At about 51/2 to six years post transplant, my kidneys began to fail (due to the anti rejection meds, which are toxic to kidneys). Therefore in 2002 I had a kidney transplant...(given to me from my mom, whom I love). <img src="i/expressions/face-icon-small-smile.gif" border="0"> Now i am in excellent health. PFT's have never been better and keep getting better every clinic visit. I don't do treatments or oxygen anymore. Just lots and lots of pills. Which I will take over doing treatments 4 times a day! If you have any other questions email me at renee929@excite.comAndrea
 
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anonymous

New member
Thank you Andrea. Hearing from people like you who are doing so well is an inspiration. I will be talking with you soon i hope.Tonya
 
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anonymous

New member
my doctor wants me on da transplant list i would like to knO what n e body had to do in order to get listed because im scarred that i might not make it on the list. i would like new lungs soon but i knO that its def. gonna take some time. if n e body can pls help on this i would appreciatte it thank u>>>>email...<a target=new class=ftalternatingbarlinklarge href="mailto:latinabebe2005@aol.com">holla @ me</a>
 
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